HELP need some advice

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New Member

Date Joined Jan 2010
Total Posts : 5
   Posted 1/26/2010 9:25 AM (GMT -6)   

I was diagnosed with CD in March 2008 and have been on Pentasa, Pred and now Azathioprine (which does very little for me except dropping my neutrophil count to 0.2!) I started as a private patient and felt well looked after but had to move to NHS about 18 months ago, and haven't i noticed the difference even though its the same consultant. I have not reached remission as yet but trying to remain positive.

Woke up on Saturday 2:00 AM in a lot of discomfort and spent the next 2 hours chained to the toilet passing mostly liquids. Since then i haven't slept only had the odd bit of toast and am really struggling to take in any water. Saw my GP today who took some bloods and asked for a stool sample and pretty much fobbed me off, didn't even give me a doctors note, said i could self-certify which is all well and good but i don't get paid that way. I just don't feel right in myself i've been confused and so lethargic and i've lost 1/2 a stone in that time but my GP just wasn't worried. Just debating whether to take myself down to A&E/primary care or not?

Any thoughts?
Age 22, diagnosed with Crohn's Disease March 2007, currently taking 100mg Azathioprine, 2g Pentasa, Solpodol for pain

Regular Member

Date Joined Sep 2008
Total Posts : 54
   Posted 1/26/2010 10:19 AM (GMT -6)   
Are you seeing a gastroenterologist in a hospital?mine always says to phone if theres a problem and you can make an urgent appointment with him/her. Also at my hospital there is an IBD nurse maybe you could contact them. Best wishes anyway.
had crohns for 15 years took pentasa then nothing but diet but stricture appeared 3years ago and problems since. Had abscesses more than once
Taking VSL#3, glutamine, multivitamins, slippery elm food, aloe vera, vitamin d, grapefruit seed extract, no meds at present

New Member

Date Joined Jan 2010
Total Posts : 5
   Posted 1/26/2010 10:25 AM (GMT -6)   
I do have a gastro but he's not very available, i had 10 appointments at the hospital last year and only saw the man himself twice all the other times i saw a junior who had no knowledge of crohn's or my history. I have tried calling his office but his secretary is always less than helpful and says she will leave a message in his paperwork. Unfortunately there is no IBD nurse at my hospital either, wish there was my mum is a Crohnie too and her nurse is always so helpful to her.
Age 22, diagnosed with Crohn's Disease March 2007, currently taking 100mg Azathioprine, 2g Pentasa, Solpodol for pain

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 1/26/2010 10:27 AM (GMT -6)   
When I start feeling a bit foggy after not being able to take in food or liquids and spending so much time in the bathroom it usually means that my electrolytes are off. You might be getting dehydrated too. I think you should head to the ER. Usually when we start wondering if we should go, its because we KNOW we should go, but don't really want to go.

The other option is to try to force some liquids in and see how you feel in a bit, but I would try for something more than just water. Something like pedialyte or gatorade.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/26/2010 10:33 AM (GMT -6)   
I agree with Zanne, if you are feeling so bad and getting no help from the doctors I would go to the ER.  I agree you are more than likely getting dehydrated and some IV fluids and rest might be a good idea for you.  Hugs!

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Jan 2010
Total Posts : 5
   Posted 1/26/2010 11:07 AM (GMT -6)   
Thanks guys, Zanne i think you hit the nail on the head I'm just putting off the inevitable off because i don't want to go in. Its just hard sometimes trying to judge how well i should be feeling and knowing when some things not right, i feel it in my gut in more ways than one :)
Age 22, diagnosed with Crohn's Disease March 2007, currently taking 100mg Azathioprine, 2g Pentasa, Solpodol for pain

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 1/26/2010 5:27 PM (GMT -6)   
Please do let us know what happened, and how you're feeling, when you get home, c_azzy.

Best wishes,

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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