It seems to be a great forum here, and it’s time to introduce myself like Nanners “oriented”.
For a long time, I didn’t see any reason to be part of a community like this, but things change, didn’t it?
I think that now I begin to understand what mean to have a progressive disease.
It started in may-1994, with a persistent diarrea. In november I received the right diagnostic of Crohn (excellent gastro - in Rio de Janeiro). I was 19 and happy to know what I had. The only simptoms was diarrea, and some disconfort. So, 40 mg of Pred was my fresh start. Followed by 5-ASA and Imuran.
After 7 years of mild simptons (no severe pain, but some diarrea), I had a blockge with a “popcorn” dinner (almost a suicide!). Surgery (2001), and 4 months of remission. Followed by Imuran and iron (here and there).
More some years with mild simptoms, enhanced by Questran (“solved” the diarrea problem), and finally, in 2008, I had a stricture (long one). Heavy flares, prednizone + imuran, and, for the first time in my life, heavy diet.
Ressection in dec/2008, with high expectations, and I let go 25 cm (almost a foot) long section of my small bowel. And guess what? Two weeks (lazy gut) in the hospital and no remission at all...
So, started Remicade (here we go!) with some relief, but painful flares kept coming. Combined Imuran + Remicade in sep/2009 and experienced 3 months of total remission (first time in my crohnie life). BUT, this paradise just ended in 2010 with new, although weaker, flares. More stress comming...
That’s why I’m ready for a more stoic approach, with lower expectations.
Glad to find you, and back to “school”.
And... in my learning journey, one question ecoes in my mind (after reading a few topics):
Since bread (yeast), milk, raw fruits, cheese (dairy), sugar, critics (orange juice), cafeine and more seems to bother most of our guts (ok, ok, everyone is different, but I’m sure you understand me!), WHAT DO YOU HAVE FOR BREAKFAST??
Post Edited (BeeSting) : 1/28/2010 12:26:50 PM (GMT-7)