Hi all -
I've been having some issues on and off for the past year, and when I finally thought I was getting over the hump, BAM, it creeps back up in a most unwelcome way.
My doctors have discovered that I have at least three active fistulas (cutaneous, rectal, and RV); they are partially draining, but clearly not enough as they have formed an anal abscess. I was all set to begin my Humira last week, but had to put that on hold due to high WBC indicating an infection (thus how the abscess was discovered).
For background, I have a lot of peri-anal issues (anal fissure last year, multiple skin tags, lots of rectal inflammation, and now the fissures). Now, as a next step, my GI, in conjunction with a colo-rectal surgeon I saw for a consult, are recommending a temporary ileostomy to allow the rectal region to completely heal.
I have been very lucky in not needing any surgeries related to CD during this time, so the thought of having this major surgery is freaking me out. Has anyone else experienced this and taken it as a next step?
I am even more upset because I am getting married in September and I don't know how this will affect that. But at the same time I don't want to continue to be on prednisone and be sick all the time. I have been on prednisone since Feb. 2009 and am still on a dose of 30 mg a day, and I've gained 25 pounds since starting on it too. I hate that drug!
Here are some of my recent blood stats - all indicators of an infection (the abscess):
WBC - 14.2 (high)
Neotruphils - 12794 /90% (high)
Lymphocytes - 824 (low)
Any similar experiences that can be shared would be much appreciated.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009
**Asacol (4000 mg daily), 6-MP (100 mg daily), Prednisone (30mg daily...for now), Nexium (40 mg daily), Flagyl (500 mg daily), Sulfasalazine (1000 mg daily), and getting ready to start Humira
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).