Ideas/Advice for J-Pouch....

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christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 1/27/2010 9:51 PM (GMT -7)   
Hey everyone! I know we're not a "Chron's" case persay, but I figured some people in here have been through this similar situation, and that's why I'm writing! ;)
 
Well, after an awful 4 years with UC, about 2 weeks ago my husband underwent the ileoanal anastomosis surgery (ileostomy with a j-pouch)... and everything went as expected, and I believe he's adjusting fairly well. He's lost about 30 lbs, but we've been reassured he'll gain it all back. Now that he's in recovery with his ileostomy...while the j-pouch heals itself...he's having difficulty sleeping at night. I wasn't sure if this was common, but it seems as though he can only sleep on his back, as he says it hurts to lay on his side. I was wondering if anyone had any suggestions who has had this done? I don't feel like he's healing very well because he's not sleeping at night as he's so uncomfortable sleeping on his back.
    We've adjusted our families eating habits and we don't eat after 6:00 pm as it causes his bowels and that little stoma to be too active and he wakes up often having to empty his bag at night time. It's taking a lot of getting use to, but I was wondering if anyone could offer some additional support or advice.  I am very proud of him, but I just want to help him somehow as I know this is such an adjustment. Normally you only have to have the ileostomy for 2-3 months, but after a little mishap (sneezing) the doc said it might take 6 months for him to heal properly! No worries though, we are keeping our heads up, and praying the Lord helps us get through this. However, any additional ideas or comments are welcome! I have already ordered him a 'stealth' belt to help with support of the bag..ect...but any ideas with the sleeping thing would be greatly appreciated! Thank you all!!!
 
Love in Christ,
Alainasmilewinkgrin


Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
 
 
 
Current Meds:
Levothyroxine (.88 mg)
Sulfasalizine
Prednisone..when all else fails!! :)
 
 
 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 1/28/2010 6:02 AM (GMT -7)   
Alaina~your hubby is on his way to feeling better, but since it's only been two weeks, he'll need some more time.

Is the fact that he is uncomfortable because he is in pain? or, just not used to it? He could try sleeping with some additional pillows behind him until he can get back to his normal sleeping position. I am a stomach sleeper and have no problems still sleeping on mine (I have a ileo)! If it is because of pain, make sure he takes some pain meds before going to bed so that he is comfortable...he body will recover better with sleep.

As far as sleeping through the night w/out emptying, is he using a fiber supplement and imodium? Everyone is different and in time his output will regulate, but I do sleep through the night without emptying (and I eat whenever I want). I think his issue right now is that it is still so soon post op...it will get easier!!!

You should also post your questions on the Ostomies Forum...there are some wonderful folks their, too!!

christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 1/28/2010 1:46 PM (GMT -7)   
Oh perfect...thank you! I just called the doc today after doing some research to see if he could get a refill on his pain meds as he's been out for a bit now, just so he can take them at night time to help him eat. And as far as the immodium...or fiber supplement goes, he's not on anything...our doc here in town did the surgery, and he doesn't do too many of them, so he's kind of playing things by ear as well. He's done plenty of them, and we felt comfortable with him doing this surgery, but he's never mentioned anything to us about immodium or fiber supplements....i know that even when we eat dinner early, he's still getting up in the middle of the night to empty his bag, do those kind of things help with that? Thank you so much for replying, and I will post this in the other forum!!

Alaina :)
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
 
 
 
Current Meds:
Levothyroxine (.88 mg)
Sulfasalizine
Prednisone..when all else fails!! :)
 
 
 
 

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