Crohn's with constipation?

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hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 1/28/2010 4:50 PM (GMT -7)   
A friend of mine has a daughter who has many of the symptoms of crohn's, but she is constipated alot. I never had that. She is just beginning the long, frustrating visits with doctor after doctor and she is only 17 years old. I would sure appreciate it if those of you who experienced constipation with CD could give some info. She is exremely fatigued, gets skin rashes, a bloated belly and body aches, too. Thanks everybody!
58 years old;
Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/28/2010 5:06 PM (GMT -7)   
when I first started my crohns symptoms, I would get terrible constipated, then my small bowel collapsed, and i had mayor surgery. that 1970. went years after with no med's. they took at that time 8ft of small Int. disease potion. 1989 came back at the resection then had elective surgery to avoid another collapse. now on imuran an pred. I hope that is not her case very painful. my verry best

artist guy


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 1/28/2010 5:35 PM (GMT -7)   
Thanks for the info. At least now I know they shouldn't stop looking for the cause or settle for the first diagnosis unless they have proof.
58 years old;
Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


minou
Regular Member


Date Joined Jan 2005
Total Posts : 140
   Posted 1/28/2010 5:55 PM (GMT -7)   
I've had terrible constipation with my Crohn's for the past few years. Big time bloating. I can't tell you why though, my doctor is still looking into it. Please tell your friend to hang in there!

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/28/2010 6:41 PM (GMT -7)   
ok, I should elaborate, my cd. the part that infected was so inflamed that it made the opening narrow,very narrow. that was why the collapse and the surgery to remove that portion of my small bowel. so until it collapsed my stomach would bloat out and  very tender to touch. they then cut out the 8ft of disease and then it came back where it was connected. but my cd isn't spread thru out my gut just in centrolized area. I hope you understand how I'm trying to say it. some cd'er's have it spread thru out so surgery is practiclly impossiable, that's why they go on high tech med's withno surgery. I hope that helps

artist guy


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8546
   Posted 1/28/2010 7:53 PM (GMT -7)   
Some people with Crohn's do have constipation rather than diarrhoea. It's often due to inflammation/scarring causing narrowing of the intestines. Right now I think I have a stricture; I'm not exactly constipated because what comes out at the other end is still usually diarrhoea - it just takes longer than it used to, I get horribly bloated, and I get a sensation of my guts feeling bunged up and sore. Also, it's fatiguing. I find constipation in general to be fatiguing though - there's just something inherently draining about not being able to go...

cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 1/29/2010 2:25 AM (GMT -7)   
while I get both D & C the constipation is far more common and back in the early days was very bad, so much that i would often tear. Thats the thing with Crohn's, its different for everyone. My GI thinks that my case is simply a combination of the scaring in areas and also that I have a sluggish and lazy digestive system. . Good luck to her x x
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 1/29/2010 3:47 AM (GMT -7)   
When I first became sick, I was 16 years old...I started with severe constipation. It took them 5 years to diagnose me after seeing many doctors. When they did diagnose me with crohns they removed 3 feet of my large bowel, that was in 1987.

Thanks
Carmen

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/29/2010 7:51 AM (GMT -7)   
I am a crohnie who suffers with more c than d. I also have the stricuturing/scarring type of Crohns. I have to take stool softners nightly in order to keep things softer and easier to pass.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

calace
New Member


Date Joined Nov 2009
Total Posts : 10
   Posted 1/30/2010 8:43 AM (GMT -7)   
I have had Crohns since 1993 with one re-section. After years of diarrhea, suddenly I am constipated with back pain and right quadrant pain. Colonoscopy last year showed significant narrowing so I think it's finally taking it's toll. Expect to be put on meds Monday since pain has made me very tired and walking an effort. Anybody take Tramadol for pain? It was suggested to me but I'm afraid of side affects.
Crohn's Disease since 1993 when I had a re-section. Only on Questran - no other meds. Three children. Inflammatory markers are slowly going up now, colonoscopy confirms inflammation. Joint pain, but other than some bad days, in good health.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/30/2010 8:48 AM (GMT -7)   
Tramadol is one of those meds that works for some and not others. I don't tolerate it well as I have a sissy gut. I take 1/2 tab of Percoset 3 x's a day for my pain. Before that I took 1/2 Vicodin 3 x's a day and it worked well without making me super drowsy. I would also recommend that if you get put on maintainence meds this time Calace, that you stay on them. I was told I no longer needed to take meds after my 1st resection, and 3 years later I had to have another resection. While you are busy getting on with your life, the Crohns is still in there doing its damage on a microscopic level. Thats exactly what happened to me and I would like to see you stay healthy. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 1/31/2010 10:38 AM (GMT -7)   
I get constipation and bloating more than diarrhea. What I do to remain regular is drink 1-1.5 capfuls of miralax every day or every other day with juice. (Don't do what I did and drink it dissolved in water--THAT WAS NASTY but i didn't know any better). It's not a laxative. It puts more water back into one's poop. I have also tried docusate which is like putting soap on the poop but it never really worked for me.

I used to work in an ER for 4+ years and one of the pediatricians on there told me it was bad for my colon for me to swing from not going for 4-6 days to diarrhea for 3-4 days and that he prescribed it to his patients to keep them regular. I tried it and it works for me. I've been taking it since 10/2007 and so far so good. <crossing fingers> By the way, i have moderate crohns symptoms but i don't have any fistulas, strictures, or surgeries. My GI never prescribed it to me or told me what to do about my constipation but when I told him what I was taking and that it worked, he told me to keep doing what worked for me. Miralax is an over the counter prescription and they have a smaller bottle so you're not stuck paying $20 on a 2-3 test.

Tell her to hang in there and good luck.
Diagnosed: 08/03/07
Meds:
lamictal 200 mg/asacol 2 pills 3x day/imuran 100mg day
Started humira 3/14/09.... pulled off due to migraine side effect. Dealt with migraine for 74 days and then it finally went away.


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 1/31/2010 11:54 AM (GMT -7)   

My son was diagnosed with Crohn's Nov 09 at the age of 16. He too had the constipation and severe stomach pain. His GP put it down to heartburn!!! I do not know a great deal about this disease (but am rapidly learning) but I would have thought if some blood tests were done that would 'flag up' whether her symptoms would need further investigation.

 


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 1/31/2010 3:27 PM (GMT -7)   
When I first got crohn's at 15 years old I had constipation. At around 35 years of age I came out of remission and this time and since it's been diarrhea.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/31/2010 6:38 PM (GMT -7)   
My daughter had constipation, never D. THe constipation is gone now that she is on meds (LDN), vitamins and a modified version of the SCD diet.
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. Used LDN to taper off Entocort. Was on Entocort since April 06. Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 500 mg calcium, 27 mg iron, monthly B12 shots, daily oral B12 1000. SCD diet modified to include potatoes and rice. 

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