What about Fibro and Crohn's?...is there a connection?

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springthyme
Regular Member


Date Joined Jan 2010
Total Posts : 21
   Posted 1/29/2010 1:01 PM (GMT -7)   
As I read all of your posts, I notice that many of you have simaler issues such as fibro and joint pain, anemia, low Vitamin D and other malabsorptions.
 
How many of you have Fibro (or central sensitization as my rheumatologist calls it). 
 
I just had a hysterectomy becuase of such severe anemia, BUT they couldnt tell me if my period was the cause.   I have not had my anemia checked since.  Could this all be becuase of the Crohn's?
 
How many of you have migraines?  How about heartburn?  How about arthritis?  How about fatigue?  How about hip/knee/shoulder/wrist pain that comes and goes?
 
Gosh, I have so many questions...thanks for putting up with meblush
 
SpringThyme

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/29/2010 1:11 PM (GMT -7)   
Hi SpringThyme and yes, yes and yes to your questions:) I have been anemic with my Crohns, and had to have an IRON infusion. I also suffer with Low Vitamin D, Fibromyalgia, GERD, and Osteoarthritis. They are all connected to my Crohns, unfortunately. The Vitamin D3 has really helped to ease my Fibro pain, but with my osteoarthritis I have to have both my knees replaced in the next few years sometime. Crohns just seems to attack the whole body sometimes.

Good luck!
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 1/29/2010 1:19 PM (GMT -7)   
I used to have hip, shoulder, knee pains and even pains in my finger and toe joints that used to come and go. I started using LDN, low dose naltrexone, and my Crohns improved a lot, so did all the pain issues. If you have fibromyalgia and Crohns you could definately benefit from LDN for both of the diagnoses, and even improve the joint pains. You could learn more about LDN and Crohns by registering in the yahoo list group that have some hundred Crohns members learning each other about LDN and eating right. Many members just register to read and research trying to find out if LDN and an alternative nutrition/diet could be something for them. /Bee

springthyme
Regular Member


Date Joined Jan 2010
Total Posts : 21
   Posted 1/29/2010 2:55 PM (GMT -7)   
Thank you Bee and nanners!  I really appreciate your ideas.  I am on Savella for the fibro, but nothing else so far.  I will look into the LDN.  \
 
 
 
SpringThyme

Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 1/29/2010 5:46 PM (GMT -7)   
hi there like Nanners i hv all you have listed plus some..only i dont hv issues yet with knees but i hv neiropathy to go along with all the other goodies..feels like feet are constantly in bucket of ice...asleep ect....stay with us n no worries bout the questions thats what hw n ppl here are all about..answers input n support.....lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
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artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/29/2010 6:17 PM (GMT -7)   

wow, I just learned i must have neiropathay. my feet are constantly frozen evan inthe summer, my dr. said I have super strong pulse, but I wear wool socks everywhere, what else can I do for that, or does it come with the territory? med's anything that will help sometime so cold they burn

cd since1970. imuran, pred. 15mg's


artist guy


springthyme
Regular Member


Date Joined Jan 2010
Total Posts : 21
   Posted 1/29/2010 6:36 PM (GMT -7)   
hi artistguy,
 
I never thought about neuropothy, but always thought that frozen feet was also part of raynauds, which I get in my fingers and nose.  The feet can also be effected.  Are you getting the numbness, or the frozen feet, or both?
 
I get the numb feet, but only after sittin on the potty for too long...tongue

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 1/29/2010 7:26 PM (GMT -7)   
hey springtyme, frozen mostly, but so frozen I'm not sure that they're numb. I've heard of raynuard's. I googled neiropathay after reading this blog, and I'm pretty sure it's auto-immune caused,i.e. crohn's. you think, I have no dietabitis, blood sugar is low due to dumping sydrome, other than that I'm really healthy except for cd. my feet warm up after I get in bed, sometimes I go to bed just to warm up my feet. I contol my hypoglycimia with diet.

artist guy


cooper67
Regular Member


Date Joined Oct 2008
Total Posts : 30
   Posted 1/30/2010 12:14 AM (GMT -7)   
Yes yes yes to all of your questions!On nexium and 6mp,on probiotics,flax seed etc.still have lots of joint pain

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 1/30/2010 11:49 AM (GMT -7)   
Hi Spring tyme well u really hit the nail on the head bingo I got all of them which the arthritis is caused by steroid use according 2 my doc that is why I refuse 2 use them any more but people usually end up getting some form of bone pain or inflammation and the fibro I know numerous people with it I beat there all related some how 2 our disease its 2 much of a coincidence if not don't u think...
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 1/30/2010 4:49 PM (GMT -7)   
I have gerd, fibromyalgia (shoulder, knee and wrist pain), costochondritis IBS along with the "whatever I have in my colon." I also have fatigue issues. I find that when I have a regular schedule and lots of sleep, I feel a lot better.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia
low thyroid,claritin, advair, singulair, diovan, progesterone, lialda, VSL#3 probiotic, Vit. D
tried just about every antidepressant known with so many side effects, still trying to find the right one
switching to prozac today
Blood test positive for Crohn's via prometheus ibd serology panel


springthyme
Regular Member


Date Joined Jan 2010
Total Posts : 21
   Posted 1/30/2010 8:53 PM (GMT -7)   
Well I am sorry to hear that I am not alone with all of these other wonderful symptoms, however, you all understand.  I too think that it is too much of a coincidence that we all share simaler symptoms. 
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