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New Member

Date Joined Jan 2010
Total Posts : 6
   Posted 1/30/2010 1:50 AM (GMT -6)   
Hi Fellow Crohnies!
I've had Crohn's since 1976 so that explains the Old Timer status!  I fought like mad to gain control of the disease, the culmination of which was a 7 month hospitalization in 1979.  This was supposed to be a 30 day thing on TPN to give the bowel a complete rest.  However, everything that could go wrong - did.  Ultimately, the decision came down to an ileostomy or a walnut casket with brass handles from the local funeral home! 
I spent the next three years being angry at the world for my ileostomy!  Got me nowhere! 
Somewhere down the road, I finally reached an acceptance of what I would never be able to change. 
Life is good!  I have learned how to live with an ostomy to the point where it doesn't control me or my life.  Just a slight alteration in my plumbing!
I hope that I can lend some support to newbies & maybe offer some tips on how to manage the ups & downs of dealing with Crohn's &/or ileostomies!

Female, 54
DX Crohn's Disease 1976
Ileostomy 1980
Decade spent fighting fistulas leading to butt amputation (yes, really!)
Resection/Noble Plication 1995
Just call me "Barbie Butt"

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/30/2010 3:45 AM (GMT -6)   
Hi and Welcome to Healing Well. I now it is hard to except this disease. It also was the same
for me and I leaned how to deal with the Crohn's.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 1/30/2010 9:27 AM (GMT -6)   
Hi and welcome Barbie butt! I'm sure you have seen it, done it, tried it, with this darn disease.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/30/2010 10:01 AM (GMT -6)   
Hi Merrill and welcome to the best Crohns forum out there. I was diagnosed only 1 year before you! You will find alot of support and family like atmosphere here. We are glad to have you and look forward to hearing more from you.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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