Temp down, cold, hurts to eat or drink

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FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 1/30/2010 11:41 AM (GMT -7)   
So this latest flare has been more painful than most.  I have been feeling very cold for a week +.  I decided to take my temp and it is 97.6 oral.  That is probably reasonably normal.
It seems though that when I eat or drink I get very bad pain and have to run to the toilet for D or bloody D.  I don't throw up and I don't know about bloating.  I have alway had seperate clothing for flares because my gut expands but I guess I just want your thoughts on this for example the only thing I ate this morning was a cup or tea and minutes later I was on the toilet in a lot of pain.  (decafe by the way).  Last night mashed potatoes and the pain was so bad I couldn't eat the chicken broth afterwards.  I wonder if this is a narrowing?  35 years with ibd and I have had about enough.  I know many of you understand that feeling.
 
Thoughts?

NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8550
   Posted 1/30/2010 7:51 PM (GMT -7)   
It could be a narrowing, but it could be a general flare up too. With regards to feeling cold, are you on an immunesupressant such as 6-MP or Imuran? I've heard they reduce your temperature. I tend to always have a slightly low temp, even though I'm no longer on 6MP. But last autumn I had a temp that was consistently nearly 2 deg. C below normal - I was always freezing cold then. At that time I was still on the 6MP and kind of put it down to that, although it did pass after about a month.

With my (suspected, not diagnosed) stricture, I have been tending towards a delayed pain response, that is, the pain comes on a couple of hours after eating and is at its worse about five or six hours afterwards. That is, when I suffer pain. It's variable. Some days it's only a bit, other days it's a lot.

Anyway, you sound like you're really suffering. I think you should see a doctor about it :-/

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/30/2010 11:00 PM (GMT -7)   
Thanks for your insight. I am in for the colonoscopy on Tuesday. I quit imuran due to pancreas reaction. I might be cold from dehydration. I ate a bit this afternnon and didn't hurt until an hour later. I am drinking gatorade right now and I guess I will find out soon enough if it will hurt me. I think I am dehydrated though so I plan to drink a lot the next few days.
 


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/31/2010 12:05 AM (GMT -7)   
I just went through what you are expereincing over Christmas! Low temp and then eventually raised only at night. I would highly recommend you ditch the gatorade and use my 'secret' drink which will give you electrolytes wthout all the artificial stuff in that googey drink: Pedalyte (unflavored) - I would cut with filtered water as I couldn't stand it at 100% but as much as you can, and then any kind of clear juice to flavor. I wish I would have found this before I was put in the hospital for dehydration as I couldn't stand anything to eat, even gatorade, vitamin water, etc. I don't tolerate anything artificial.

There was someone on another thread recommending a meal replacement which maybe would help to give you a rest - they recommended ograin which you could google. But I've found brown rice protein mix which I think combined with rice milk might be easier than mashed potatoes ... just an idea.

I fell for you ... I lost 25 pounds in 3 or so weeks ... and now that I'm on high doses of prednisone, gained it all back ... but having some abdominal pain so thinking of backing off of solids for a few days to get this under control.

Amazing that even with all the time we can have this disease, we are always learnign how to deal with it. A testimony to how tricky this disease is.

Hang in there ....
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/31/2010 2:16 AM (GMT -7)   
Hi Fun Guy,
I would recommend for you to drink ensure or boost since your not eating much. It should help.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 1/31/2010 3:24 AM (GMT -7)   
Hi funguy, I went through the exactly the same thing last year I ended up with 4 small strictures in the small bowel, started happening with food but in the end even liquid was causing me pain please get yourself checked out. Let us know how you get on Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/31/2010 7:23 AM (GMT -7)   
Just wanted to send some healing hugs your way. I hope your scope provides you some answers. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 1/31/2010 9:48 AM (GMT -7)   
WOW thank you for the responses and hugs. I am not sure but I think that I am improving. I will take your advice(s) about diet and it helps to know others have had these symptoms. I wonder if the Colyte will affect me differently this time but I'll find out Monday eve.

Strength and good luck to you all
 


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 2/2/2010 4:40 PM (GMT -7)   
Update: The colyte was tuff this time I think because I have not eaten well in days and my gut is so bad.

Had the EGD and colonoscopy. The doctor wants me to resume my prilosec which I was so proud I got myself off of a couple of weeks ago. Errosion of the esophagus. So there is that. He also found a "severe" crohn's flare left side and several ulcers else where. He believes I should try remicade and I believe I will.

Thank you all again for your suggestions. I am glad I don't have a stricture and I am excited to try the remicade. Perahps I may have a life one day. :)
 


justagirl31
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 2/2/2010 5:02 PM (GMT -7)   
I know just what you are going through, when i was having the worst flare ever (almost hospitalized) Even a piece of toast sent me running to the bathroom in pain. It hurt so much that I stopped eating all together, not a good thing to do. But i was at a loss. The good thing I did get through it. My GI doctor put me on a butt load of prednisone. I will never forget that time in my life.  I did go on Remicade and worked wounders!!! Unfortunately I could not afford to keep taking it. I hope you have great results too on remicade!

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 2/2/2010 5:31 PM (GMT -7)   
Thanks justagirl.
OK but here is something weird. Since I got out of the hospital today I started eating. A chicken sandwhich at Good Times and just now an egg sandwich on toast.

I haven't been able to eat in days. I wonder why after the proceedure I can eat and I wonder if I will pay a price tomorrow for eating? I really needed the food though.
 

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