Zanne - Xifaxin

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/30/2010 3:12 PM (GMT -7)   
I currently have another Small Intestine Bacterial Overgrowth and the doctor prescribed Cipro again.  Last time I took it had no problems at all.  This time it has torn up my stomach.  Gonna switch to Xifaxin.  I know you take this, do you get any side effects from it?  Thanks for your help. 
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 1/30/2010 3:36 PM (GMT -7)   
Hi Nanners,

Barging in here, but I did a course of Xifaxin - 2 weeks if I remember rightly - had no side effects at all. (Which was great because Cipro makes me sick to my stomach).

Hopefully you'll have the same experience as me.
CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/31/2010 8:47 AM (GMT -7)   
Thanks j_web for the response. I started it lastnight and am hopeful it does the trick without making me so violently ill. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/31/2010 11:44 AM (GMT -7)   
I have had no side effects from it at all. For me it has been one of the miracle drugs that gave me back my life. I am on a regular dose of 400mg 3X day, for almost 3 years. I'm not really even sure how it works, but for me it does. Down from 20+ bathroom trips to 4 - 6 a day. That changed my life. Gave me time and energy back. It is really expensive and usually needs insurance authorization, depending on the dose, but I will fight tooth and nail for it.

I hope it works for you.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/1/2010 8:05 AM (GMT -7)   
Thanks guys. I started it yesterday and so far so good. Good lord that Cipro made me ill. If I didn't have horrible d, I was puking my guts up. Thanks again!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ibdoer
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 2/1/2010 9:13 AM (GMT -7)   
My doctor said Xifaxin should be 99% side effect free. He had prescribed it to me for a week after my first visit (he thought I had a bad infection, turned out to be Crohn's obviously).
He told me that Xifaxin has no side effects due to the fact that only the intestinal tract absorbs the medicine. It does not get into the bloodstream like Cipro and Flagyl.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/1/2010 10:07 AM (GMT -7)   
Cipro is nasty stuff. I wish Xifaxin was available in Canada.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 2/1/2010 10:33 AM (GMT -7)   
I was on Xifaxan for a few months and thought it was great - none of the awful antibiotic side effects. Good luck Nanners!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/1/2010 1:08 PM (GMT -7)   
Why isn't it available in Canada? Is it the insurance or the drug companies?
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/1/2010 3:43 PM (GMT -7)   
I'm not sure. I emailed the drug company - Salix - and they just said they have no plans to market the drug in Canada and sent me a file with all the different names it's marketed by in different countries. I guess they were hinting that I should just order it online from Russia or somewhere. No thanks.

If I bugged my GI for it I would probably be able to use a 'special access' program for it. Not sure if it would be covered though. How much is it?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/1/2010 4:25 PM (GMT -7)   
I just got my script for 180 pills (200 mg). That is what I take a month. 2 pills, 3 X day. Since I just changed insurance I had to pay out of pocket until I reach my deductible, so it was just over $900. My deductible for my family of 4 is $3000 for ALL medical expenses, including pharmacy. I am about half way there and it is Feb 1. After that my insurance will pay 100%. On my old insurance it was a tier 3 drug so my co-pay was $35 per month, but I had to have prior authorization because it is an off label use and over the dispensing limit. I'm not sure if you could get it from the manufacturer. Or what it would cost from one of the other sources you list. I just know that it has been a real life changer for me. I had asked about it for a year or so and finally got a one month trial approved, after that I was hooked. The change was dramatic. But it doesn't seem like many people here are on it long term. Just short courses instead of flagyl or cipro.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/1/2010 4:33 PM (GMT -7)   
Thanks for the info Zanne! Stay well.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/1/2010 6:42 PM (GMT -7)   
After reading about other's success with Xifaxan, my daughter's doctor agreed to try it and gave her samples for 10 days, 600 mg./day. I didn't realize that he thought that short length of time would have lasting results. The diarrhea stopped about 6 days into it but then came back a day or two after she ran out of medication. I told the doctor from what I had read it would take a higher dosage and a much longer time to get real benefits but we found out the drug company (Salix) is small and does not have financial assistance and the insurance says it's not approved for Crohn's so they won't cover it either. We were paying over $600/month for only 3 pills a day. We decided to switch to the anti-map antibiotics treatment which is cheaper for us.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/2/2010 7:43 AM (GMT -7)   
Well just wanted you to know Zanne, that I am having much better luck with it. Doesn't upset me at all. I did have one other question, do you have to worry about the yeast infection with this med or not? Thanks again!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

txmark
Regular Member


Date Joined Apr 2009
Total Posts : 33
   Posted 2/2/2010 7:55 AM (GMT -7)   
I'm taking it.....my GI gave me a 10 day course every month for the last 5 months. I feel like I notice the difference by day 3 each time but then the pain slowly returns after I finish it. It hasn't completely eliminated my pain but it helps for sure. I have an appointment next week and I plan to ask about taking it permanently.

By the way I haven’t noticed any side effects from Xifaxan and both Cipro and Flaygl made me very sick!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/2/2010 8:50 AM (GMT -7)   
I don't have any problems with yeast infection from it. I really don't have any problems with taking it all the time. I have trouble from an existing fistula, but its been an ongoing issue for about 7 years, not from the Xifaxan.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/2/2010 9:03 AM (GMT -7)   
Yessss!!! Thank you Zanne!!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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