Thank you for your replies
Ivy 6, yes we are in the UK but that is one thing they haven't done. Funnily enough it was something that crossed my mind and it is something that I would quite happily pay for privately(and have found an established company that provides this service) However at this moment in time my son would not give up the foods he likes (maybe when he is a bit older and wiser ) We may get a slight indication as the foods are being reintroduced in stages over 3 weeks (next stage is bread, pasta, biscuits etc and then the dairy group) He is such a fussy eater (doesn't really eat fruit/veg or dairy) and is quite delighted that he has been told to stay off of the veg for now!
In the UK we have the National Health Service, so paying for treatment isn't such a big deal although I think it is fair to say that sometimes in some areas it is extremely difficult to get the more expensive treatments. Son is still at school right now so all medicines are free, however once he finishes at school we/he will have to pay for prescriptions (medical note authorising medication). I will have to look up the information on these infusions (I am on a rapid learning curve here) I guess as well it would depend on individual symptoms-my son never had the diahorrea (infact quite the opposite) for him it was the pain that had him doubled over and the fact that he could only eat one or two mouthfuls of a meal. His consultant still seems amazed that he doesn't have any joint pains (yet !)I totally agree with you about food triggers- I guess at the moment because he has been off of proper food for sometime he isn't going to let anything stop him with this re-introduction process.
Still not sure about him going onto these immunosuppressants though (will have to interrogate the consultant some more) He does seem to be constantly thinking about my son's age though and consequences of medication/treatments. He took the colonscopy route because less risk than the barium x-ray, then had to do the x-ray because he could only get so far during the colonoscopy. Wanted to try the liquid food drinks instead of the steroids as children with 'right sided ' crohns have been shown to go into remission with this treatment etc etc and now to go onto the immunosuppressants as opposed to long term steroids.
February we have appointments with both consultant and dietician so watch this space !