Fentanyl + constipation Can't tell whats better.

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debilitated
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Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 4:55 PM (GMT -7)   
I get constipated like something horrible to where I get urgency and a lot of GAS but nothing comes out.
This starts to happen after a few days thought. I get a few good days of GOOD eating, Pain relief, and all around very happy..

Than when its time to go, I end up having an OVERLOAD of diarrhea that wont come out so im in pain anyway, gassy and i cant use the bathroom. Oral Narcotics just make me WAY to dehydrated.

So i get those few good days but than when i take the patch off for a day to get my bowels working again... Im in the bathroom EVERY hour using the toilet. Its horrible because my Rectum is on fire from all the wiping and now im uncomfortable with no pain management. I also LIKE how the fentanyl slows down my bowel movements. Its just sometimes it gets out of control.

So what should i do? Whats better?

a few days of good eating and relief? And one horrible day of being in the bathroom all day?

Or just being in moderate pain and still going to the bathroom just not as much,... But atleast it comes out of me.
Its like no matter what good... theres a negative to treating Crohn's.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 4:57 PM (GMT -7)   
Maybe eat a lot of fiber and drink a lot of water for the first few days after Im regular again? Take a day off after 72 hours... than apply the patch again?

Maybe this way I wont be SO constipated and the overload of diarrhea wont be SO much?

champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 2/1/2010 12:04 AM (GMT 0)   
I used to be on Fentanyl patches too ... 4 patches at 100mg each and I still had loose stools!!! Was on them for about 1 1/2 years and went off them as I was so allergic to the glue that bound them ... and b/c I slept all the time. I did get a lot of pain releif, however. It was a trade off. Going off the patches was hard, the dt's were terrible, but I was determined.

By the time I want off them, my nauseau was under control and I could tolerate oral pain meds. I take very little of them now. I've gotten LOTS of relief with low doses of anti-depressents such as amitriptyline ... they don't have as much as the constiapating affects and you are not always chasing the pain. You can always use other pain meds (vicodin, ultram, percocet, etc) for break through pain if needed.

But, yes, it is a balance and a trade off ...
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/31/2010 5:05 PM (GMT -7)   
FYI - you can't put patches off and on ... they are not meant to manage pain this way ...
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 1/31/2010 5:08 PM (GMT -7)   
debilitated said...
I get constipated like something horrible to where I get urgency and a lot of GAS but nothing comes out.
This starts to happen after a few days thought. I get a few good days of GOOD eating, Pain relief, and all around very happy..

Than when its time to go, I end up having an OVERLOAD of diarrhea that wont come out so im in pain anyway, gassy and i cant use the bathroom. Oral Narcotics just make me WAY to dehydrated.

So i get those few good days but than when i take the patch off for a day to get my bowels working again... Im in the bathroom EVERY hour using the toilet. Its horrible because my Rectum is on fire from all the wiping and now im uncomfortable with no pain management. I also LIKE how the fentanyl slows down my bowel movements. Its just sometimes it gets out of control.

So what should i do? Whats better?

a few days of good eating and relief? And one horrible day of being in the bathroom all day?

Or just being in moderate pain and still going to the bathroom just not as much,... But atleast it comes out of me.
Its like no matter what good... theres a negative to treating Crohn's.
I'm waiting 4 doctors approval on the fentanyl 4 pain the patch and the needles 4 break through I didn't do any research on it yet I guess I will now,,,But I'm obstructed a lot of I 2 would advice u 2 hydrated yourself more as much as u can handle I drink between 4 and 6 litres a day due 2 my Oxybutynin  my bladder problems causes dehydrate ration,,,Good luck 2 u @ least the pain is controlled but the other thing I guess your going 2 have 2 decide which is worse but its not nice being constipated I know that 2 did ya try taking stool softeners with the patch....

Post Edited By Moderator (Nanners) : 2/1/2010 7:49:36 AM (GMT-7)


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/31/2010 5:25 PM (GMT -7)   
However, I forgot to ask how many mg you are on ... as you can maybe play with the dosage (along with adding soluable fiber like powdered physllyum in some rice milk, etc and maybe stool softners) that is low enough to not constipate you and then high enough where you get some pain releif. When I was weaning off, I would actually fold one in a quarter, exposing only half or 50mg to my skin, thus only getting half the medication. I think you can also get some pain meds as suppositories, FYI. A pain specialist would know. Just some options you may want to talk to your doctor about.
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 5:25 PM (GMT -7)   
No, And I know How the patch works. I dont take it off and put it back on or go a day with it etc..

I have been on them for months on and off.
I have not tried laxatives while ON the patch. I always took them after it got bad and took the patch off.

Is their away to STAY Regular while on them? Because I have Diarrhea anyway, It is just an OVERFLOW because it moves real slow I guess.
Lomotil helps but it's not really helping like i thought it would. It kind of helps but just doesnt seem as slow as i want to be.

champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/31/2010 5:29 PM (GMT -7)   
The Fentyl patches put my D in control so didn't need any softners then ... do now as I'm on mega prednisone. Looks like you have larger hydration issues too ... I would think you need to get some fiber in your system to slow things down but there are lots of others much more qualified than I to speak to that. Have you tried a powdered fiber in a shake a few times a day? Starting in like 1/2 teasp amounts and easying up to 1Tablspoon 3 x a day kind of thing?
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 5:34 PM (GMT -7)   
I think i am going to Re start my patch and go through the day eating Oatmeal in the morning, A lot of water throughout the day. Ill have to find some other Fiber containing foods that I can enjoy while doing so.

champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/31/2010 5:37 PM (GMT -7)   
I highly recommend the powdered physllium ... it is cheap and widly availabe and won't cause the irritation that other fiber contatining foods would cause ... if you are in a flare. It has helped me a lot. By the way, I could take handfuls of lomitil and it never worked ... I'd have D 40 X a day! So I know what you are going through ... maybe the patch would be a good rest for you.

Are you getting the right electrolytes too? I highly recommend this little new invention of mine; part filtered water, party pedilalite and splash of juice of choice ...

Take care!!!
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 5:40 PM (GMT -7)   
Champagne, i hope you are not confused. Its the FENTANYL that makes me extremely constipated. I have this OVERFLOW of diarrhea because of all the build up From the Sluggish bowels due to the FENTANYL.

My goal is to try to STAY regular WHILE on fentanyl so I can be happy and less frequent trips to the bathroom overall.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 5:41 PM (GMT -7)   
My frequent trips happen because the overflow finally gets down to the colon and ready to come out... I want to stay on my fentanyl so i dont have to go A LOT, no pain and to be happy.

But i suffer later with constipation and overflow of diarrhea

champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 1/31/2010 5:45 PM (GMT -7)   
I understand but think the fiber would help with the constipation as well .... right? It works with D too ...
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 1/31/2010 5:48 PM (GMT -7)   
right, and than again if its NOT diarrhea, it will move faster, making it easier to flow

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/1/2010 7:52 AM (GMT -7)   
Have you tried taking stool softners? I use them nightly and if I didn't I would be in a world of hurt. Careful with the Fentanyl that stuff is H$LL trying to get off. I have told docs to never give it to me again, because it was so awful getting off the stuff. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 2/2/2010 8:48 AM (GMT -7)   
Nanners:
 
You called it ... I was taking 4 patches for a total of 400 mg and went off of all them, weaning myself slowly ... but did it with only breakthrough pain meds.  The pain doc offered me methadone which freaked me out as I know people use that as a crutch to keep using drugs so I said no.  I had withdrawls for days in my bed ... but I got through it and after a few weeks felt 'normal' again regained my life back.  As the patches decrease  your libido, make you sleepy, etc these are the downsides... but when you are in so much pain, throwing up and have no life anyway, they can offer a nice rest too.  As in life, it is a trade off and only the patient can make the choice.
 
As for stool softners, this forum suggesetd them to me with my C due to Prednisone and they have helped me so much, along with the powdered fiber I put in now two daily shakes.  Helping soooo much.  Thanks for your hard work on this forum!!!
 
 
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.
 
 
 

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