Crohn's Disease Initiative - Chiodini is back to tackle MAP

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chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 2/1/2010 9:27 AM (GMT -7)   
Dr. Chiodini, for those who have followed the MAP debate, is well-known. He has been retired from research for a number of years, but he is coming back for another shot at finishing what he and a few others started back in the 80's.

The goal appears to prove or disprove causality within approximately five years.

Rule # 4.  "Posts and links about fundraising (including nonprofit fundraisers) are NOT permitted." 

Post Edited By Moderator (Nanners) : 2/1/2010 11:44:35 AM (GMT-7)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/1/2010 10:06 AM (GMT -7)   
Sounds great to me. I'd like this settled once and for all - as frankly I'm tired of hearing about it! If it turns out to be the cause that would be great IMO.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/1/2010 11:05 AM (GMT -7)   
Thanks for posting that, chocolate_stains! I, too, hope it will be settled!!!

mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/1/2010 4:42 PM (GMT -7)   
Is he in El Paso working with Dr. Chamberlin? I believe that is who my daughter met when she was there in December.

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 2/1/2010 5:03 PM (GMT -7)   
I hope he makes progress. I am one of the crohn's patients whose doctor found MAP in breast milk. I suspect that the answer will be found soon, one way or another. There has to be a reason why it has exploded since WWII.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


ryan_jordan
Regular Member


Date Joined Jan 2009
Total Posts : 45
   Posted 2/1/2010 5:07 PM (GMT -7)   
I'd like to see the link for this research...

chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 2/1/2010 6:47 PM (GMT -7)   
Yes, it appears that he will be working with Chamberlin in Texas

mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/1/2010 6:53 PM (GMT -7)   
Well, I know that Dr. Chamberlin was VERY excited. It's just that I was focusing more on my daughter and her colonoscopy results but I thought that was who he was talking about. I am hoping my daughter can be one of their success stories.

chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 2/1/2010 7:06 PM (GMT -7)   
Your daughter had a good colonoscopy result after taking AMAT?

mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/1/2010 9:20 PM (GMT -7)   
For the research, Dr. Chamberlin wants a scope before starting the treatment--then another in a year. We have talked to other patients, though, who have had wonderful results. My daughter just started Dec. 19th but her WBC decreased to the point that she had to stop for a week and then take lower doses of two the three antibiotics. It hasn't been fun--she has been quite sick but it's what was promised for 8 weeks or more.

chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 2/2/2010 7:34 AM (GMT -7)   
Okay. Best of luck.

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 2/3/2010 1:31 PM (GMT -7)   
I agree with the previous post.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


willj
New Member


Date Joined Dec 2009
Total Posts : 19
   Posted 2/3/2010 2:29 PM (GMT -7)   
I agree aswell, so many Crohn's patients have had their lives turned around for the better with anti MAP treatment.  The papers are out there, we just need to make our doctors read them !

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/3/2010 2:53 PM (GMT -7)   
Hello everyone, hope you are all as healthy as possible. I am glad to hear that Chiodini is back to work on the MAP debate with Dr Chamberlin and others. Seems like we could get some definitive answers shortly.

I was just wondering if anyone has heard of or donated to Prof Hermon-Taylor's vaccine research? From people I have spoken to and papers I have read, it seems he is by far the expert in the world on MAP, its detection and treatment. There is already a huge campaign in England to push this vaccine to clinical trials. Check it out and see what you think!


POST FORWARDED FROM WILLJ
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 2/3/2010 8:12 PM (GMT -7)   
yo chocolate stains, btw your username is awesome
how do you know this guy is going to start researching again?
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade since 6/09
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil
Remission


chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 2/3/2010 9:53 PM (GMT -7)   
exactly smallrobeson, and check out pubmed.gov too. happy to hear you are doing well!
he has a website saying so
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