getting off TPN

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 2/2/2010 11:34 AM (GMT -7)   
I've been on TPN for a month--3 days lipids, 4 days electrolytes. 12 hour infusions done overnight at home. It basically saved my life! Was in tough shape. GI says it's time to stop the TPN which is great news. However, he said there really isn't a need to wean, that I can just get the picc line removed and stop the infusions. My infusion nurse said it's supposed to be some sort of weaning that takes a while. Ideas? experiences?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; TPN, propranolol and xanax; anemia of chronic disease


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 2/2/2010 12:39 PM (GMT -7)   
No, I was on TPN for nearly 3 months. My liver enzymes got toooo high so they took the line out. 43cm!
I didnt wean at all. It was fine.

you have to Wean GOING ON, because of Sugar spikes etc..

But if you are able to eat right after tpn, your body will adjust just fine.
From my experience.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/2/2010 1:03 PM (GMT -7)   
I was on TPN in the hospital for a few weeks, nothing like you. But they just pulled the line and stopped it cold turkey.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/2/2010 1:07 PM (GMT -7)   
I reintroduced food very, very slowly: ice chips and barley sugar first, then clear liquids, then low res, and built up from there. It took a while, if I remember rightly, and I think I started on the barley sugar etc while I was still hooked to TPN.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/2/2010 1:49 PM (GMT -7)   
My daughter was on TPN at the hospital for a month. They stopped it cold turkey and the first thing they brought her to eat was a hospital hamburger on a bun. I thought that was a little strange but she kept it down and never had a problem.

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 2/2/2010 6:49 PM (GMT -7)   
this is helpful--thank you! I've been increasing my food intake daily (lots of small snacks) and am anxious to see if I can maintain the nutrition and weight without the TPN. Not sure if I've been on a "big dose" of the "stuff" or not. Hope I can survive without it--but I'd do it again in an instant. Again, I think it saved my life.

Will let you all know what the pharmacist says and how it goes. Thank you.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; TPN, propranolol and xanax; anemia of chronic disease

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