Just started Humira- need some support

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imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 2/2/2010 5:16 PM (GMT -7)   
I went and got my first 4 shots of humira today...and now I feel horrible. I'm very sensitive to medications, and this one is no exception. I went to the ER about 2 hours after getting the shot because my entire body was burning, I couldn't stop shaking, and kept dry heaving. No allergic reaction, just felt overall horrible. I feel much better now, but I'm definitely not 100%...maybe 65%.
Will I react like this every time to the humira? Because now I'm terrified to take it. I feel so afraid and vulnerable...
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Pentasa 1 gm/4x daily; Humira injections; Entocort 9mg


Sarah_B
Regular Member


Date Joined Feb 2009
Total Posts : 82
   Posted 2/2/2010 5:30 PM (GMT -7)   
I didn't have that strong a reaction on my first injection, but my rosacea flared up pretty bad. And that was pretty much the only time that happened for me (I think it happened once or twice more while I was on Humira over the course of six or seven months). The only other reaction I ever had was a headache (sometimes migraine), but more often than not I wasn't hydrated enough.
22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking 6MP, 7.5 mg prednisone.
Hoping to start Remicade soon.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/2/2010 5:48 PM (GMT -7)   
What, if any medications, did they give you at the Emergency Room? Did they determine that you had an injection reaction?

The reason I ask is that if you had a medication reaction, then yes, you might have difficulty with any subsequent injections. You might need pre medications before another Humira injection. It is imperative that you talk to your GI about what happened so he can determine the proper course of action.

Also, could your anticipation of getting the injections caused an anxiety type reaction? Some people just cannot handle injections and get physically ill at the thought of one. My daughter is like that.

Lastly, how long did they have you wait after you got the injections? It is recommended that the patient wait at least 30 minutes following the initial humira injections. It would have been helpful for your doctor to have his staff person see the reaction so that they could report it if necessary.
Hopefully, you will feel better soon. Let us know what your GI says about continuing with the Humira.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 2/4/2010 11:22 PM (GMT -7)   
i had a bad reaction when I took my 1st 4 humira shots (i got a really bad headache the day after) but he wanted me to try it a couple of more times before he took me off. Well, the 2nd time I took it, the reactions got worse and the 3rd time i took it i wound up with a headache/migraine that lasted 74 days.

I don't know what to tell you. It's a hard call. You could try it one more time but i wouldn't go past that if you had a bad reaction cause at least in my case, the adverse symptoms kept getting stronger with each dose.

Good luck to you.
Diagnosed: 08/03/07
Meds:
lamictal 200 mg/asacol 2 pills 3x day/imuran 100mg day
Started humira 3/14/09.... pulled off due to migraine side effect. Dealt with migraine for 74 days and then it finally went away.

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