Hello from a newbie :)

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smary
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/2/2010 8:06 PM (GMT -7)   
Hello everyone!  Just thought I would introduce myself.  After many months of reading this forum, which has been so wonderfully fantastic for someone just diagnosed with Crohn's, I thought I would join up and contribute something myself cool
 
Im an aussie girl who has been diagnosed with crohn's for nearly 5 months now, but it took almost a year of tests, tears and pain to finally get the diagnosis!  As many of you have probably found, it was more of a relief than anything when I finally got the confirmation. 
 
I have always been prone to D and C, but began feeling very sick in sept08 with irregular BM, D, unbearable stomach cramps and severe weight loss.  They first thought that maybe the main issue was fructose malabsorption in the first couple of months, but even with a restricted diet, the symptoms continued, even if slightly SLIGHTLY improved.  Colonoscopy and blood tests confirmed extensive inflammation, but biopsies were indeterminate.  Cue a CT scan and WBC scan a couple of months later - I almost cried when the CT scan came back normal (actually, i think i did cry tongue ) but finally I was diagnosed after the WBC scan indicated extensive active IBD.  It was just so fantastic to finally have something which explained how terrible I had been feeling for over 12 months!
 
I am now on imuran 75mg - was supposed to be finishing up my taper of pred tomorrow, but have been feeling yucky again the last 3-4 weeks and blood tests yesterday showed an increase in my inflammation markers once more.  So up I go again (yesterday was all in all a horrible day - when parking my car on the way to the doc's scratched mine and anothers car; then went to the doctor where I found out I had to increase my pred; and when i got back to the car, i had a parking fine!!!!cry smhair  - things come in threes dont they tongue).
 
So i just wanted to thank everyone on here - over the last 12 months through the investigations this forum was a wealth of knowledge.  I hope I can also be a help to people even though im a bit of a novice compared to some blush

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 2/2/2010 8:30 PM (GMT -7)   
Well Hello There...Glad you finally signed on...sorry you have to be here though!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones, Carpel Tunnel & POST-menopausal (Hurray)


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 2/2/2010 8:33 PM (GMT -7)   
Welcome Smary...hopefully today is better than yesterday :) Ticket or prednisone...which bites more...hmmmmmm...PREDNISONE :) Gotta love that moonface
"The earth laughs in flowers"


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/3/2010 5:16 AM (GMT -7)   
Welcome! Sorry you had a rough day, maybe tommorrow will be better.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/3/2010 6:53 AM (GMT -7)   
Hey Smary and welcome to the best Crohns forum out there. We are glad you joined and look forward to hearing more from you. Hugs~
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 2/3/2010 1:26 PM (GMT -7)   
Welcome, smary! You found the best site for support and info.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 2/3/2010 2:03 PM (GMT -7)   
Warm welcome to you yes stay with us and it def is the best forum going the ppl are great here...lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


smary
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/3/2010 4:31 PM (GMT -7)   
Thanks guys for all your lovely well wishes! My next couple of days HAVE been better (thank goodness :)) Being 25, most people around me are fighting fit and no matter how much empathy they have, they don't really know what i'm going through. So its great to have people who are going through it too :)

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 2/3/2010 8:59 PM (GMT -7)   
Welcome to Healingwell! Glad to see you as a member, look forward to enjoying your posts. Rob
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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