Hello, I'm not surprised that you are confused
I guess what I have learnt that it can affect people in a variety of ways (albeit with a common link) All I can tell you is based on my son's experiences. He attends school regularly, that is not to say that he never stays at home. From what I understand, mornings can be the time when symptoms increase so it may be that your grandson does feel at his worst at this time of day, however as it appears that after a while he does feel better then perhaps it could be arranged with the school to start a bit later then everyone else. If he is someone that doesn't like/enjoy school then he may very well be taking a bit of an advantage although I would be very careful how you bring that one into conversation (I was told by my mum that my son was putting it on to get out of eating food that he didn't like-despite the fact that he couldn't eat the food he did like either ) If he is in constant pain all day, everyday then obviously medication/treatment needs to be revised. His schooling is important and it will give him something to focus on-if he really is unable to attend school then it may be worth contacting the school and finding out what provision they have for special needs schooling-may provide a home tutor for a few hours a day. Another reason that he may not want to go to school (and be with friends) is because he is embarrassed about his condition, or because he is 'different' or because he is worried about his friend's perception of him.
I do believe that diet does play an important part in the management of Crohn's-there are so many testimonials to the SCD method(basis terms no carbs, sugars (that is extremely basic terms )) However I do not believe that it is that easy to get a teenager to follow that sort of diet (I am hoping that maybe a few years down the line my son will do it for himself) and the other worry is that usually a child with Crohn's is underweight (because of the body's inability to absorb nutrients) prior to my son's diagnosis (trying to be a reasonably healthy family) we would have whole grain rice, pasta, low fat spread etc, nowI have to give him white pasta, rice, bread, minimal fruit and veg and high fat foods to try and boost his weight. What I am also doing is no longer buying pre made foods (spag bol sauces, pizza etc) but making it from scratch so I know exactly what is going into it(def less sugars and additives)
It may be worth you looking up National Association for Crohns and Colitis, I found it most helpful immediately after initial diagnosis and gives a good insight into how it may affect children, info for schools etc. I for one did not appreciate how much it could impact on the body.
I hope you get some answers soon (just tread carefully with his parents-we can be a touchy lot where our children are concerned )
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
Don't be too angry with her. For those of us that are not directly affected by Crohns, we can initially find it hard to understand the full extent/implications of the disease (my son diagnosed few months ago). She will of had your best interests at heart.
My son's gran made me angry suggesting that he wasn't eating because he was trying to get out of eating food that he didn't like-not the case at all and my temper reached boiling point
Good on you for having a positive attitude
Post Edited By Moderator (MMMNAVY) : 2/8/2010 8:48:43 AM (GMT-7)