Caring grandma confussed about grandson with crohns:

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lovebuggy
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Date Joined Feb 2010
Total Posts : 1
   Posted 2/3/2010 11:29 PM (GMT -7)   
I am a retired schoolteacher with a grandson who has crohns.  He hasn't been in school since November, 2009.  I watch how he jumps over my coffee table after his two little brothers, wrestles on the floor with them, shoots basketballs, and never goes to school because he wakes up every morning with a tummy ache.
 
I am totally confused about this disease and wondering if he simply is taking advantage of the situation to stay home.  He seems to have identified himself with the fact that he's "sick" and can just stay home everyday from school.  His bookbag isn't with him while he frequents his grandmas' houses, but that is okay with everyone, except me.
 
I watch him drink soda, eat sugary foods, consume chopotle on sandwiches and eat other hot, spicy foods, without any restrictions on his diet.  Sometimes I think the problem is all in his mind, or that he might be fabricating the situation to 'control' people around him.  Being 13 years old doesn't help now that he's also going through puberty.  What about diet?  Shouldn't diet play an important part in the process of recovery and healing?
 
Another thing I'm concerned about is his mental, emotional, and social health.  He seems to be 'out of the loop' at school.  Instead of running around on weekends with his friends, he's at my house or his other grandma's house.  In fact, he rarely is home anymore.  He stays for days at the other grandma's 'without' his bookbag and school work.
 
Is this the way crohns works?  If you have a tummy ache, can't you have it in school as well as on a sofa at home?  What accountability is there for him?  Is he just using   crohns as an excuse?  I would appreciate some feedback so that I can better understand him. 

chocholic
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Date Joined Apr 2006
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   Posted 2/4/2010 1:59 AM (GMT -7)   
i think alot depends on the tummy ache. Mornings are really bad for me, but if he really is running sround as you describe he probably could go into school late, ie miss school till he is feeling better later in the day. I do that frequently in Uni. I start lectures at 8.30 sometimes and its so difficult to get in for that time. Diet is really individual, ie i cant eat onions, spicy foods and orange juice. i eat fruits/veggies when i feel good but even then i only eat 1/2 portions a day. Other people are totally fine with the above foods.
Maybe you can sit down with his parents and ask if you could attend his next G.I appt. Then write a list of questions to ask. While sitting with his parents, gently raise the issue of his schooling. Only you know how they will react if you ask about him going back to school.
This is all just my opinion, i'm not a parent and i dont know how i would react in this situation. Now i'm as tough as old boots, i have zero sympathy even for my housemates when they have a cold. I just tell them to get on with life. God only knows what i will be like if i have kids!
This is a tricky situation, and i really feel for you.
Dx - 2006
currently - infliximab 6 weekly, iron tablets, B12 3 monthly,

Tried - aza, pentasa, questran

No crohns' surgeries to date


vixen
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Date Joined Jan 2010
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   Posted 2/4/2010 2:15 AM (GMT -7)   

 

Hello, I'm not surprised that you are confusedsmile

I guess what I have learnt  that it can affect people in a variety of ways (albeit with a common link) All I can tell you is based on my son's experiences. He attends school regularly, that is not to say that he never stays at home. From what I understand, mornings can be the time when symptoms increase so it may be that your grandson does feel at his worst at this time of day, however as it appears that after a while he does feel better then perhaps it could  be arranged with the school to start a bit later then everyone else. If he is someone that doesn't like/enjoy school then he may very well be taking a bit of an advantage although I would be very careful how you bring that one into conversation (I was told by my mum that my son was putting it on to get out of eating food that he didn't like-despite the fact that he couldn't eat the food he did like eitherconfused ) If he is in constant pain all day, everyday then obviously medication/treatment needs to be revised. His schooling is important and it will give him something to focus on-if he really is unable to attend school then it may be worth contacting the school and finding out what provision they have for special needs schooling-may provide a home tutor for a few hours a day. Another reason that he may not want to go to school (and be with friends) is because he is embarrassed about his condition, or because he is 'different' or because he is worried about his friend's perception of him.

 

I do believe that diet does play an important part in the management of Crohn's-there are so many testimonials to the SCD method(basis terms no carbs, sugars (that is extremely basic terms smilewinkgrin )) However I do not believe that it is that easy to get a teenager to follow that sort of diet (I am hoping that maybe a few years down the line my son will do it for himself) and the other worry is that usually a child with Crohn's is underweight (because of the body's inability to absorb nutrients) prior to my son's diagnosis (trying to be a reasonably healthy family) we would have whole grain rice, pasta, low fat spread etc, nowI have to give him white pasta, rice, bread, minimal fruit and veg and high fat foods to try and boost his weight. What I am also doing is no longer buying pre made foods (spag bol sauces, pizza etc) but making it from scratch so I know exactly what is going into it(def less sugars and additives)

It may be worth you looking up National Association for Crohns and Colitis, I found it most helpful immediately after initial diagnosis and gives a good insight into  how it may affect children, info for schools etc.  I for one did not appreciate how much it could impact on the body.

I hope you get some answers soon (just tread carefully with his parents-we can be a touchy lot where our children are concernedsmilewinkgrin  )


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 2/4/2010 7:36 AM (GMT -7)   
Yes mornings are typically bad for most Crohnies, but what you are describing he is doing sounds a little questionable to me. First off, yes diet is important and what he is eating would definetly give me a stomachache. I live on a low residue diet all the time and that works well for me. Or as mentioned above the SCD diet works well for others. But if you google these diets you will see that the things he is eating are more than likely not on these diets or are modified so that we can eat them. Too much sugar, fried foods, and raw veggies are not good for us.

I think he is more than likely working the system so to speak. If you can I would sit down with his parents (treading lightly as warned) and mention what he is like at your house. He should at least be in homeschool. His education in my opinion is just as important as his health. So one way or the other who should still be working on his education. JMHO

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 2/4/2010 8:30 AM (GMT -7)   
I vary on the issue of diet (they really have not worked for me), so I eat what is comfortable to me (very little spicy or fried food, lots of creamy peanut butter and frankly get incredibly pissed off when people tell me what I "should" be eatting, so at 13 I highly doubt that you will be successful in altering his diet too much, all though some claim success <I am an academic so I have pretty strict criteria on what I consider success>). 
 
Plus sometimes you just want to be normal, and that might be why he is wrestling with his brothers (generally I do not see the results of my over doing it until I go to the bathroom and see all the blood loss).      
 
He absolutely should have a home tutor if nothing else.  That way he can possibly stay with his class.  Or have they given up keeping him with his class and just decided to let him take off the rest of the year.  Did he have a poopie accident at school and so he does not want to go there again?  Especially at 13 that has got to be embarrassing. 
It could be that he could not just operate on the same level as his peers, or he might over do nit trying to be normal when he is in a group of his peers.
 
Is he experiencing some cognitive decline because of malnutrition?  There is some research that just being ill in general will cause cognitive decline.
I am a big believer in a mutliprong approach that means physical (doctors, physical therapy/activity, nutritionists, etc.), mental (edu, stimulation, counseling <dealing with pain, cognitive issues, plus isolation of illness), but I think you really might consider that you might not be seeing his whole experience of illness. (and it might forever damage your relationship with your grandson if you do not "believe" he is sick)
Do you believe that your grandchild has adequate parenting?  Do you believe that education is a proirity for them?
I just want to warn you that you if you choose to address this issue, that you will need to do it in the most delicate of manner.       
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 2/4/2010 8:30 AM (GMT -7)   
I have a daughter who is 9 yrs. old.  She has good days and bad days with her Crohns.  The bad days are pretty bad sometimes, but on the good days, she's just a typical happy kid and that is what she wants for herself.  You can bet that on those good days, she is in school.  She has missed more school than I would like, but sometimes the tummy pain is so bad that she is home with a heating pad, lying around, sitting in a warm tub...sometimes crying in pain and unable to eat much.  Now... if I found her chasing around her brother and leaping over coffee tables, you can bet you'd be seeing me packing up her backpack and hauling her off to school as fast as I could. And yes, I have taken her in late when she has a bad morning. Sometimes that pain or discomfort passes in an hour. Better late than never!


  • gypsyfp
    Regular Member


    Date Joined Jan 2010
    Total Posts : 336
       Posted 2/4/2010 9:08 AM (GMT -7)   
    When I was sick as a kid, I didn't want to get up and go to school either.
    I would often pretend to forget my lunch so that I wouldn't be tempted to eat it.
    I felt fine in the mornings, but after eating lunch, things started to get aggravated. Sometimes I would call my mom and she would pick me up, but usually an embarassing run to the toilet and some residual pains for the remainder of the day were enough for me to handle.
    Diet is crucial. He has to learn an association between food and pain. Based on the behavior you described, I don't think he knows what is making him sick and why leaving school is a bad thing in the long run. I suggest that he talk with a social worker because he seems to be the one most out of the loop.
    Diagnosed with typical Crohn's at 16.
    Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
    Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
    My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


    Kittikatt
    Regular Member


    Date Joined Jul 2004
    Total Posts : 422
       Posted 2/4/2010 10:40 AM (GMT -7)   
    I'd be interested in knowing what your grandson's definition of a "tummy ache" is.  I often tell people, "Well, my stomach hurts today" just to AVOID telling them the REAL issue at hand.  Sometimes that sort of stuff is just WAY TOO MUCH INFO to give and it's easier to say "tummy ache".
     
    I can't imagine having had this disease start in on me when I was a teenager.  What a nightmare.  When I get really sick, I always think of those younger than me who've had to deal with this AND try and get an education at the same time.  I can't even wrap my brain around it - trying to understand what's happening at THAT early of an age?  I don't know how I would have made it myself.
     
    I think it'd be hard to know for sure if your grandson is "playing the system" or not.  On the one hand, he's a 13-year old boy!  Need I say more?tongue  On the other hand, this disease is SO unpredictable.  I know for me, I can be feeling like a million bucks one minute and the next minute be doubled over in pain driving myself home so I can poop and vomit at the same time in the privacy of my own bathroom.cry  There are times I haven't been able to make it to the bathroom fast enough. Usually after a spell like that I'm physically drained, feel like crap and am useless the rest of the day.  However OTHER TIMES, I can go through one of those "spells" and 10 minutes later, feel as fine as I did just 10 minute before. 
     
    U-N-P-R-E-D-I-C-T-A-B-L-E!
     
    And that's just during a SPELL.  A spell to me is just a bad moment during a time of remission.  But during a FLARE...GOOD LORD.  Flares are awful.  24 hours a day, 7 days a week.  My last flare lasted for TWO YEARS.  Medications helped some which is about all the doctors can give to help you through a flare.  But they can't stop the flare. The body has to do that on it's own. There is no CURE for this disease.
     
    If your grandson has the typical Crohn's Disease symptoms of gas, diarrhea, bloating, nausea, etc. I would think emotionally it would be extremely hard for him to go to school and hang out with friends outside of school.  Even as an adult, that's a hard thing to deal with at work and in social arenas.  I lost my entire circle of friends years ago when I had to stop going out with them on a regular basis because of my symptoms.  They just gave up on me because they didn't understand what I was gonig through.  One of them actually said, "I don't see what the big deal is - if you gotta go to the bathroom, just get up and go!"  They couldn't comprehend the multitude of symptoms that go along with something as simple as LOW IRON caused by blood loss through this disease...add arthritis pain, mouth sores, massive fatigue and cramping ON TOP OF the embarrassing gas and diarrhea...UGH!  It's MORE than just a bowel movement to us.  This disease affects EVERYTHING on and within our bodies.
     
    When I was 13 and in the 7th grade, my stomach used to hurt every morning by 2nd period.  I didn't learn a lot in Biology that year.  I was given Librax back then because the doctor thought I was anxious about being at school.  Now, 25 years later, I'm taking the same drug to relax my colon (and they are getting ready to take this drug off the market!)shocked  So I wonder now if I was having extremely LIGHT symptoms of Crohn's Disease back then in the 7th grade and it just didn't start to really affect me until my 30's.
     
    As for diet, I'm a firm believer in healthy foods...organic, all-natural...staying away from sugary, processed foods is best for everyone, with or without Crohn's Disease.  My GI will say food has absolutely nothing to do with the CAUSE of Crohn's and that you should just simply stay away from foods that bother you (which again, goes for everyone).
     
    When I'm in a FLARE, I stick to a low-residue diet: plain pasta, white bread, plain yogurt, Ensure, etc.  BUT when I'm NOT in a flare, I can eat absolutely ANYTHING and it will not bother my Crohn's Disease at all.  Bring on the Mexican and veggie pizzas!  I still stay away from soft drinks & sweets when I'm at home, but if I'm out and about I'll eat those things, assuming I'm not already flaring, and they will NOT cause me to be sick.  The only time that kind of food causes me to get sick is when I try eating it when I'm ALREADY in a flare. 
     
    My first inclination is to tell you to give your grandson a break.  If he's having even mild symptoms of this disease, that's enough to make anyone shy away from social situations!  If you know he's having diarrhea all the time, surely you can understand why he'd be reluctant to go to school, of all places! (UGH...I can't imagine getting sick in a school bathroom). BUT, having said that, I also understand your obvious concern that he's not getting his education.  It's a very fine line for sure for you to be walking. 
     
    Just don't under-estimate what this disease can do.  Every day, I make sure I wear something with pockets so I can put a plastic bag in it.  I never know when a sick bowel movement is going to come over me.  When the sick ones come, so does the vomit - at the same time.  So if I end up in a bathroom without a trash can, I need the plastic bag.  Gross, right?  But it's just an example of something simple that I mentally deal with every single day. 
     
    Your grandson might be dealing with that sort of thing, too...and I imagine a 13-year old boy would be embarrassed to talk about ANY of the symptoms that go along with Crohn's Disease to anyone - particularly his grandmother!wink  My point being that although you might see him jumping around and playing, there may be many times he's in pain and just not saying anything about it.  Gosh, I do that all the time myself (just this morning, in fact, I pretended that I wasn't having awful intestinal cramping while I was talking with my boss in his office).
    Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
    37/F/SC
    Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills
    Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
    Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
    4/7/09: Gall bladder removal laproscopic surgery (gall stones)


    FunGuy
    Veteran Member


    Date Joined Oct 2009
    Total Posts : 1070
       Posted 2/4/2010 10:54 AM (GMT -7)   
    mornings tend to be the worse for most of us. That said I don't think that the diet you describe is a good choice for the boy. If he could be compelled to eat more healthfully then he might miss less school. Without wanting to undermine the condition or how sick he may feel let me remind you that he is a kid and HE WILL take advantange of his sickness to stay out of school. I recall that on occassion I would run all the way home for lunch to set off my asthma when I didn't want to go to school at times. I was not happy at school though. Is your grandson?
    I just read "Straight From the Gut" 2003.    Excellent book if you want to learn more about the disease.


    dunny2
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    Date Joined Jan 2007
    Total Posts : 3200
       Posted 2/4/2010 8:08 PM (GMT -7)   
    I think out of all the advice that's been given I would agree both with Navy & KittKatt. This disease is so unpredictable, and
    it needs to be understood more clearly by those that are looking on. please never believe for one minute "it is all in his mind".
    Those words are the words that most have heard & and had to struggle with at some point of our illnesses.

    It's also possible that his weekends are spent at Grandma's house, instead of playing like any other 13 year old, because he
    doesn't feel so good on those days either.
    Vicky

    Too many years with CD
    Two bowel resections, several obstructions.
    Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
    B12 Shots bi-weekly

    Laughter is the brush that sweeps the cobwebs from our hearts...


    ImNOTfakingit
    New Member


    Date Joined Feb 2010
    Total Posts : 2
       Posted 2/5/2010 12:14 PM (GMT -7)   
    Hello, I seem to be this miserable person that is the center of your conversation. My grandma failed to mention a few major details that I am unhappy about. Lets first begin by saying that I DO receive a tutor at my house and keep up with my school work as best as possible, my sickness allowing. I average A's and B's and am still actively involved with sports and seeing my friends when I can find time. Also, I would love to point out that "my tummy ache" is a serious ache a lot of the time. And yes I do frequently visit my grandmothers house because its a way for me to relax and I love both of them, but obviously this seems to be an issue. BUT this short snip of how I really feel will hopefully allow bloggers to understand the situation from MY point of view. Lets not get confused and think I use my sickness to miss school because this isnt that case at all. I have a lot to deal with and am doing the best I can with only being 13. I plan on getting back to school and tackling this disease the best way I know how. Thank you.

    Noah C.

    MMMNAVY
    Veteran Member


    Date Joined Jul 2006
    Total Posts : 6927
       Posted 2/5/2010 12:27 PM (GMT -7)   
    Hey Noah,
    How ya doing? Don't adults just piss ya off sometimes? I have to admit I am suprised at 13 you actually like to hang out at grandma's. I am glad to hear you do have a tutor and doing good in school. This forum is actually for you and not as much for your grandma. Please feel free to stay and talk with us if you want.
    Take Care,
    Navy
    Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

    I will find a way or make one. –Phillip Sidney 1554-1586

    All that I am and all that I shall ever be, I owe to my Angel Mother.

    The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

    Make sure your suffering has meaning…


    ImNOTfakingit
    New Member


    Date Joined Feb 2010
    Total Posts : 2
       Posted 2/5/2010 12:41 PM (GMT -7)   
    Thank you for understanding. I'm not mad at the blogs, I just wanted to verify some details that had been left out. Once again, thank you.
     
    Noah C.

    vixen
    Veteran Member


    Date Joined Jan 2010
    Total Posts : 794
       Posted 2/5/2010 12:48 PM (GMT -7)   

    Hello Noah,

    Don't be too angry with her. For those of us that are not directly affected by Crohns, we can initially find it hard to understand the full extent/implications of the disease (my son diagnosed few months ago). She will of had  your best interests at heart.

    My son's gran made me angry suggesting that he wasn't eating because he was trying to get out of eating food that he didn't like-not the case at all and my temper reached boiling pointmad

     Good on you for having a positive attitudesmile


    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14995
       Posted 2/5/2010 12:51 PM (GMT -7)   
    Noah, glad that you posted and clarified. Its better for you to post and let us know whats REALLY going on:) Alot of folks don't always understand how we are feeling. Let them feel like they have the stomach flu 24 hours a day and see if they think its just a little tummy ache for them. So glad you posted. We look forward to hearing more from you. Big Hugs!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14995
       Posted 2/5/2010 12:52 PM (GMT -7)   
    P.S. Sorry about our misunderstanding.
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    dunny2
    Veteran Member


    Date Joined Jan 2007
    Total Posts : 3200
       Posted 2/5/2010 8:27 PM (GMT -7)   
    Well hello Noah. I have to say for one who isn't going to school much ( according to Grandma), I have to say you write
    in a very adult manner. I'm impressed!!

    I'm so sorry that you have to deal with this disease at a very young age, I know it can't be easy, and for that reason
    maybe you could visit more often on here, we are all very willing to listen.

    Please know that you certainly are not a" miserable person" as you wrote on your first post, but a seemingly well adjusted
    caring boy... one I wish much luck to. Take care Noah.
    Vicky

    Too many years with CD
    Two bowel resections, several obstructions.
    Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
    B12 Shots bi-weekly

    Laughter is the brush that sweeps the cobwebs from our hearts...


    cdmom
    Regular Member


    Date Joined Dec 2006
    Total Posts : 25
       Posted 2/7/2010 11:12 AM (GMT -7)   
    Noah, as the mom of a 13 year old boy with Crohn's, I wanted to say I understand what you are going through.  I hope you have some people around you who understand.  Unfortunately there will be a lot of people in your lifetime who don't understand, which doesn't help the situation.  But mostly I hope you are getting some treatment that will lead to a remission so you can get back to being your normal self soon.  Sometimes it takes time and you might have to try different medications to get well. 
     
    Grandma, my son has had Crohn's for 7 years, and yes this is a totally typical pattern.  Some moments  he will seem to not be in pain.  Other times throughout the day he will be in a lot of pain.  Until he gets into a remission, this is to be expected.  I think you will find once he gets in remission that he will go back to school and seeing his friends, and then you will realize that he really didn't feel good.  about the worst thing you can do right now is second guess his pain level, second guess what he's eating, and so on. 
     
    And as for what he eats, the ped GIs will tell you just to get them to eat.  The only advice my son gets on eating is to make sure he's getting plenty of protein and don't eat low quality foods if he wants to grow.  There is no known diet for Crohn's.  Certain foods will bother him more, and he'll have to figure that that out on his own.  But when the disease is flaring, it seems pretty much everything hurts to eat.  I personally don't think  anyone should drink soda, but remember that adults don't have success at resisting bad foods either, as witnessed by our huge obesity problem.  

    Becoming undone
    Veteran Member


    Date Joined Jul 2007
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       Posted 2/7/2010 5:26 PM (GMT -7)   
    Noah, wow! so impressed by your writing style...if only 1/2 of my students could write so well...
    I did have some students who were diagnosed with CD, some with other diseases...yet too many of their teachers also felt like they were "faking it", making life difficult for them, then you add in the usually horrid (you wouldn't believe what is used for "writings" on the wall) and shared/public conditions of a school bathroom...I am pleased to hear that you keep up with school and tutors...I know it can be super hard...even I haven't been able to work for awhile...

    I am so sorry this was brought on to one so young...take care...
    "The earth laughs in flowers"


    isergodur
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    Date Joined Jan 2009
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       Posted 2/7/2010 5:42 PM (GMT -7)   
    Mornings are the worst.

    That is why I have decided to sleep through the mornings and just wake up at noon.
    But still I cant eat anything or go out of the house.

    It is a very embarrassing disease and I would die if I had this while I was so young.
    When I was in school I did not do nr 2 in the public toilet I always had to go home to use the toilet there.
    So if I had to go 10 times during school well then I would just stay at home as your grandson does.
    25 year old female
    Diagnosed with :
    Endometriosis march 2007
    Anxiety disorder august 2007
    CD/UC they dont know witch October 2008
    Autoimmune Hepatitis in July 2009

    Medication - Humira, Asacol, Cipralex and Cerazette.
    Past medication Remicade, Imuran
    My wonderful dogs :) ~ www.poodle.is ~


    dunny2
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    Date Joined Jan 2007
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       Posted 2/7/2010 8:59 PM (GMT -7)   
    would be welcome to talk to us....

    Post Edited By Moderator (MMMNAVY) : 2/8/2010 8:48:43 AM (GMT-7)


    MMMNAVY
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    Date Joined Jul 2006
    Total Posts : 6927
       Posted 2/8/2010 8:59 AM (GMT -7)   
    Noah, I do agree with the others you have wonderful syntax and show an emotion control that most adults could not when confronted with a primary support person who did not "believe" them.
    Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

    I will find a way or make one. –Phillip Sidney 1554-1586

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    dunny2
    Veteran Member


    Date Joined Jan 2007
    Total Posts : 3200
       Posted 2/8/2010 9:35 AM (GMT -7)   
    Apologies Navy:)
    Vicky

    Too many years with CD
    Two bowel resections, several obstructions.
    Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
    B12 Shots bi-weekly

    Laughter is the brush that sweeps the cobwebs from our hearts...

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