Cant sleep lately. Anyone have same problem?

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sheep87
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Date Joined Jan 2010
Total Posts : 31
   Posted 2/4/2010 5:41 AM (GMT -6)   
I have had Crohns for 5 years but was only diagnosed last month. Not on any drugs for Crohns until after a Barium xray in a weeks time. I am on Sulfasalazine for my painful joints and also on Omeprazole for Reflux. Since taking these 2 drugs I have been waking up in the middle of the night and feel really depressed and worried about anything and everything. I cant get comfy and tend to toss and turn for hours before falling back to sleep. Is there anyone else on these drugs that have the same problem? Thanks all

Nanners
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   Posted 2/4/2010 9:28 AM (GMT -6)   
I have taken Sulfasalazine in the past and currently take Omeprazole. Neither has ever caused me sleeplessness. You should probably talk to your family doc about this and maybe they can prescribe something to help you sleep. Have you tried taking Benedryl or Unisom? They are both over the counter and might help. Also melatonin might help too. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

artist guy
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   Posted 2/4/2010 10:13 AM (GMT -6)   

hey sheep,I have a terrible sleep issue, from anxiety, I take the same reflux drugs as you, but that doesn't cause my sleep issue, it's from anxiety, I go to a sleep specialist for my sleepmed's not mu dr. or my gi. my drugs are called serax for anxiety and restoril for sleep. they are in the benizoid diazapam family. there are various type of drugs in this family, adavan being one of them. if you have ins. get tell your dr. you want to see a specialist. they know so much more about sleep drugs than your dr. i tried ambien but did not like them at all. I've been using serax or oxazapam since 1985, but I built up tolerance and now i use serax an restoril. you more than likely will not need restoril.

cd since 1970 4 surgeries, imuran and pred.


artist guy


sheep87
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Date Joined Jan 2010
Total Posts : 31
   Posted 2/4/2010 11:31 AM (GMT -6)   
thanks artist guy thats really helpful. Least im not alone!

Bammer
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Date Joined Mar 2008
Total Posts : 381
   Posted 2/4/2010 12:31 PM (GMT -6)   

I toss and turn for hours. In the past I think it is from anxiety. Lately I have had a lot of stress from my Dad having bone cancer and family conflicts. As well my legs have been sore and can't get comfortable. Sometimes though I just don't feel tired until I go too many nights without much sleep. My age may be a factor too as sleep habits change?

I have sleeping pills (Zopiclone) but don't like to take them very often. Don't like how my head feels the next day. I used to take half a pill and now even take just a quarter to get me to sleep. Have tried melatonin and valerian, no help.

I have discussed this with my GI but I think he thought there were more important issues at the time. Just found out I had Crohn's two years ago. .

Will research some of the ther drugs mentioned here but I would like to know if people take these on a regular basis or just occasionally as needed?


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


artist guy
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Date Joined Jan 2010
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   Posted 2/4/2010 12:39 PM (GMT -6)   
yes I do take these drugs on a nightly basis, and I will be the first to tell you I am dependant on them as well my sleep dr will tell you, but I don't care my sleep is more important to me than my co dependancy on these drugs. I wake up feeling great i sleep around 7hr's a night which is huge for me. don't forget we heal the best in our sleep. I work in the casino industry and I own a art business so sleep is super important. I don't have time to toss a turn. when I get in bed i want it to be lights out

artist guy


Bammer
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Date Joined Mar 2008
Total Posts : 381
   Posted 2/4/2010 1:15 PM (GMT -6)   
Thanks, artist guy.

57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 2/4/2010 1:32 PM (GMT -6)   
I am the rare person who will have the odd side effect from drugs. So just because no one else has trouble sleeping from something doesn't mean it doesn't effect you that way. I am on a drug that makes most people drowsy, it wires me like no other. And I have the same reaction to lots of other medications. So if this is a new symptom that started when you began taking these medication, it very well may be the medications. Talk to your doctor and ask about alternatives.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Doc2007
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Date Joined Oct 2007
Total Posts : 294
   Posted 2/4/2010 5:51 PM (GMT -6)   
Havent slept well in a year...dont know who to talk to about it.

artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/4/2010 6:23 PM (GMT -6)   
there are sleep specialist in your area,if you have ins. referal from dr. for instance my ins. is cigna, my group is scripps coastal, there is sleep specialist in my group, but you need to tell your dr. who you want to be referred to. I did the homework and found my guy,  man he is wonderful to talk to, understand about sleeping issues and know's the best sleep drug for you, I already had mine so I knew all about them, I also told him I didn't think family type of dr's knew enough about sleep med's to evan dispence them, he agreed %100. and his office is in a super upscale community in La Joll,Ca. so he's not some fly by  your pants type of dr. other than pain there is not much worse than not sleeping

artist guy


Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 2/4/2010 9:22 PM (GMT -6)   
Bammer be very careful of the Zopiclone it's a benzo-diazapine and is very addictive. Ask you Dr. to prescribe an old anti-depressant called trazadone it's a lousy anti-depresant but is good for sleep.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 2/4/2010 9:55 PM (GMT -6)   
Yet another suggestion on the table...Drugs taken to relieve reflux "may" interfere with the absorption of other medications. Try taking the reflux drugs on a different schedule than the rest of your meds. I've been a walking zombie this week myself...dang monkeys won't leave me alone! My sleep deprivation is due to my Fibromyalgia. I NEVER get restorative sleep! I use one of the lower doses of Melatonin about an hour before bed. Your body naturally produces it to induce sleep. It is OTC and comes in several dosages. Should you try it, start with the lowest dosage and build up if you need to. It's always worth trying something natural vs. any habit forming drugs! Should you find yourself needing it every night it may be worth talking to your doctor about your sleep problems. I suspect anxiety may be your problem especially since you were sorta recently diagnosed. Good Luck! ZZZZZZZZZZZZZZZZZZ
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones, Carpel Tunnel & POST-menopausal (Hurray)


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/4/2010 11:00 PM (GMT -6)   
just to let readers know, benzo diazapame drugs are and can be addictive, so please make sure you are aware of that, I was so sleep deprived that there wasn't any other alternative, for me. If you can get  away with melatonin I wish i could, but know for me. I went thru the mild ones first, but I had no luck, when i have a gas blockage my anti-anxities I will take rather than vicodon-opiate, the constipation can make it worse, the anxiety drugs relax my stomach, it helps in having the gas get thru, if you know what i mean
artist guy


Rider Fan
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Date Joined May 2008
Total Posts : 1434
   Posted 2/4/2010 11:34 PM (GMT -6)   
I've used zopiclone about once a week for 10 years with no problems.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


jeanneac
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Date Joined Feb 2009
Total Posts : 1648
   Posted 2/5/2010 6:04 AM (GMT -6)   
There are drugs for restless legs like requip and mirapex. I've had to take mirapex for RLS. Also, something like trazdone, which isn't addicting may help you relax and sleep. It's awful when you can't sleep! I've taken some antidepressants that gave me insomnia.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia
low thyroid,claritin, advair, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D
zoloft
latest CT scan showed marked inflammation in descending colon/sigmoid colon. Sigmoidoscopy showed inflammation with negative biopsy.
switched from colazal to lialda 1/16/10
ALLERGIC TO SULFA, AND ANTIBIOTICS GIVE ME DIARRHEA!
Blood test positive for Crohn's via prometheus ibd serology panel


mull
Regular Member


Date Joined Feb 2009
Total Posts : 86
   Posted 2/5/2010 1:40 PM (GMT -6)   
it happens alot of us i could stay awake for hrs its very annoying i take a sleeper not
all the time a dalmain and it helps so hope u get on ok with sleeping
im a 40 yr old woman who has CD since 1993..
current medication is pentassa and purinethol.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 2/5/2010 4:41 PM (GMT -6)   
Artist Guy- It probably wouldn't help you sleep, but there is a drug called Nulev that is an anti-spasmotic. When I get terrible gas/cramping or what I fondly refer to as dry heaves of the butt..it's the only thing that gives me relief. Have to be careful with it too however...especially if you are prone to bouts of Constipation. It slows the contractions of the intestines as food passes through.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones, Carpel Tunnel & POST-menopausal (Hurray)


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/5/2010 4:50 PM (GMT -6)   
Hey artist guy i live in SD as well. Have a house in North Park with my partner of 3.5 years

sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 2/5/2010 5:39 PM (GMT -6)   
Another non-sleeper here. My doc's given me sleeping pills from Trazadone to Lunesta (which I refuse as it puts that terrible taste in my mouth). I use over the counter antihistamine - doxylamine succunate - it's in Unisom... It works great. But I always check the active ingredients so I don't end up with Benadryl, which is diphenhydramine. That doesn't work for me...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/5/2010 5:52 PM (GMT -6)   
hey doc2007 nice place to live, go to whole foods in hillcrest all the time not to mention the museums, my dr's are in hillcrest at scripps coastal. north park is so convient to everywhere in S.D. what do you do there is s.d. for a living if i'm not asking to much 

artist guy


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/5/2010 10:58 PM (GMT -6)   
I am in cosmetogy school, and will finish in June. Hoping to convert our studio apartment into a salon when i am finished! Working next door would be Heaven dealing with this disease. The best part is just walking home to rest in between clients.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 2/5/2010 11:39 PM (GMT -6)   
sr5599 said...
Another non-sleeper here. My doc's given me sleeping pills from Trazadone to Lunesta (which I refuse as it puts that terrible taste in my mouth). I use over the counter antihistamine - doxylamine succunate - it's in Unisom... It works great. But I always check the active ingredients so I don't end up with Benadryl, which is diphenhydramine. That doesn't work for me...


It's really strange but here in Canada Unisom is only sold as diphenhydramine. I never could find doxylamine succunate.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18008
   Posted 2/6/2010 1:53 AM (GMT -6)   
Hmmm, sheep87....maybe you could try counting sheep...87 of em LOL!

Sorry, I couldn't resist and no one else said it so I had to make reference to your member name and post about not being able to sleep...he he!


:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


ozonehole
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Date Joined Dec 2006
Total Posts : 548
   Posted 2/6/2010 6:39 AM (GMT -6)   
Rider Fan said...

It's really strange but here in Canada Unisom is only sold as diphenhydramine. I never could find doxylamine succinate.


Wikipedia says:

In Canada doxylamine succinate is the active ingredient in the over-the-counter sleep-aid tablets branded as Unisom 2; while Unisom contains diphenhydramine hydrochloride as the active ingredient.

http://en.wikipedia.org/wiki/Doxylamine

I cannot find doxylamine succinate here in Taiwan. The best alternative sleep-inducing antihistamine I've found here so far is meclizine:

http://en.wikipedia.org/wiki/Meclizine

Somewhat less effective is chlorpheniramine:

http://en.wikipedia.org/wiki/Chlorpheniramine_maleate

All of the above are "first generation" antihistamines. The "second generation" ones like loratadine don't induce sleep.

All of these are sold across the counter in most countries, and are not addictive. But do note the warnings printed on the box about how it can increase male prostate problems and acute-angle glaucoma. Overall though, pretty safe.

There are a couple of other things I do to help my sleep. Magnesium supplements make you more relaxed, but be sure to buy magnesium glycinate rather than other magnesium compounds because they can easily cause diarrhea. Magnesium has a number of other benefits besides improved sleep (reduced pain and cramping, etc). To read more:

http://en.wikipedia.org/wiki/Magnesium_in_biology

Melatonin (already mentioned by another poster) helps a little.

No problem to mix melatonin, magnesium and an antihistamine, which is what I do. I am plagued by sleep problems, but try to avoid taking benzodiazepines and Z-drugs (I do have them, though, just in case) because it's so easy to build up tolerance to those.

http://en.wikipedia.org/wiki/Benzodiazepines
http://en.wikipedia.org/wiki/Z-drugs

cheers,
Robert
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 2/6/2010 4:42:36 AM (GMT-7)


Rider Fan
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Date Joined May 2008
Total Posts : 1434
   Posted 2/6/2010 11:40 AM (GMT -6)   
Great post Robert. Will keep an eye out for Unisom 2.

Another first generation anti-histamine that I've used is Hydroxyzine (Atarax). Not sure if that's available in Taiwan. I get it by prescription in Canada. It's probably very similar to Meclizine.

I've also found a low dose (10 to 20mg) of Amitriptyline to be helpful at times.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!

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