How often should a CD patient get a colonoscopy? With or without flaring symptoms?

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champagnekindofgal
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Date Joined Jan 2010
Total Posts : 221
   Posted 2/4/2010 8:03 PM (GMT -7)   
My girlfriend just had a colonoscopy today as her sister had colon cancer in the past few years - preventative and shie is fine.
 
Got me thinking. I had a colonoscopy about six years ago when I first started having symptoms but wasn't diagnosed yet. They "didn't find anything."
 
Prior to my recent hospitalization, they did a CT scan which showed 'nothing' and then two weeks or so, after severe D and throwing up bile, distended abdomen, yadda yadda, did a simple X ray which showed large bowel largely distended (it had completely shut down).
 
On Imuran and prednisone now.
 
Got me thinking though, at what point would it make sense to have another colonoscopy?  Or is this only done every 10 years or so or if a doctor suspects a stricture, etc?  Any info / stories would be appreciated.
 
Thanks!
44-single mom diagnosed with Crohn's 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
 
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.
 
 
 


GDen
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Date Joined May 2009
Total Posts : 703
   Posted 2/4/2010 8:06 PM (GMT -7)   
I had one 3 years ago and my GE said he'd like to do another one this year.
Cimzia, Asacol


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 2/4/2010 8:08 PM (GMT -7)   
Should the fact that I have this new symptom - internal and external hemorrhoids play into the decision at all?
44-single mom diagnosed with Crohn's 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
 
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.
 
 
 


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/4/2010 9:26 PM (GMT -7)   
I've had 2 out of the past 4yr's. 2 endoscopys since aug. 09. depends on flareing issues and your gi and what newer med's. I changed med's hence 2 colonosc

artist guy


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 2/4/2010 9:55 PM (GMT -7)   
every two years for me but i might skip a year i think if i'm feeling ok.
 


sugarfoot
Regular Member


Date Joined Jul 2005
Total Posts : 138
   Posted 2/5/2010 8:46 AM (GMT -7)   
My GI has me do one every year. I have a friend with UC that also does one annually.
Crohn's Colitis - officially diagnosed Feb. 2005
(Imuran, Lialda, Folic Acid, B12 injections)
Interstitial Cystitis - 2002 (Elmiron)
Raynauds - 2005
.::I can do all things through Christ who strengthens me. Phillipians 4:13::.
 


Chasity102304
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Date Joined Nov 2007
Total Posts : 165
   Posted 2/5/2010 10:30 AM (GMT -7)   
Because I'm in "remission" or as close to healthy as possible, every 3 years. I just had my "routine" scope on 1/22 and saw my GI for follow up yesterday. He said as long as I'm still feeling fine and have no pain or other changes, another 3 years before I have a scope.
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 2/5/2010 11:24 AM (GMT -7)   
My gastro insists once you have had Crohn's for 10 years an annual colonoscopy is necessary.
 
Less than 10 years I have no idea what her preference is.
 
 
My computer says I need to upgrade my brain to be compatible with its new software.


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 2/5/2010 1:23 PM (GMT -7)   
My GI recommends yearly now too.  I've had three in 1 1/2 years due to all my complications. 
 
I would say you are due!
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort, and Imuran trying to get the drainage to stop. 
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/5/2010 2:28 PM (GMT -7)   
I've never been the typical CDer. In the almost 22 years since diagnosis this is the longest I've gone without one. Its been about 2 1/2 years. I had one year that I had upwards of 10 and most of those had endoscopies thrown in just for kicks and giggles. I see my GI next month and I will be surprised if I get out of his office without a colonoscopy scheduled.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 2/5/2010 4:19 PM (GMT -7)   
arn't we a lucky group. I did one 3 yr's ago and the nurse asked what my pain toleance was 1-10, 10 bing the most tolerable, I said 2, big mistake I was out of it for 24 hr's. throwing up from being over medicated now I have anew gi and he is so talented and skilled that I am in and out of ther in an  1 1/2 hrs and feel really good after. btu yea that is our thing we have to go thru, but we need to stay on top of our cd.

artist guy


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 2/5/2010 8:05 PM (GMT -7)   
I asked my GI how often I should have a colonoscopy. He said every 2 years. It had been 4 years when I asked him. He's a little flakey.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/5/2010 8:41 PM (GMT -7)   
I've always heard once every 2 years, perhaps every year once you've had it for 10 years...obviously more often if you're feeling flare-ish.
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 100mg Imuran, Psyllium Seed Powder, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention). 

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