vent: hubby doesn't get it

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Veteran Member

Date Joined May 2003
Total Posts : 1671
   Posted 2/5/2010 1:58 PM (GMT -6)   
I realize I'm probably overreacting but here goes: I had c-diff about 4 months ago and ended up in the hospital. Had been flaring for months before that. Finally started feeling better after things got under control. So recently I started having similar symptoms and got worried that I might have c-diff again. I got tested and it was negative. Hubby asked why I couldn't be happy about the test results. I tried to explain that if it was c-diff, I would get antibiotics and it would go away. Now it's apparently another flare. He said, "doesn't it do that?" Like living with cd symptoms should be so normal to me now that it doesn't bother me. I was so mad I couldn't even explain how much I fear another flare-up. How I worry about it affecting my ability to go to work, and how I don't want to go on prednisone again so soon because every time I taper off my arthritis gets worse, which affects my quality of life. I just got to the point that I felt safe going for bike rides or walks and now I'm back to feeling like I have to stay near a bathroom.

Am I crazy? Does anyone else feel like they'd rather have something curable and be done with it, rather than "just another flare" that we have no idea when or if it's going to end? I know c-diff is no picnic, but I thought if I had it right now I had at least caught it early and wouldn't end up in the hospital again. I'd never want it if it was like the last time.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 2/5/2010 2:14 PM (GMT -6)   
Hey there heatmiser. I'm sorry things are sliding downhill again. But there's a possibility that it still is c-diff - my husband has also been struggling with c-diff, and his doc always says to get at least 3 negative c-diff tests before deciding firmly that it isn't c-diff. Also, we always put the sample on ice, and deliver it that way to the lab, so as to have the best chance of a valid result.

Also, our GI says that once you get past c-diff, you can have post infectious IBS. My husband got c-diff again last September (after being free of c-diff for about 9 months without vancomycin - his first crohn's flare up and c-diff infection coincided and landed him in the hospital for 45 days . .. it was terrible), and his stool sample was positive, and they put him on vanc for 2 weeks. Even after stopping the vanc, he continued to have problems on and off for weeks. He seems to have stabilized now somewhat (other than for the reactive arthritis he was diagnosed with either because of the c-diff, or crohn's or the flu shot).

Our GI says if you have more than 3 continuous days of tummy problems, then, it most likely is either c-diff or crohn's, but if it is a slip here, and it gets better, and a slip there and it gets better, it could be post infectious IBS. He said that for 3-6 months after a c-diff infections, PI IBS could play a part.

So, don't panic yet. And if it is crohn's, maybe it's time for some of the bigger meds.

((hugs)). Hope you feel better soon.

Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 2/5/2010 6:38 PM (GMT -6)   
Honey.. if I burned your arm and the accidently did it again would it still hurt the second time?...people need to realize that stomache acid is basically a chemical burn
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 2/5/2010 6:44 PM (GMT -6)   
heatmiser said...
Does anyone else feel like they'd rather have something curable and be done with it

Yes, definitely. Please sign me up for that trade-in program. I kinda get that "oh, you're still sick?" vibe from oblivious people.
Cimzia, Asacol

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 2/6/2010 1:02 AM (GMT -6)   
When I went to the hospital last April I swore I had c-diff. I'd been on both Cipro and Flagyl and then it really got bad. I had them test 3 times for c-diff. I wished I had it, exactly as you said, so that I could take antibiotics and it would go away. Not being c-diff meant that my Crohn's was severely out of control. That is always very, very depressing. So, hang in there and know we all understand. Hugs!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

New Member

Date Joined Feb 2010
Total Posts : 11
   Posted 2/6/2010 1:12 AM (GMT -6)   
I definitely understand what you're saying - my Crohn's diagnosis came after a month of severe abdominal pain and years of constant stomachaches and diarrhea. During the weeks right before my surprise diagnosis I was beginning to feel literally like I was just going to die because no one could figure out what was wrong with me and fix it already. I finally had exploratory surgery and only then did the surgeon see what was causing all my sickness - when I woke up from surgery and was told that I had Crohn's, I was relieved even though I didn't know a thing about the disease, because now at least I knew what it was and someone could help me. Sometimes even a problem is good news because if you know it's there, you can fix it!

I have a question though - could someone tell me what c-diff is/means? I've never heard of this before.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/6/2010 11:08 AM (GMT -6)   
ky_girl here is a wikipedia description of C-diff.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2003
Total Posts : 1671
   Posted 2/6/2010 11:37 PM (GMT -6)   
Thanks for the replies.

PV, I am so glad to hear this info. I do have this feeling they may be wrong. I thought the test took 48 hours to get results but they called me the next day. I did keep it on ice and got it in within the 2 hour limit they gave me. Wow, 45 days! I thought my 4 were bad.

And if the results are correct, I guess I had a flareup with the c-diff last time, and it means my cd symptoms are different than they used to be. If I never said it before, I hate this stupid disease!

Thanks for letting me vent.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet

New Member

Date Joined Feb 2010
Total Posts : 11
   Posted 2/7/2010 1:21 AM (GMT -6)   
Thanks Nanners :)
Leslie, 22
Diagnosed with CD October 2009
Bowel resection/appendectomy and 2-week hospital stay, October 2009
Currently receiving Remicade

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