New Crohnie here to say hi

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ky_girl
New Member


Date Joined Feb 2010
Total Posts : 11
   Posted 2/6/2010 12:07 AM (GMT -7)   
Hi everyone :)
 
I'm new to this forum and to the world of Crohn's - I was diagnosed in October '09 and was thrown in headfirst, so to speak, since I first heard my diagnosis as I was waking up after my resection surgery. I don't really know anyone else with Crohn's and although my family and friends have been amazing, I'm really looking forward to being part of a community of people who can understand firsthand what I'm experiencing. smilewinkgrin

Leslie, 22
Diagnosed with CD October 2009
Bowel resection/appendectomy and 2-week hospital stay, October 2009
Currently receiving Remicade


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/6/2010 1:47 AM (GMT -7)   
Hi ky_girl, Welcome to Healing Well, You have found the best place to learn about our disease.
There are alot of good ppl here. Always remember one thing you are never alone with this illiness.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 2/6/2010 3:28 AM (GMT -7)   
Sorry you have to be here but welcome for sure..this is the best place for support and understanding as well as education...stay with us plz..lyn
                                        Long  Time Member of da Family
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/6/2010 8:42 AM (GMT -7)   
Hi ky_girl and welcome to the best Crohns forum out there. Boy, you sure did have a big introduction to the world of Crohns. Right to a resection:0 !!! One thing I will tell you is that you should ALWAYS stay on some type of maintainence med. You should always remember that Crohns is for life and is a chronic and incurable bowel disease. So it must be treated always, even when you are feeling well. I learned that the hard way, and will never be med free again. Also, many doctors tell us after surgery, eat anything you want. Well thats not true. You should try to keep a food diary to help keep track what foods agree with you and those that don't. I personally follow a modified low residue diet all the time and this works well for me. Some have had success with the SCD Diet also. But you have to find what works well with you. Many of us have to avoid things like nuts, seeds, popcorn, spicy foods, and milk products are problems for many. I no longer eat red meat as it is very hard for even the normal digestive tract to digest. I eat alot of fish, turkey and chicken, with veggies cooked to mush. But this is what works well for me and I had to learn how to eat right for me thru trial and error.

We are glad you joined and we look forward to hearing more from you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ky_girl
New Member


Date Joined Feb 2010
Total Posts : 11
   Posted 2/6/2010 11:13 PM (GMT -7)   
Thanks so much for your replies, everyone :)

Nanners, thanks for all your advice! I am slowly figuring out my diet, there are a few things I'm just going to stay away from altogether - seeds and nuts and popcorn, as you mentioned - everything else so far has been trial and error and I'm discovering which foods are friendly and which are not. I'm really trying to get on top of my diet and I've just started working out again, trying to keep everything in good shape. I've been taking Remicade since surgery, I've had 4 doses of it so far and it seems to be working well for me. The doctors I spoke with right after my surgery honestly didn't know much about Crohn's and so far it hasn't been as bad as they led me to believe it would be, which is nice!

Thanks for the welcome, I'll be seeing you all around!
Leslie, 22
Diagnosed with CD October 2009
Bowel resection/appendectomy and 2-week hospital stay, October 2009
Currently receiving Remicade


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/7/2010 8:03 AM (GMT -7)   
Leslie,

Don't be surprised is you have symptoms in the future that are way different than you expect. Right now you are in a surgically induced remission, things can change at the drop of hat sometimes. I am not telling you this to scare you, its just that you will read here many times of folks who thought it was this...and it turned out to be really bad Crohns flare. I have luckily had a mild case of Crohns but have had times when I just had to go WOW as I had never experienced it before or expected. Never take your disease for granted. Good luck!

Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 2/7/2010 10:53 AM (GMT -7)   
hey leslie welcome, great forum here, alot of people know alot of med's and surgery. that's how I welcomed crohns to my life, emergency type surgery with total blockage, this was in 1970, but it took them 2 more surgeris to remove the disease 8 ft. of it then i too was in surgically induced remission, for years, then elective resection to avoid another blockage 1989, then again remission now the monster is waking up on med's, by the way our daughter is starting her grad school next year to be libarian, she goes to U.C. Irvine in So.Cal. she is volunteering at her university at their library, I think she wants to go to grad sshool in either british columbia or edmonton, good luck to you

artist guy


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/7/2010 1:24 PM (GMT -7)   
Hello and Welcome, you seem to have a wonderful attitude.

You are doing exactly the right things to set yourself up for the best outcome you can. You are educating yourself. But at the same time it can scare the Crap out of you. Just be aware that all the things you read here, on other sites and in books are all possibilities, but not probabilities. Most people have a major flare, like you did, and are diagnosed. They may spend some time trying to find the right combination of medication to bring their disease under control and finding the right diet for them. Then they go on to live their life with some minor flares here and there that cause some disruption to their lives but Crohn's doesn't become the focus of their life. I was 23 when I was officially diagnosed, but I had self diagnosed at 13, so I had a lot of damage that took years to undo. Once that was under control, I had years of relative peace, with only the occasional trouble from my disease. Even during those years when I was dealing with the damage I was able to work and be a wife and mother.

Nanners gave you some great advice about food and keeping track of what bothers you and what you can eat. It will change over time, or at least it did for me as my disease has changed over time, so has my diet, but I just adjust as need be. And when I really want to splurge on some food that I want, I save it for a day when I don't have anything I have to do the next day. Like today, Its SuperBowl Sunday, and I will be eating food I shouldn't. Just a little, but I will pay the price tomorrow willingly.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ky_girl
New Member


Date Joined Feb 2010
Total Posts : 11
   Posted 2/7/2010 6:09 PM (GMT -7)   
Thank you all so much for your replies - I can already see I've come to the right place!

I am finding out quickly by reading here that every case is unique and the disease can change rapidly - just like you're saying, Nanners and Zanne. I'm trying to learn what to expect as much as possible, and with Crohn's I know that's not much. My hope is to be prepared for whatever may happen, while at the same time hoping and praying for the best.

I really appreciate the welcome everyone! :)
Leslie, 22
Diagnosed with CD October 2009
Bowel resection/appendectomy and 2-week hospital stay, October 2009
Currently receiving Remicade


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 2/7/2010 7:00 PM (GMT -7)   
hello and welcome KY_girl... i hope you chose your sreen name because your from Kentucky! ;-)
randynoguts 



     http://www.geocities.com/randynogutsweb/


ky_girl
New Member


Date Joined Feb 2010
Total Posts : 11
   Posted 2/7/2010 9:15 PM (GMT -7)   
randynoguts - yep, real live Kentucky girl, born and raised :)
Leslie, 22
Diagnosed with CD October 2009
Bowel resection/appendectomy and 2-week hospital stay, October 2009
Currently receiving Remicade

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