Inflammation concentrated in rectum

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wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 2/6/2010 6:22 AM (GMT -7)   
So I have been having somewhat of a flare since around Thanksgiving.  Yes, it has been that long, and ongoing.  I had to take antibiotics in Nov and I think that triggered it.  I have had 2 Remicaide infusions since then and am still not back to "my normal".  My dr started me on Pred in mid-Dec (40 mg), which I only took 30 mg of and then tapered down myself as I felt better - bad idea, since I am still not better and went back up to 40 mg mid-January anyway.
 
So I just got a bunch of test results back - all my blood work is NORMAL, stool samples (c. diff, parasites, all the terrible things) are NORMAL, my CAT scan was NORMAL and even showed no inflammation!!! 
 
SO WHAT IS GOING ON?!?
 
It feels like it's concentrated in my rectum, so my dr said I may have internal hemm. that are bleeding, etc.  He wants to me to come in for a flex sigmoidoscopy next week.
 
does anyone else seem to have this issue?  :::TMI::: I have mostly formed stool but lots of other stuff - it's like my insides are falling out sometimes - I have gas and pain and blood.  Not a ton of D and not a lot of mucous anymore.  Usually the pain, etc is during the day but I have been waking up at night a few times (always a bad sign).  It is not as bad as it has been in the past but I just feel like I am not getting back to 100%.  I can do everything else normally, I go to work, I exercise, I have a normal appetite, etc but I am getting these isolated incidents throughout the day.     
 
Am I getting better, just more slowly than before?   Any thoughts are welcome!
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 2/6/2010 6:49 AM (GMT -7)   
I have also had a peri-rectal abcess about 2 years ago so do have a past with problems in that area - I had a colorectal surgeon do surgery then, it healed and I was on my way.  I don't have a fever and none of my blood work, etc indicates any sort of infection right now.
 
I guess there is no other way to figure it out other than actually having a look with a sigmoidoscopy, right?
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 2/6/2010 7:04 AM (GMT -7)   
I would have the sigmoid done so you have the complete picture of what is happening down there. Maybe you have a periannal ulcer or alot of scar tissue from your previous abscess. Whatever is happening in my experience the remicade works wonders for periannal problems. All the best.

Julia

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/6/2010 8:04 AM (GMT -7)   
I agree I would have the test to rule anything else out. I have felt really sick before and had test results come back normal too.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 2/6/2010 8:38 AM (GMT -7)   
I think your situation is worse than mine, but I'm flaring there too. I have internal and external hemmies that are REALLY swollen. Started out thrombosed and have come down. Has your doc given you anything for the hemmies? Rx anusol have helped with the inflammation and calmed things down a bit and I sit on a plastic "donut" ... sitz baths, etc. Witch hazel wipes, but these are probley suggestions which are too simple for your complicated situation .....

I'm going to ask my doc to see if I should have some sort of scope soon. Since I"ve flared since Nov, I've now had ulcers in my mouth, esophogus, scalp and now my nose, and given that I have abdominal pain, I would imagine there is more inflammation "up there" too ... so keep us informed of what they find. I feel for you ...
44-single mom diagnosed with Crohn's 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
 
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.
 
 
 


optimistic65
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/6/2010 11:02 AM (GMT -7)   

Hi Wendnesday2007,

I am new on here but not new to the issue of abcesses in that area!

Yes, for me scar tissue, not Crohns inflammation(to start with) will cause that kind of pressure in my rectum.

Especially if I have had more gas than usual and/or trips to the bathroom. I also have external skin tags (ya like hemmies) that just add to the pressure and pain. Sometimes after all the sits baths and heated packs, I just cave and stay off my feet til the swelling goes down.

I too am on Remicade and it does help, most of the time. Good luck with your test and I hope there is a simple answer for ya!

 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/6/2010 3:47 PM (GMT -7)   
ust a suggestion...Because of my rectal problems, I am sedated for any sigs that  have....I had one done unsedated and it was close to the worst experience I've had. 
 
How often are you having your remicade infusions?  I have had to move mine up to every six weeks instead of every 8 sometimes to get me back on track after I've flared. 

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 2/6/2010 5:33 PM (GMT -7)   
Thank you!  I appreciate all the responses!
 
It's frustrating because all the tests (CAT scan , blood, stoo, etc) came back normal and it wasn't until I reminded my GI that I am still seeing so much blood that he wanted the sigmoidoscopy.  I am waking up in the middle of the night and am in the bathroom for ages, or on the ground with pain but am totally fine for at least 70% of the time.  I have not experienced this before, I am usually either sick or I am not.  In between is scary because at lease before i knew if I was getting worse and headed for a flare or gettting better and recovery was in sight.
 
I have my Remicaide this week and it has been 6-ish weeks the past 2 times.  I don't understand how the CAT scan can show no inflammation though when I am having pain in all areas of my abdomen (which could be gas maybe and the scan just doesn't show that the area is tender).
 
Thank you again for your posts - it's hard not knowing anyone else in real life that has this. :(
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


optimistic65
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/6/2010 5:47 PM (GMT -7)   
That is the worst part of the disease, in my opinion, all test come back ok...so why then all the pain and suffering. I think we forget that we can have unrelated issues..yup like good old hemmies! :)
Man...a plain old cold throws me for a loop!! A Crohns problem, now that is just old news...LOL
Again good luck!
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