Optimistic about controling Crohn's without conventional medicine!!

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Crohnic-Style
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 2/6/2010 5:57 PM (GMT -7)   
So i just met with a new Homeopathic/Chiropractor who works with his wife who is a Nutritionist. They help patients with many different types of conditions, but specialize in digestive problems. Because she herself had UC and has learned to control it with no conventional medicine, only diet and supplements.

She gave me great confidence when i heard her story. In a nutshell she tried conventional medicine for years. Ended up getting surgery to remove her large intestine, part of her small intestine, and her whole rectum, and now has an ileostomy bag. But after all of this she still had the disease running its course in her body. Because the in-balances that cause this disease were still there. She was in an extremely bad flare when they decided to go cold turkey onto the natural route and give up conventional medicine, and within 6 months she had her UC under control, and also had no symptoms of her RA that she also had for years. They and i believe that conventional medicine doesn't treat the specific in-balances in the body, it just covers up the symptoms while the disease is still doing damage to the body even if only on a microscopic level it's still there. Which i believe is why it never really stops, it just keeps coming back.

I'm well aware that this is a lifetime disease that there is no 'cure' for, and it won't ever 'stop'. And i am also very aware that everyones' body is different and the disease attacks us all individually. But i am more confident in what they are telling me about treating it with the natural route than what any conventional doctor has ever said or done for me. It makes a lot more sense to me to fix digestive diseases like these with natural routes, as apposed to putting something foreign and extremely potent into your body. For those who don't know i am currently in a similar position. I'm in a extremely bad flare and am sick of conventional medicine because it's never done well for me. I am starting their regiment and diet next week, the diet for the time being is food combining as well as no wheat or dairy.

So i don't know if this is the end all be all for me yet but i am very optimistic about it and feel more comfortable with this route than any other i have done in the past. And i'm wondering if any of you have experience that could relate in any way to this situation

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 2/6/2010 7:13 PM (GMT -7)   
I too just started moving toward a more holistic path for my healing - I am on so many hard core drugs and they don't even seem to work for me right now so am trying to add some different routes to complement my healing.
 
I had a consultation with a natureopath and am currently taking different supplements and Chinese herbs to complement my regular medicine.  I am also continuing my yoga and working on my breathing exercises to relieve anxiety.  I started a macrobiotic diet and am really trying to eat consciously.  I think there are a lot of holistic resources out there and they can only help.
 
Good luck with what you are doing!  I think it's a great and encouraging route to take for overall well-being!!
 
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/6/2010 7:26 PM (GMT -7)   
I don't know anything about your new venture but I support you in your decision to do what you think is best for you. It is easy to follow conventional treatments when they work, or at least partially work, for you. It is also easy to question those who choose to try something different when your meds are working for you. But I commend you for becoming pro-active in your quest for good health when all else has failed.

My daughter also had to look elsewhere when the regular Crohn's drugs weren't working. We also wonder if the conventional drugs cover up or suppress the immune system which is trying to rid the body of something. Just a guess and we won't know until we try. It can be debated on and on but there's no arguing results. So she has started the anti-map treatment. We're communicating with others who've been through this because it gets worse before it gets better, or at least it does some times. She didn't get in this condition overnight and apparently, if this works, she's not going to feel better over night either. If you are committed to your new treatment, expect that you will have to be patient and give it time to work.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/6/2010 8:40 PM (GMT -7)   
I do a combination of natural and traditional medicine. I find both help, but not cure.

Many of us here do the same, some have stopped trad. medicine and gone strictly natural.

One thing I wanted to mention to you about the wife's story about UC: when a person with UC has their large colon removed, they are cured of UC because UC only affects the large intestine. If she still had disease after removal of the large colon, maybe she had crohn's.

Wouldn't be the first time a doctor misdiagnosed crohn's for UC or vice versa. I've even heard of someone who said they had both. :-)

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 2/6/2010 9:36 PM (GMT -7)   
i just started working with a witch doctor in New Delhi, India. ok, he's an ayurvedic doctor but same difference. i've been doing fine just with diet for 2 years but i'm always looking for ways to strengthen my body, intestines, and immune system so when/if it comes back, i wont be up the proverbial festering creek without any means of motility.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 2/6/2010 10:20 PM (GMT -7)   
I wish you the best. Let us know how you progress and which supplements work best for you.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 2/7/2010 3:05 AM (GMT -7)   
http://www.youtube.com/watch?v=BWE1tH93G9U a video explaining homeopathy ... stay clear... it will just clear your wallet... its quackery

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 2/7/2010 4:52 AM (GMT -7)   
I tried a homeopathic/chiropractor, well known with his own radio talk show, I drove 4 hrs each way every week to meet with him. He was so encouraging, saying that it would be no problem he could get me in remission in no time, that he'd had much success treating this. He ran tests I had never heard of (like checking my hair for mercury), you name it. He had some machine he hooked me up to which would tell which supplement I needed. They also did lymphatic draining, acupuncture...very extensive. I can't even recall every supplement he had me take. Needless to say, my disease, which at the beginning was only in my descending colon and sigmoid, a year later after following his program to a "T", it spread thruout entire colon, small intesting, stomach and esophagus. I think that I just "believed" or "hoped" so much that it would work, since nothing had worked before, I ignored the obvious worsening of my disease and was left with such distruction thruout my body and being thousands and thousands of dollars poorer.
I hope it does work for you. I'm sure it does in some cases.
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 2/7/2010 5:29 AM (GMT -7)   
Wikipedia said...
Homeopathy is unsupported by modern scientific research. The extreme dilutions used in homeopathic preparations usually leave none of the original material in the final product. The modern mechanism proposed by homeopaths, water memory, is considered implausible in that short-range order in water only persists for about 1 picosecond. Pharmacological effect without active ingredients is inconsistent with the observed dose-response relationships of conventional drugs, leaving only non-specific placebo effects or various novel explanations. The proposed rationale for these extreme dilutions – that the water contains the "memory" or "vibration" from the diluted ingredient – is counter to the laws of chemistry and physics, such as the law of mass action. The lack of convincing scientific evidence supporting its efficacy and its use of remedies without active ingredients have led to characterizations as pseudoscience and quackery, or, in the words of a 1998 medical review, "placebo therapy at best and quackery at worst." Use of homeopathy may delay or replace effective medical treatment, worsening outcomes or exposing the patients to increased risk.


http://en.wikipedia.org/wiki/Homeopathy#Provings

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/7/2010 7:34 AM (GMT -7)   
I too wanted to point out the the wife's story is fishy. UC is cured by removal of the large intestine. If her disease was still active, she did not have UC. That is one of the fundamental differences between the two IBDs. UC is curable, Crohn's is not.

Also, your point about putting foreign and potent things into your body. Natural products have just as much chance of doing harm to us as the drugs we take for our disease. And in some cases more because they are not regulated and you could be getting any dose of the active ingredient from a natural product, labels have been shown to be inaccurate.

I am not saying that including a natural component to your health wouldn't be beneficial, but I would be very skeptical of this pair. Their story doesn't make sense from a basic medical standpoint. I would not be taking unregulated supplements from them. They sound like really good sales people to me.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/7/2010 7:35 AM (GMT -7)   
Well first off as Roni said if she had surgery and her colon removed her UC would have been cured. So obviously she does not have UC but has Crohns. I wish you good luck with your no meds route, but I highly suspect we will be hearing about your emergency resection or something like that at the end of this because your disease was not properly treated. I learned that the hard way. Good luck!


Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 2/7/2010 10:32 AM (GMT -7)   
What is properly treated? I wish there were a clear cut way to treat Crohn's. Maybe it works for some of you and that is great but it clearly does not work for all. Most patients have to change treatments, even if they work at first. Others find only bad side effects and allergic reactions. I'm not sure what the answer is but no one else has THE answer either.

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 2/7/2010 12:19 PM (GMT -7)   
Like everything else, buyer beware. If it sounds too good to be true, it is. I was just plain lucky to find a physician, in regular practice, to clarify exactly what was going on in my guts. I wish you the best in finding the answers you need.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes
L-glutamine powder 3 times a day
sublingual B-12 and B complex
2 T. cod liver oil
2 tsp. tart cherry juice concentrate
Multiple vitamin, 2,500mg vit. C, 1,000mg calcium mag.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 2/7/2010 2:59 PM (GMT -7)   
I would be suspect of someone saying their UC was still active AFTER they had their colon removed...they don't sound very informed on their disease!

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 2/7/2010 3:49 PM (GMT -7)   

Does it work? The thing is I guess it is worth a try (isn't anything) as it highly unlikely that you will overdose/do any harm  on the products.

My mother in law is 80, in excellent health, own hair, teeth, beautiful skin etc, she hasn't been to a Dr in over 40 years and she treats herself homeopathically, prior to this (by all account) she was a physical/mental mess (I didn't know her then though, so can only go  by what I was told) A few years ago they were visiting us and my father in law wasn't himself and was constantly shaking, we suspected parkinson's and suggested that when they returned home he go and see a DR. The diagnosis, Parkinsons. When we next saw them(approx 1 year later) he had completely stopped all the shaking and looked well. The following year he died, because his death was sudden he needed a post mortem-which again confirmed he did  have Parkinson's Disease. Mother in law claimed she had cured him of the disease(which obviously we know is not true because of the post mortem-incidently cause of death was not parkinsons) however what she obviously was able to do was to alleviate the symptoms.

So I guess that although crohn's disease is incurable if all obvious symptoms could be alleviated that would be a good a cure as any.

Yesterday she told me what to give my son to 'cure' him-who knows??


Crohnic-Style
Regular Member


Date Joined Jan 2010
Total Posts : 24
   Posted 2/7/2010 4:52 PM (GMT -7)   
Thanks to all for your support and insight, it truly is great to be here.

let me just address the UC story, to kind of 'clear her name'. Your all very correct the UC would have been gone with all such surgery. I did forget to mention that she did diagnose it as Crohn's disease after all that, so never the less the disease was still there. I'm sorry sometimes when i get caught up in typing such a large post my mind races so fast as to what all i want to say that i miss details, so that's my fault. So even though it actually was Crohn's disease, it was only acutely in those locations which is why they though UC. But all of that aside she still has become healthy without conventional medicine.

so again i'm not saying that this is the perfect route for anyone or even me for that matter. I don't know yet if it will work for me, but i am optimistic and confident that it will. I'm not trying to bash anyone's beliefs or practices, but everyone has to find what works for them that's all. If conventional medicine is what works then great! But i'm going to try this route and see where it takes me, i will keep posting my progression or lack there of IF necessary. Don't worry i'm not so prideful as to not admit when i'm wrong so IF that day comes i will let all know.

but again thanks to all!!

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 2/9/2010 1:01 PM (GMT -7)   
Thanks Crohnic-Style!  I look forward to hearing your progress.  I too am treating my Crohn's naturally at the start of this diagnosis.  I am thankful that I have a Naturopath as my doctor who has active Crohn's and has never treated it with drugs.  He is also one of the top rated Naturopath's in the Seattle area, so that gives me confidence as well.  Even so, use your own "gut" and judgement for what they want to give you.  I feel some Naturopaths can cross the line and that some of the supplements are not good for you.  BUT, if you have a doctor you trust, go with it.  No one thing works for everyone, and we should all be allowed to try what we feel will be best. 
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Seeing a Naturopath and modifying my diet, so far


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 2/9/2010 1:52 PM (GMT -7)   
Vixen....what did she give your father-in-law for parkinsons? My son has parkinsons and his shaking is getting quite bad. He was
pulled over for drunk driving because the officer seen his head bobbing and thought he was drunk. He said he was on his way
home from work and has parkinsons and was having a bad spell with it.

To All...has anyone tried Colustrum? It's bovine breast milk and from what I hear it's good for Chron's. I read a book by a guy
who was dying from it and it "healed" him. I use it for the immune system and sinus infections. Good luck with the hemopathics.
Personally, I'm off all dr drugs but darvacet. I have arthritis and fibro and treat them with herbs and vitimans and am doing
much better than those wonderful drugs that can kill me (...no flaming). I seen your thread and found it interesting. Godspeed.

Nana Monster

Post Edited By Moderator (MMMNAVY) : 2/9/2010 2:57:46 PM (GMT-7)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/9/2010 1:57 PM (GMT -7)   
Nana Monster, just fyi Crohns is a chronic and "incurable" bowel disease. So this person you talked about was maybe just put in remission as there is no cure.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/9/2010 3:00 PM (GMT -7)   
Dying from the Colustrum (after all this is in part why pasture bred cattle get antibodics) or from the C R O H N S.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 2/9/2010 3:49 PM (GMT -7)   

Nana Monster,

I am so sorry that your son has Parkinson's. I do not know exactly what she gave him, no doubt it was a mixture of vitamins and tissue salts. I will certainly ask her exactly what she gave him-although you do realise that I am risking my sanity here-lol(once on the subject can't shut her up about it) Like I said she didn't cure him of it and I am still in two minds about how it actually manages to work but he was definitely free of all the shaking. Give me a day or two and I will get back to you.


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 2/9/2010 5:12 PM (GMT -7)   
Vixen, Thanks so much. I want to help Cory as much as possible as he doesn't have any health insurance. My Dad died of
parkinsons complications. I know there is so much with the herbals that I don't know but much that I do. My herbal "bible"
is Prescription for Natural Healing. I experiment a lot trying to get my problems under control and had help from a body
builder who had similar problems. Man, did he get me on the right track.
I think the book was called Physician Heal Thyself. It's been a while since I've seen it in my books but when I get a few spare
moments in the coming weeks I'll try to find it. If it's easier my e-mail is in my profile thing. Thanks again.
Nana Monster
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