Is Remicade for life?

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Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 2/7/2010 11:42 AM (GMT -6)   
I have so much going on with this lousy flare I am not sure what I remember correctly.  Is it true that once you start remicade you must stay on it for life or quit with no return?????  

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 2/7/2010 1:15 PM (GMT -6)   
Our doc told my husband that he stays on remicade as long as it works for him - that he recommends only stopping remicade if he has a bad reaction, or has bad side effects, or if it simply stops working. This is because if you stop remicade and then try to re-introduce it, your body could have developed antibodies to remicade, and cause you to have a pretty bad reaction. So, yes, if you take remicade, you should take it for as long as it works safely for you, and if you stop, you may not be able to take it again.

Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 2/7/2010 3:31 PM (GMT -6)   
I have had 3 Remicade infusions. They were over the course of about 18 months to 2 years. This was when Remicade first came out and before they really established the dosing schedule. My doctors have told me that while they are afraid to try Remicade again because I may have anti bodies, it isn't a forgone conclusion that I couldn't have it. In fact I was set to do the loading dosing a few years ago and my doctor decided to do more testing before the Remicade and cancelled it at the last minute.

So I guess what I'm saying is that it might be dependent on the doctor and not a hard and fast rule.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 2/7/2010 4:32 PM (GMT -6)   
Hi, once you are on remicade you are on the drug as long is it works for you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.

Regular Member

Date Joined Jan 2008
Total Posts : 37
   Posted 2/7/2010 7:10 PM (GMT -6)   
I was on Remicade for 2 years and had to stop for 6 months (which was ok because I was more or less in remission at the time).  A really bad flare ensued and i was started back on Remicade - my doctor was not concerned with the short hiatus.  It is true that you may develop antibodies if you stop and are re-introduced but that does not mean you cannot start again.  However, I personally would prefer to continue my treatment as long as it continues to work for me. 

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 2/7/2010 7:36 PM (GMT -6)   
Well for some it works for a few years but I think at some point you will get a reaction or it will stop working for you :(

It depends on how lucky you are.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Humira, Asacol, Cipralex and Cerazette.
Past medication Remicade, Imuran
My wonderful dogs :) ~ ~

Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 2/7/2010 10:46 PM (GMT -6)   
Thanks everyone. I think I understand it now

Forum Moderator

Date Joined Feb 2003
Total Posts : 13363
   Posted 2/8/2010 1:09 AM (GMT -6)   
Fun Guy I have been on & off Remicade three different times with no problem. I did have a reaction on the initial 3rd dose and was put on pre-meds which warded off any potential reaction. If at some point you stop Remicade for whatever reason and decide to resume it, please ask your dr for pre-meds and you should be fine.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Regular Member

Date Joined May 2009
Total Posts : 173
   Posted 2/8/2010 8:51 AM (GMT -6)   
I have my infusions with a friend who was on it for a year in 1999, went off it, and started again in 2009 with no issues. It worked great for him in 1999 but this time it's been a much slower improvement, but improvement none the less. Neither of us has had any infusion reactions to date.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......

Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 2/8/2010 11:38 AM (GMT -6)   
This is encouraging. Well I'm off to pick up flagy and buenoside (can never spell that) to see if they work before I go to remicade. Wish me some luck it will not be easy to get to the pharmacy with this flare.

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