Fistula from bowel to bowel

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Miss_82
Regular Member


Date Joined Jul 2006
Total Posts : 73
   Posted 2/8/2010 11:07 AM (GMT -7)   
I had a question for those who might have had a fistula from their small bowel to another part of their bowel.
 
Can it cause inflammation and pain in the upper middle part of their stomach? And which medication should be taken for that? The dr. said it doesn't cause pain but i'm not so sure about it.
 
Also, i think 6mp could cause that pain also right? Which leads to vomiting. But it does not necessarily mean an obstruction?
 
Any input is appreciated. Thank you!
27 years old
CD for 20 years
Bowel resection in Dec. 2006
Pentasa 4000mg


Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 2/8/2010 12:30 PM (GMT -7)   
I have heard of this type of internal fistula occurring in people post surgery. With fistula running across two sections of the bowels, you can try remicade if you haven't yet, and also there might be surgical options that are out there.

You might want to check out this doctor, here is regarding as the top guy in CD surgery issues:

Fabrizio Michelassi,

http://www.weillcornell.org/michelassi/index.html

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/8/2010 2:50 PM (GMT -7)   
I have that pain and I have a fistula between my ileum and ascending colon, but I think the pain might be from an abscess that I have in that area. You might want to look into it. Also, Cipro and Flagyl have cleared up the pain entirely for me, but I still need surgery. Hope this helps a bit.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 2/8/2010 10:32 PM (GMT -7)   
had a few... and your dr is a dumb a.. of course it causes pain, you get the inflamation going to get a fistula started in the first place, then bore a whole into the next loop of bowel. you get a piece of food caught in that hole or tube and it hurts like heck. the only real cure i found was surgical repair. and even that does not work 100%
randynoguts 



     http://www.geocities.com/randynogutsweb/


Miss_82
Regular Member


Date Joined Jul 2006
Total Posts : 73
   Posted 2/9/2010 1:37 PM (GMT -7)   

Thanks a lot for the response guys.

It's for my younger brother. He was also diagnosed with Crohn's 6 months ago. Except that his situation is more serious than mine. He's in constant pain and predisone is not working. He's been taking purinethol for the past 2 months without much success so far.

His dr. wants to start him on remicade now but i think that should be the last option. I asked him if the fiscula could cause pain and he said it doesn't. I can't quite remember if mine was causing pain but mine was from the bowel to the bladder and i had abcesses. My brother doesn't abcesses.

He has an an appointment tomorrow to get him started on remicade but i'm thinking if the should try out cipro and flagyl before that.

Should he go along with it before trying out anything else?

Thanks a lot!!
27 years old
CD for 20 years
Bowel resection in Dec. 2006
Pentasa 4000mg


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/9/2010 2:02 PM (GMT -7)   
Remicade is one of the best meds to heal fistula's. I think I would have him try it.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

joy47
Regular Member


Date Joined Feb 2010
Total Posts : 75
   Posted 2/17/2010 9:15 AM (GMT -7)   
I' m joy47, Ive had crohns since 16 years old. Im now 47.cipro is a nasty antibotic. For fistulas flagyl is a great drug for a while. It does have nasty side effects in larger doses and longer duration. Mine is where the sun dont shine. Im on Humira now. Had to stop flagyl. If its in the butt area warmsize baths are the very best. I have had 3 bowell resections among other complications. But you can give it a run for the money. Just watch for the depression. And watch pain meds. They can be good but they can also hinder your thinking. And oh yes fistulas hurt when they are ready to drain. Then its not so bad untill it starts over again. Hope it helps.

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 2/17/2010 10:21 AM (GMT -7)   
Hi, I went on Remicade to help close 2 fistula's both are through the skin on my stomach the littliest one closed after having my first dose of remicade the bigger one didn't have a chance as I had a reaction on the second dose, but i feel it may of worked if i could of stayed on it. I was then given Flagyl and that was a nightmare felt constantly sick and tired on it i couldn't finish the course it was that bad.your brother would be better going with the remicade. Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/17/2010 3:13 PM (GMT -7)   
I just thought I would post on here. I have a fistula from bowel to bowel. Surgery is the only option for me because I have fluid collected around my fistula or something. I wasn't exactly 100% sure of his explanation, but the doctor told me that if I was to go on Remicade to close my fistula, the fluid pocket would burst and I would get peritontitis, which is why I can only be on Entocort/Cipro/Flagyl. He said that it wouldn't be smart for me to be on Pred, Imuran, 6-MP or any biologics right now. Just some food for thought, might be something to talk to your doctor about. I'm not sure if this is normal or if I have special circumstances, I know that my condition is quite severe right now so it may not be the case for anyone, but I would be very careful. From what I know, Remicade is really best left for fistulas going to your skin.

By the way, Cipro and Flagyl have worked wonders for me. I haven't had any bad side effects, other than D from the two, and I've been on them for a month and a half so far.

Miss_82
Regular Member


Date Joined Jul 2006
Total Posts : 73
   Posted 2/17/2010 8:50 PM (GMT -7)   
I was told cipro and flagyl are effective only for fistulas linking to the anal or vaginal parts, or the bladder. Is this true? Dr. said it wouldn't do anything for my brother.
27 years old
CD for 20 years
Bowel resection in Dec. 2006
Pentasa 4000mg


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/17/2010 10:21 PM (GMT -7)   
Not sure, my pain has been entirely gone though, but I'm not exactly sure what was causing my pain to begin with, haha. I know that for me, they're doing something, but I don't think it's closing my fistula because my doctor said that he doesn't want it to close for the reasons I mentioned above.
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