update from surgery

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mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 380
   Posted 2/9/2010 7:03 PM (GMT -7)   
Had surgery on Jan 19th.  good news was as follows:
1) only had to remove 8 inches of small intestines and 4 inches of colon.  3 strictures in a row
 
2)my gut malrotation was a blessing in that the strictures were right were he made the incision. the surgeon did not need to hunt for the problems.  as he put it, they just flopped right out of my body.
 
3)open surgery but no sitches or staples on the outside. and only needed a 6 inch incision!!
 
4) had epidural- what a blessing
 
 released on day 5
 
now the bad.
 
1) on day 3 had major bleeding from the rectum. hemoglobin dropped to 8.  next day came back up to 8.4 so felt like the bleeding stopped
 
2) recovery at home was going well, very little pain. then on day 10, MAJOR bleeding again.  had wife drive me to ER in  a ice/snow storm.  I was readmitted to hospital for 2 days to monitor bleeding.  bleeding stopped.  hemoglobin dropped to 8 again and then came back up to 8.6 when they released me
 
3) that was 10 days ago.  hemoglobin is now 9.4.  i am having blood work done every 5 days to check progress.  they do not think i will get to 13 any time soon, bu they do what me above 11.
 
4) i get verry tired and still get some nausa due to anemia.  i am taking iron pills to help
 
The good news is i saw my GI doctor who was very pleased with the surgery.  he said the surgeon's report said there we no othe signs of chron's in  my tract.  Once I gain some weight back and get my hemoglobin numbers up, he will start me on 6pm to help keep things in remission as long as possible.  he feels we made the right decision to do surgery.  He does have concerns abot my blood levels and why it is taking some long to get numbers back up.  Any ideas from the group????
 
thanks for everyone's thoughts.  BTW, i am a 47 yr old male who has has CD for 13 yrs.  the last 6 months have been bad. i wish i did the surgery when i was in hospital with blockage last fall.  i spent 6 months trying to not have surgery when it is really the best thing for me given where the strictures were located.  My advice to all is be fully informed when talking to your dr. 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/10/2010 7:29 AM (GMT -7)   
I am glad that your surgery went well, but really sorry to hear about the blood loss. Hopefully, they can get things cleared up soon and you can enjoy a long long remission. Glad to hear you are being smart and starting the 6mp to help you to stay in remission. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/10/2010 8:17 AM (GMT -7)   
Good luck!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 2/10/2010 9:13 AM (GMT -7)   
I was very anemic, got what is called anemia from inflammation, in 1970 my first surgery. I was very anemic, and recieved 4 pints of blood, which they didn't have blood screening, so I got hep.c from that blood. luckily I'm not a drinker of alcohol, so no issues with my liver, had i been a drinker, probably would be dead from liver disease.

artist guy


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 2/11/2010 7:46 AM (GMT -7)   
So glad the surgery went well, wishing you the very best of health for the future. Bev x smilewinkgrin
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."

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