c diff and leg muscle pain?

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heatmiser
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Date Joined May 2003
Total Posts : 1671
   Posted 2/11/2010 12:04 PM (GMT -7)   
For those who've had c diff, do you remember having any leg muscle pain? I had c diff 4 months ago and do remember getting leg pain but my doc said it was the prednisone. I'm not on prednisone now and am having diarrhea and leg aches. My c diff test came back negative but I'm not sure I believe it. I did have a virus that my hubby also had, but the fever from that has gone. My leg aches actually started before the fevers anyway. I'm just trying to connect the dots between my symptoms because my doc is basically saying she doesn't know what's going on and if it gets worse to go to the ER. I do sometimes detect a certain odor that I remember from my c diff and wonder if it's the same odor they say c diff has. I'm going to have blood work done today. Even though I have a lot of diarrhea, it's not crampy like last time. I'm hoping that's because it's early in the game still.

If this is just a flare I don't know why the doc isn't suggesting pred or something.

Thanks for your help.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/11/2010 12:15 PM (GMT -7)   
Could the leg cramps possibly be from dehydration? I will tell you my healthy husband got a bug and was better in a day or two, but I got it and I was sick for about a week. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 2/11/2010 12:23 PM (GMT -7)   
Well, I have been drinking and eating but I suppose I'm losing extra fluids with the D. I'm drinking a cup of gatorade each day but maybe I need more. Isn't that what they recommend when you lose those electrolytes due to D? Actually it's not cramps, it's more like really sore calf muscles.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet


CROHNSPT1993
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 2/11/2010 12:32 PM (GMT -7)   
I HAD C-DIFF FOR QUITE A WHILE A FEW YEARS AGO BUT I DONT RECALL THAT CAUSING ME ANY MUSCLE ACHES OR LEG PAIN. BECAUSE I DO HAVE PROBLEMS WITH MY RT LEG DUE TO CROHNS. YOU SAID YOU JUST STOPPED TAKING PREDNISONE, THAT COULD BE ONE REASON YOUR LEG MUSCLES HURT. THE WITHDRAWAL SYMPTOMS FROM STEROIDS (PREDNISONE) CAN BE BRUTAL DEPENDING ON HOW LONG YOU WERE ON THEM. YOUR LEG MAY BE REACTING TO SOMETHING ELSE GOING ON INSIDE THERE DUE TO YOUR CONDITION. DOES YOUR LEG SWELL? THERE ARE SO MANY STRANGE THINGS LINKED TO OUR DISEASE THAT THE DOCTORS ARENT EVEN FAMILIAR WITH THEM YET.
DIAGNOSED WITH CROHN'S DISEASE AT AGE 19. CURRENTLY 33.
I HAVE ILEITIS CROHN'S DISEASE.
MULTIPLE CT GUIDED ABSCESS DRAINS, MAJOR DEBRIDEMENT SURGERY FOR LARGE ABSCESS.
CURRENTLY DEALING WITH A ENTEROCUTANEOUS FISTULA AND PENDING SURGERY (ILEOCECECTOMY).
MULTIPLE BLOOD TRANSFUSIONS. PICC LINE ANTIBIOTICS.
WAITING TO START REMICADE AS U KNOW U HAVE TO BE INFECTION FREE TO START REMICADE. I HAVENT BEEN INFECTION FREE IN YEARS. CURRENTLY ON IMURAN, ZOFRAN, ERTAPENEM (IV ANTIBIOTIC), PAIN MEDS, SERTRALINE, MULTIVITAMIN, AND IRON TABLETS.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/11/2010 1:00 PM (GMT -7)   
Try eating some banana's. They have potassium in them and that might help. I drink Gatorade daily. Some poo poo it as having too much sugar, but my GI says they are fine for me to drink. When ill he tells me to sip it every 5 minutes, so a cup a day is not enough. You might also try Pedialyte it is good for replacing electrolytes too.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 2/11/2010 1:05 PM (GMT -7)   
I did have more arthritis pain after tapering off the pred, but this is a new pain. It started after the D by several days, but maybe a couple of days before I noticed a fever. Now it's lingering despite my fever being gone. I am fortunately taking darvocet or I don't think I'd be able to walk much. No swelling, and definitely muscle rather than joint pain.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet


CROHNSPT1993
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 2/11/2010 5:56 PM (GMT -7)   
PEDIALYTE IS THE BEST WAY TO REPLENISH YOUR ELECTROLYTES. HOPE YOU FEEL BETTER....
DIAGNOSED WITH CROHN'S DISEASE AT AGE 19. CURRENTLY 33.
I HAVE ILEITIS CROHN'S DISEASE.
MULTIPLE CT GUIDED ABSCESS DRAINS, MAJOR DEBRIDEMENT SURGERY FOR LARGE ABSCESS.
CURRENTLY DEALING WITH A ENTEROCUTANEOUS FISTULA AND PENDING SURGERY (ILEOCECECTOMY).
MULTIPLE BLOOD TRANSFUSIONS. PICC LINE ANTIBIOTICS.
WAITING TO START REMICADE AS U KNOW U HAVE TO BE INFECTION FREE TO START REMICADE. I HAVENT BEEN INFECTION FREE IN YEARS. CURRENTLY ON IMURAN, ZOFRAN, ERTAPENEM (IV ANTIBIOTIC), PAIN MEDS, SERTRALINE, MULTIVITAMIN, AND IRON TABLETS.
 


sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 2/11/2010 8:14 PM (GMT -7)   
I had Cdiff for along time.  During which I was given prednisone after tapering, I developed severe leg pain.  One dr says its steroid withdrawals.  But here we are 8 months after being off pred and antibiotics for Cdiff and i still have severe leg pain.  I've seen 2 rheumatologists.  The other one said that it was inflammation in the legs related to crohns.  They dont know why but right after the leg pain started my Creactive protein levels shot up.  I never could connect the dots and believe me I've been trying.  Whenever I would go to the ER, they wouldn't know what to do with me and wound up giving me pain meds to get through it so I wouldn't be screaming crying.  If you have any luck finding out please let me know.  Good luck!
Current meds:  Remicade and probiotics
Tried:  Prednisone, lialda, antibiotics all failed attempts.
 


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 2/11/2010 9:14 PM (GMT -7)   
My husband had C-diff, and he didn't have any leg pain associated with it. However, he did get leg cramps almost nightly when he was on steroids. Muscle cramps and spasms are a symptom of dehydration. My husband finds gatorade too hard on his system - too much sugar; instead he drinks pedialyte. He's been having some diarrhea associated with what they believe is a stomach flu, and pedialyte is helping keep him hydrated. When he's having diarrhea, he pretty much only drinks pedialyte. I think a glass a day is not enough at all.

I hope you start feeling better soon.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 2/12/2010 8:27 AM (GMT -7)   
This happened to me too ...major leg pain! It felt like my tendon's were ripping off the bone or muscle or something!? It got so bad I couldn't walk without limping. Just wondering what med's everybody was on for the C-diff. I was on levaquin, flagyl...and some heavy duty antibiodicts. I just want to say that this happened everytime after I had these combination of med's and everytime I had C-diff Dr. prescribed the same thing! I personally think it's something to do with the combo of meds. Yes, I did have leg and muscle pain after tappering off pred but not like this pain. After talking to my Dr. about this pain..they just poo pood it. Eventually, it did get better but it took months. I have decided to not take levaquin again. I've read some stuff on it and this is a side-effect.
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 2/12/2010 10:25 AM (GMT -7)   
Flowery...I took flagyl, cipro and vancomycin when I had c-diff. But it's been 4 months and the pain just showed up after this current flare of diarrhea when I developed fevers. The fevers have been gone a few days but the body pain continues and I think it may be worsening. I am noticing swelling of a finger joint which probably would be something to do with a flareup. But the muscle pain I don't understand. It's been at least 2 or 3 months since I tapered my pred. I do have worse pain from that as well. I know about 8 months ago I was on flagyl and cipro after a bout of food poisoning (I think) but I don't remember any leg pain then.

Thanks everyone for your replies. Sickofitall, I will let you know if my docs figure it out. At this point I don't get any impression that they care. I feel like I'm becoming too difficult for them to figure out so they just say, "if it gets any worse go to the ER."
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 2/12/2010 11:01 AM (GMT -7)   
Have they checked your inflammation markers? If it is high, they should treat it. My husband had some major arthritis recently, where his sacroileal joint, his neck and his knee just got terribly inflamed and he had to have 2 steroid injections into his knee, and be put on 40 mgs of pred, and move his remicade infusions to every 6 weeks. Just absolutely horrible. We saw a rheumatologist, who thinks that he had either crohn's related inflammatory arthritis, or reactive arthritis (either because of the c-diff infection or because of the flu shot). Either way, it took some doing to get him back into shape. He's now on 5 mgs of pred every other day, and hopefully back to remicade every 8 weeks - and we're hoping this arthritis was a one time deal.

I suggest seeing a rheumatologist for all the body pain. I think gastroenterologists are more puzzled by the body pains, especially if you have no tummy trouble at the same time. Our GI insists that my husband's crohn's was in control and there was some other cause for his arthritis, because he had no tummy issues at all. If you have really bad pain, and you just recovered from some kind of infection, you too could have some kind of reactive arthritis - I think a rheumatologist will be able to help you more than the GI. So, get in to see a rheumy as quick as you can.

I know it sucks to see another doctor, but hopefully this one will help.

Hope you feel better soon.
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


cdmom
Regular Member


Date Joined Dec 2006
Total Posts : 25
   Posted 10/24/2015 8:58 AM (GMT -7)   
I realize this is an old thread but I'm hoping someone will see it and weigh in. My son with Crohns had c diff for the third time late July. They are doing a slow wean of vancomycin this time. about six weeks ago he had recurring problems. CDiff is negative so it looks like a Crohns flare. He was put on prednisone and Humira increased to weekly. A week ago he started feeling fantastic GI wise. Best he's felt all year. Friday morning he woke up with severe leg pain strong enough to drive us to the ER at our local hospital(GI does not practice here). Infectious disease doctor, family doctor and rheumatologist have seen him. X-rays ultrasound negative for problems. Waiting on MRi results but so far rheumatologist says she thinks it's pain syndrome and treatment is anti depressants and muscle relaxants. Will check with the GI on Monday for her thoughts but I wondered if anyone had tried these medications or got a resolution except time fixing it.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 2640
   Posted 10/24/2015 12:13 PM (GMT -7)   
Has your GI brought up doing a fecal matter transplant? I had one last year after 8 bouts of c. diff., and it had amazing results.

Anyway, I was diagnosed with fibromyalgia after being super sick for a long time. The leg pain was so bad I could barely get down the stairs. Did the rheumy say anything? Another option is to test for neuropathy, or nerve damage, which can occasionally occur after being sick for long periods of time.
CD, gastroparesis, fibro, arthritis, GERD

Remicade

"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong." 2 Cor 12

Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 10/25/2015 4:00 AM (GMT -7)   
I had c.diff back in April.

I am just now starting to feel better.

Has he been taking any kind of multivitamin through this?

Magnesium and Potassium are especially important. Your doctor can give a powerful prescription potassium supplement. Magnesium is very hard to replenish in the body, and the supplements will cause diarreha initially. If you get some time google magnesium deficiency. The doctors will only check the magnesium level in his blood which only contains 1% of the body's total magnesium, and is a poor indicator of a true magnesium level.

I have had amazing results with remag.

rnareset.com/

cdmom
Regular Member


Date Joined Dec 2006
Total Posts : 25
   Posted 10/25/2015 2:11 PM (GMT -7)   
Homeboy, it turns out his multi-vite does not have any potassium or magnesium. Wow I'm kind of surprised so thanks for the suggestion. His diet has been kind of restricted of things that would contain magnesium, and even potassium to some extent, so he may well be deficient in both. I'll head to the drugstore to see if I can find a source right away. If not I'll ask the Gi doc since I know it comes in prescription strength.

Scifigal, the fecal transplant is on my list to ask about. It looks like his hospital does it, and failing antibiotics three times may be the threshold. This is his third round. Of course I hope he doesn't get a fourth round but I'm glad to hear it worked for you. Did it help the Crohns in any way?

He did get out of the hospital late yesterday. All tests came back normal. He says the pain is improved and restricted to one leg.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 2640
   Posted 10/26/2015 6:28 AM (GMT -7)   
When I got it, I literally had so much going on with my body and it all resolved about the same time. It helped it than that c. diff. didn't keep causing Crohn's flares. But at the same time, we discovered that Remicade was running out at about 6 weeks, so we doubled the dose and moved the frequency to six weeks. These two things combined stopped the abscesses from forming, which caused sepsis. I also stopped breastfeeding (my daughter was about 10 months old) and that extra strength helped as well. And my pancreatitis calmed down because the rest of my body calmed down. So it's hard to tell what was the FMT and what was getting better, but it definitely helped Crohn's in that I stopped flaring because of c. diff., if that makes sense. It was so new when I got it, and I was the first person with Crohn's that my GI's office had also treated, and there still isn't much case study about it. I definitely don't think it can hurt. I've had really mini flares since then, but it's usually due to getting a bug, and typically resolves itself as opposed to needing steroids several times a year. I take Florastor every day, and if I need antibiotics, I take 4 a day.
CD, gastroparesis, fibro, arthritis, GERD

Remicade

"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong." 2 Cor 12
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