Remicade and Imuran

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sickofitall
Regular Member


Date Joined May 2009
Total Posts : 226
   Posted 2/11/2010 11:07 PM (GMT -6)   
Hi crohnies,
 
I've been on Remicade since July 2009.  Well the remicade has not been lasting the whole 8 weeks. So we tried doubling the dosage, that helped only lasted to week 6.  So now we are going back down and trying it every 6 weeks.  He also gave me imuran 50mgs.  He said that the hopefully Imuran will work and he can take me off the remicade in time.  Which would be nice, but in the mean time I have to be on both.  I was also on sulfasalazine for my leg pain (some sort of inflammation in my legs).  Well I couldn't take the GI symptoms that came with Sulfa so I stopped.  In fact almost anything I've tried in pill form makes me sick, D, gas, bloating, its not pretty.  Now I'm concerned about starting Imuran.  I know my stomach is very sensitive.  So far the only thing that has worked is Remicade.  I almost think because it doesn't go through the digestive system so I can tolerate it.  ?? Just a thought.  Also imuran and remicade together I have heard are dangerous, lowering immune system even more.  Anybody have thoughts about this and imuran side effects??? Thanks for your help!
Current meds:  Remicade and probiotics
Tried:  Prednisone, lialda, antibiotics all failed attempts.
 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 6818
   Posted 2/11/2010 11:30 PM (GMT -6)   
I started Remicade and Imuran on the same day 6 years ago. Remicade lost its effectiveness after 2.5 years and I stopped that. I am still on Imuran. Remicade put my guts into remission and I attribute the Imuran to keeping them that way. Take that into consideration that I have mild to moderate CD so my experience might be totally unlike yours.

Imuran can cause nausea. I have to take mine with a meal. Others here take their Imuran at night so the nausea is not a problem for them. Some feel a degree of fatigue when starting Imuran. I never had that issue.

Hope the Imuran does the trick for you!
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/12/2010 3:38 AM (GMT -6)   
Hi I also was on remicade and imuran for all over 5 years.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Djin
Regular Member


Date Joined Jan 2010
Total Posts : 262
   Posted 2/12/2010 2:25 PM (GMT -6)   
Hi... the introduction of Imuran helped the efect of Remicade. Got me in a remission.

It caused some nausea in the first days, only.

My opinion? Go ahead.
 
Brazilian sick fellow...
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa and Imuran
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 837
   Posted 2/15/2010 1:11 PM (GMT -6)   
My daughter is in a similar boat-Remi is losing effectiveness. We are going back to 6 weeks and up a bit on the dose, but it is unknown whether this will do the trick. Have been on 6mp since the beginning, but lowered the does to 50mgs--now back up to 75mg. There have never been many obvious side affects of 6mp for her-we blamed a bit of hair loss on it, but we also have never been sure it worked. Only Remi has done the trick, and now it seems to be slipping away.
Daughter, 16 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Cortifoam enemas, Rowasa,Prevacid, Flagyl, Prednisone- 50 mg to 0, 4 major flares '08-09.Hospital 4 x.
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal W/ Remi. Remission. 4-09....


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 2/15/2010 5:20 PM (GMT -6)   
Remicade + imuran is proven to be effective. BUT, ALL lymphoma cases were IMURAN + Remicade together. Yet, doctors still don't know why. That's just the case. Ask yourself if the risks are worth the benefit.

Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 2/15/2010 5:25 PM (GMT -6)   
I am taking both now and I think they have help me quite a bit.
I have been on since March of '09.
I still have some bad days, rectal pain - kinda like internal hemmroids.
and I have about 10-15 BM's a day, depending what I eat, although, I have most of my colon gone so....

I do get a bit of nausea but when I do I take Natural Source Gravol and it works great!
And yes, I also take many natural vitemans and always with some kind of food like bread or a light snack.
Yes, it does lower your immune system, so be causious of that, and eat well and take many vitemans - that's worked for me.

Hope this helps! Good Luck!
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun
Next test: Upper GI scheduled Feb. 25/2010

In my next life: I want to be a big beautiful oak tree ... so I can live off of just sunshine and water.


sweetpea1984
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/15/2010 11:11 PM (GMT -6)   
Im having a hard time paying my copay for Remicade.. does anyone know any assistance programs other than remistart..... I can't get remistart because of my insurance... Any help is appreciated! Thanks you so much!

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 226
   Posted 2/17/2010 7:36 PM (GMT -6)   
Thanks for all ur replies. I just had my infusion today and started Imuran. We'll see if it works! The pain that comes back when my infusion wears off is killer. So I'm willing to give it a try! Keeping my fingers crossed :)
Current meds:  Remicade and probiotics
Tried:  Prednisone, lialda, antibiotics all failed attempts.
 


airikah
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/2/2010 3:50 PM (GMT -6)   
For all of you who are on Remicade, has anyone ever suggested a Picc Line (permanent tube in arm used for infusion).
I am about to start Remicade (with Imuran) and was told I would have to get one, I am freaking out because I won't be able to swim and will have this nasty tube coming out of my arm. If anyone can give me some advice or help.

I have no idea what to expect from treatments and I am really nervous, does the infusion hurt? Has it caused anyone to loose hair? ( I was told it was a possibility) Any words of wisdom would be appreciated!

:) Thanks!
Have Had Crohn's: 4 years
Currently On: Imuran and Pantaloc and about to start Remicade
Tried: Prednisone, Nexium

Age: 23 Female- Ontario, Canada


airikah
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/2/2010 3:55 PM (GMT -6)   
For sweetpea1984:

I'm not sure what country you are located in. But for Canadians, Trillium cover's it. Don't know if that is applicable to you, but if you are Canada just thought I'd let you know!
Have Had Crohn's: 4 years
Currently On: Imuran and Pantaloc and about to start Remicade
Tried: Prednisone, Nexium

Age: 23 Female- Ontario, Canada


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/2/2010 9:54 PM (GMT -6)   
Hi! Just wanted to pipe in with some positive words on imuran. I have a pretty sensitive stomach too in terms of oral medications and was wary of imuran as I saw so many get nausea with it. I haven't experienced any of that, or any side effects at all really either than some hair thinning but whose to say that isn't from the steroids or malabsorption. Anyways! Good luck with it, it's working very well for me so far.
Also I do take it at night just before I go to sleep to lessen my chances of nausea.
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 3/3/2010 7:32 AM (GMT -6)   
My Doctor wont even think of the possibility of putting me on remicade while on imuran for that reason, he doesnt feel its worth the risk since if you get that one type of lymphoma you are basically done.
 
debilitated said...
Remicade + imuran is proven to be effective. BUT, ALL lymphoma cases were IMURAN + Remicade together. Yet, doctors still don't know why. That's just the case. Ask yourself if the risks are worth the benefit.

 

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