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Regular Member

Date Joined Feb 2010
Total Posts : 21
   Posted 2/12/2010 7:25 PM (GMT -6)   

Hi, my name is Samantha and I have been diagnosed with Crohn's disease for about two years now. I am currently in a severe flare up, as I have been for the last 5-6 years. I have taken prednisone, imuran/entocort, pentasa, maybe more, and most recently I was administered remicade. I need a bowel resection on 11cm of my terminal ileum. I graduated college last May, and have been working in the food service industry since. I majored in Sociology and Women's Studies, and I have had trouble finding work in the non-profit field in this economy. I am also really scared of working somewhere other than a restaurant because my symptoms are so bad. When I am especially sick in the restaurant world I can just get my shift covered. Because of my current job situation I do not health insurance. When I was diagnosed with Crohn’s I was dropped from my father’s plan. In Colorado state law states that you can be on parents insurance until you are 25 if you meet certain criteria. I met those criteria. However, once I was diagnosed, his insurance dropped me because they are based out of another state and did not recognize Colorado laws.

Needless to say now, I am from Colorado. Born and raised. I have never lived anywhere else; however I have done some traveling. I’ve traveled some of Europe, and I climbed Mt. Kilimanjaro in Africa, as well as traveled through Africa. I used to ski, swim, hike, run, etc. And with all of that personal introduction out of the way, I will share my remicade experience. Please feel free to read, however, it is lengthy. Be warned!



And my remicade fiasco... After my third infusion, about a week before my fourth infusion (December 31, 2009) I noticed a rash forming on my palms. I asked my doctor about it, and was told to have my scheduled infusion. Within two weeks of that infusion I had psoriasis covering my entire body. It started with my palms and bottom of my feet, presented as large open lesions on my arms, legs, trunk, groin, literally all over my body (in between my fingers and toes). It then started on my scalp. I have large scales all over my head and am experiencing some pretty major hair loss. I saw my doctor about a week into the outbreak, was tested for some STDs and pretty much sent on my way.

Two weeks later I was told I could not work anymore because of how I looked, despite the fact that the only thing you could see was my hands (I work in a restaurant), and was calling my doctor's office every half an hour. I finally ended up in the emergency room, was treated as a burn victim would be, because no one could diagnose me. I was wrapped in Vaseline soaked bandages, given an antibiotic (because the remicade made me high risk for infection and I had open sores all over my body) prescribed a pain killer and sent on my way, without a diagnosis.

Two days later I was finally seen by the dermatologist that my doctor had referred me too over two weeks prior. He diagnosed me on the spot as anti tnf-x drug induced psoriasis, printed out a study for my doctor (there have been 18 other cases reported in people with IBD and remicade, 120 reported cases overall), prescribed me three topical steroids and sent me on my way. (He was actually rather rude, like I was an idiot for not being able to recognize what was on my body, which every doctor in my GI clinic and every doctor working an ER were unable to diagnose as well...)

The next doctor's appointment had every doctor in to see me/examine me again. (I don't actually mind, I think the doctors should be able to recognize this, even if it is really really rare.) Some pictures were taken, (I have been taking my own through this whole process) and I was prescribed prednisone. I recently went back to work, after a two week absence. I am starting to control some symptoms with topical steroids (like my palms) while others (like my scalp) are only getting worse. I am out close to fifteen hundred dollars in doctor’s appointments, prescriptions, and missed work. Needless to say, I will not be taking remicade again. The doctors think it was a class drug reaction, which permanently rules out humira as well. I am actually close to quitting medicine in general. My quality of life was better when I just had Crohns. Now I have severe psoriasis as well, along with the no health insurance or money. I literally didn’t leave my apartment in over a week. I live alone.


If you read the whole rant, I am very impressed. I would like any company I can get; any shared experience, any diet recommendations, or general chitchat.  I didn’t go into details about the insurance woes (when I had insurance, that is), the multiple invasive procedures, the frustration at been told over and over that nothing was wrong with me while my body attacked itself, (both with the Crohn’s symptoms and the psoriasis), the vacations ruined, the relationships lost, the humiliation. I would love to discuss any and all of those things with anyone that is interested, however I chose to focus on the remicade because it’s the most current. And because it’s made me sad. And I am even more disabled now than I was in the first place. And because my quality of life is really really low right now, and although I have supportive and loving friends and family, unless you have this disease, it’s very hard to understand. Thank you for reading. I am here for any conversations there may be. Nothing is off limits.




Post Edited By Moderator (Nanners) : 2/13/2010 9:07:33 AM (GMT-7)

Regular Member

Date Joined Feb 2010
Total Posts : 21
   Posted 2/12/2010 7:31 PM (GMT -6)   
And I also just noticed that I spelled Crohn's disease wrong the entire submission, didn't capitalize a single drug, and basically didn't read my own work. I apologize if that was unbearable to read.

New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 2/12/2010 7:33 PM (GMT -6)   
Hi Sam! I read your whole post and I must say: Bravo! You have experienced a lot and you seem to be handling it all pretty well. I do not have much to offer by way of making you feel any better. I was diagnosed in 2006 with Crohn's and had a surgery to remove my terminal ilium and some of my large intestine as well. That is the history of my story. I was diagnosed and fixed all in the same period of time. I just felt compelled to reply to your post and to let you know that you inspire me. Your strength is a motivator to me that I can make it through just about anything. I wish you long lasting health!

Regular Member

Date Joined Dec 2009
Total Posts : 70
   Posted 2/12/2010 7:44 PM (GMT -6)   
Hey, there Sam I am sorry that you are having to go through this! It all seems so stressful, I wish that I could help. I can lend an ear and a long distance shoulder, and I am pretty good at hugs... ;)

I live in northern Michigan. I was Dx Oct 2008, after 3+ years of symptoms, I have been on Pentasa and Entocort, neither of which seem to help all that much.

It seems like you have done and seen a lot, bet you have some good stories. I agree with Crohniac, you seem to be handeling all of this very well and I am glad that you have a support system, and we are all here to talk and listen, so just shout out!

As for the spelling I will forgive yours if you forgive mine....lol
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj

Regular Member

Date Joined Feb 2010
Total Posts : 21
   Posted 2/12/2010 7:58 PM (GMT -6)   
Crohniac- How did you feel after surgery? Was it worth it? I need surgery that sounds similar to what you describing but because I don't have health insurance, I can't get it right now. I am going to some pretty extereme measures to get it funded, and I would love some feedback on you felt/feel. Thank you for your reply. I feel really weak, it helps to hear that other's think I sound strong :)

jesse's_girl- Thank you for the forgivness on my awful spelling and grammer. I hope that forgiveness extends to my total lack of knowledge on how his site works. (AKA I didn't know how to reply to posts specfically, hence a reply to responds to two posts...) I also didn't have any success with Pentasa or Entocort. I am running out of options, however, because now that I ruled out Remicade and Humira, there isn't much left to try but surgery. Which I can't afford. And I do have some great stories! Undiagnosed (but full flare up) while stuck on a mountain in Africa. After that, I knew I could do anything lol. It's funny-ish now, at the time I wanted to DIE!!! Thanks for your response!

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 2/12/2010 8:06 PM (GMT -6)   
Wow. "Fiasco" doesn't even begin to describe what you've been through.

I don't have much experience with psoriasis so can't offer any words of wisdom, but I can share how sad I am that you've been through so much, and how angry I am about your doctors' incompetence.

I'm glad you've joined our online community and am looking forward to getting to know you better.


Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Regular Member

Date Joined Feb 2010
Total Posts : 21
   Posted 2/12/2010 8:13 PM (GMT -6)   
Thanks Ivy! I am angry with my doctor's as well. I am honestly considering trying to treat myself homepathically because my life now is so much worse than before I went to doctors! I am angry as well that I was suffering so much and was totally and utterly ignored until I landed in the emergency room. And I was being ignored by the very same doctors that gave me the Remicade!!! But I am also trying to get into a better place, because stress makes psorasis and my Crohn's worse. Very viscious little cycle. Thank you for the welcome, I think it's about time I got into some sort of community of others with Crohn's. :)

Everything in moderation, be thankful everyday, and be the most honest I can be. If I can look in the mirror at the end of the day and say I have done these things, I am happy.
Drugs I have tried: Pentasa, Entocort/Imuran, Prednisone, Remicade
Drugs I am on: None for Crohn's, Predisone for drug induced Psorasis
What I need: A bowel resection

artist guy
Veteran Member

Date Joined Jan 2010
Total Posts : 1373
   Posted 2/12/2010 10:26 PM (GMT -6)   
hey sam, mano man, it seem's to me that medical should step up to the plate, I've had cd since 1970, I've had surgical induced remissions, then where it was resected it would flame up there, another resection 1989,(elective) to avoid obstruction, and then surgically induced remission, no med's from 1970 until jan.2010 cd moved into my throat and canker sores in my mouth, gi guy said it was cd, scope showed nothing, he put me on imuran and pred, 50mg imuran 15mg pred, now I feel OK, just ok, I can tell If I stopped pred it would start up agian in mouth and throat, also my tongue would get blistered, kind of like my taste buds were blistered, really painful, very hard to work and think at the same time, pred has eased that up. I wish there was away for you to have the state pick up the bit and run with your case, it's mind boggling for me to think that you can be this sick, when i see bums and homeless and people who choose to live on our system get a free ride.I have cigna ins. what was your dad's ins. one other thing with no ins. have you gotten a price on what your surgery might cost, they can give you ballpark, I know things come up during surgery, but still they can say it's $$$$$$$$ or it's $$$$$$$$$$$$$$$$$$$$ or it's $$$$. my wife used to live in steamboat springs
artist guy

Regular Member

Date Joined Jan 2010
Total Posts : 221
   Posted 2/12/2010 10:38 PM (GMT -6)   
Dear Sam:

We all empathize with you ... I can relate to recent ER visits (four before they finally admitted me of severe dehydration, couldn't even stand without standing - how could they miss that? Duh!) ... so I know how you feel stuck - like why go back? Why not just die at home? But for me, through persistence and help from understanding my disease better (and this forum has helped more than any doctor, even if they know more, they can't in the time or space or to my situation help me understand) I've been able to make educated choices. Such as get new doctors and ask them very pointed, educated questions, so I'm getting closer to doing better than last week or last month or three months ago. Hopefully you can find some relief ahead.

I have a few questions for you. What happened when you are were on Imuran? I am on Imuran now (started my 4th week and doing well) but had to discontinue 6MP (similiar class, but not exact drug) years ago b/c of elevated liver enzymes which they can watch in both of these meds now. Just an idea ...

I've found good relieve from the following natural products but I will only do with maintaince drugs now after my major recent flares:

RevitalX (a knock of InflamX by Metrogenics - a protein supplement approved by FDA to reduce intestinal inflammation.) I get mine from Pharamaca.com
A GreenBerry from New Chapter which has similar probiots to VSL#3 (I'm not sure if they are exact) but it is cheaper and pharamaca has free shipping!
Fish oil
A good food grade multi vitamin - I get mine from New Chapter
Physillium powder in rice milk once a day
Another good potion is IntestiNew (but many of the same ingredients as RevitalX but maybe a cheaper option as RevitalX has only 14 servings per container)
Inflamzyd by New Chapter - has lots of good inflammation reducers like tumeric, rosemary, ginger, etc

I'm sure everyone will have their own tonics and ideas ....

Hang in there ... and I would suggest posting a new post for each specific question otherwise you will have a hard time responding to all the info!
44-single mom diagnosed with Crohn's 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006.
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/13/2010 11:12 AM (GMT -6)   
Hi Sam,

And welcome to the best Crohns forum out there. We are glad that you joined our little "family". I am sorry to hear the bad reactions you had from the Remicade. I hope the docs can find out something to get your psoriasis and Crohns back under control.

I see you have tried Imuran, but have you ever tried its sister med 6mp. Sometimes folks don't tolerate the Imuran as well, and do better with the sister med 6mp instead. Basically the same med, just process in your body differently. I couldn't take Imuran myself, but did have better luck with 6mp and taking it at bedtime vs first thing in the morning.

Again welcome to the forum and we look forward to hearing more from you. Ask anything you want, one of our great members probably has some kind of experience to share.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Aug 2006
Total Posts : 443
   Posted 2/13/2010 11:54 AM (GMT -6)   
It's very tough when you don't respond or can't take most of the standard medications. One option you didn't mention trying is enteral nutrition (special full-liquid diet), which can be used for several weeks to induce remission or used alongside a regular diet to help maintain remission. It's an old treatment for Crohn's disease, and not often used in the US, but it has been proven effective in randomized, clinical studies and can be a good alternative to steroids.

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 2/13/2010 12:52 PM (GMT -6)   
Hello and welcome to the board!
I understand a lot of your frustration...I live alone also and worry a lot about being isolated because I don't feel well enough to leave my apt. Luckily I love my apt so at least there's that :)

I also have psoriasis (though I don't know the cause) on my scalp...my hair has fallen out so much I've started wearing wigs sometimes...it really makes me sad.

I work right now as a dancer at a theme park but I really have a degree in Elementary Education and Psychology. I really miss teaching but, like you, I am scared to look for a job doing that because if I get sick at my current job, they can easily find someone to cover my shift--unlike if I were to get sick teaching school. I couldn't leave the kids alone to go have diarrhea!

I'm here to talk anytime! Welcome again :)
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 100mg Imuran, Psyllium Seed Powder, VSL #3 DS, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention). 

Regular Member

Date Joined Dec 2009
Total Posts : 70
   Posted 2/13/2010 3:58 PM (GMT -6)   
I don't know if this will help any one....
My little sister who is a normal person (no medical issues to speak of) had and continues to have problems with psoriasis.
She takes oral sesame seed oil, almost daily and when she does have an issue (usually when she has forgotten to take them for awhile) she also has some that she puts right on the wound. I have seen some rather large sores almost disapear with in a short amount of time.
Like I said first I am not sure if this will work for any one but my mom swears that it helps heal skin problems....so I hope this helps.
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 2/14/2010 3:00 AM (GMT -6)   
Hey Lero3645-Welcome!! This is the best forum place. We have a few things in common. I too climbed Killi with crohn's and those outhouses were the grosses things I have ever seen in all my travels. Was really sick when I got home but still took them awhile to decide what to do.

Had every drug along the way until Remicade and Humira were the last ones left. I had a reaction to Remicade also after my second injection it started and I went right in to get it checked. I had sore spots on arms and thighs. Got to see Dermatologist same day when Gi saw them. No more Remicade for me and sores went away in couple of months without too many scars. That was end of meds because Humira was too chancy to try. Diet worked to some degree but wasn't good enough for me. Maybe back then I just couldn't stay close enough to the rules.

Was stem cell trial bound when removed from study for cancer cells. Drs. wanted me to have surgery immediately but I tried some chinese herb stuff that worked great (hadn't felt so good in years) but didn't remove bad cells so did the surgery. Surgery sure has improved life but I won't lie and say I love the hole in my abdomen yet. We're still working on our relationship.

So stress can get us very easy. See how much of that you can take out of your life for awhile. The sesame seed oil sounded good too. Hope you figure things out and are feeling better soon. No one deserves this dis-ease but I bet all of us learn from it.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 2/14/2010 4:55 AM (GMT -6)   
hey Sam,, welcome... have you tried going to the county hospital? thats usually where uninsured can go for care. or get state aid since your not working steady. you should qualify for the programs.. im sure your drs can arrange for you to see a social worker as well for help. check at all the hospitals in your area and ask if they have a charity care program.. all catholic hospitals do i know and some others do as well.. i hate to see people claim they cant get care because of no insurance when there are so many programs to help. ya just gotta look.


Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 2/14/2010 9:21 AM (GMT -6)   
Hi Sam, welcome to the forums. I'm really sorry to hear all that you have been through.
I agree with Randy as there has to be some sort of program that can help you. Here in Wisc we have Badgercare and I've heard that some only pay $10/month.
Good luck and best wishes.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Sep 2009
Total Posts : 90
   Posted 2/14/2010 2:38 PM (GMT -6)   
Oh my you got a lot of replies there girly! Just wanted to say that my heart goes out to you. I can't imagine what you have been thru.
I am currently on Remicaide - almost for a year now. it seems to be working quite well for me, but my Dr. is not convinced that it is doing what it should. Yes, those kind of drugs are scary ... they are in a class of their own. And VERY costly. $3000 I had to pay once for an injection because my health care coverage was in transition and I couldn't back date the reciept.
I read all of your story, and it made me realize that my woes are not nearly as bad as what some people have been thru.
I consider myself lucky in that sense. It is really cool that you have lived an exciting life and done so many things.
WELCOME and hope you find this site helpful.
i'm a Canadian girl, and I am too constantly worried I am going to loose my job. i have a great job now and i just pray that i won't get run down and sick.
I think you should try alternative medicine or natural medicines. I have heard many successful stories from people that have chosen that path. They are costly as well though. i take a few natural herbal supplements, and they are really good!
I use a brand calls NEW ROOTS.
no worries on the spelling and stuff, heck we all have to ability to read here so everyone should get the point of what you are trying to say.
my typing is really good, cause i work in an office so i type fast. hopefully we can all understand each other.
i am fairly new to this site as well, and i don't get to visit very often, but i find it theriputic in a way that i am not alone and there are others out there suffering with similiar things.
GOOD LUCK! and stay strong! Many Hugs! and I wish you all the best!
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 2/14/2010 9:47 PM (GMT -6)   
Welcome to Healingwell lero3645. Sorry I can't help you with your skin issues. I'm currently on Remicade and stories like yours and others scare the heck out of me. Perhaps contacting Schering the manufacturers of Remicade to see how many other cases like yours they know about and if the have knowledge of a treatment that is sucessful in treating your condition? Keep your head up, stay positive, miracles do happen! Rob
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Regular Member

Date Joined Feb 2010
Total Posts : 21
   Posted 2/14/2010 9:58 PM (GMT -6)   
Thank you for talking about your life so far with crohns. Makes me realize that I am not alone. If you can do it, I can do it!

Veteran Member

Date Joined Jan 2010
Total Posts : 8414
   Posted 2/14/2010 11:00 PM (GMT -6)   
Your experience does not deeply encourage me to try Remicade. I'm sorry about the hideous effects you suffered from it, and I hope things do get better for you.

New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 2/17/2010 4:06 PM (GMT -6)   
Sam, my apologies for it taking this long to get back to your question. I felt a lot better after my surgery (it was painful healing and I needed pain pills longer than the standard average person (i think I needed an extra week or two worth) but once healed up I was good to go) and my symptoms have not returned. I quit smoking the day before my surgery in September 06 and I only take B12 supplement weekly. I run daily and drink lots of water. It helps a lot. I also have psoriasis (not med induced) and have since my teen years. Just patches on my knees and elbows and scalp, but it's irritating nonetheless. I know it could always be worse. I completed a half marathon a few months back and there is nothing like completing something that you have worked so hard for. Take care!

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 2/17/2010 10:02 PM (GMT -6)   
Wow Sam...what a journey you've been on.

I just wanted to tell you...wait till you get all your bills then call the hospital and see if you can negotiate a lower price, or work out a payment plan. Also...don't let money be something to keep you from having surgery, if you need it. Money is just money, and your health is so much more important than any money in the world. After both of my surgeries I had lots of relief, and stayed healthy with maintenance meds for a long time.

I also agree with Grandpa that you should call the mfg of Remicade and see if they can suggest, or talk to your dr about how they should be treating you. I would think they would know better if your doctors don't seem to be helping.

I hope things get better for you, and I'm so glad you found this forum. It's been the most helpful thing for me with dealing with Crohn's.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 2/18/2010 6:20 PM (GMT -6)   
Hey Sam, your story was riveting! Despite everything you went through, your spirit remained undiminished.
Good for you, standing up for yourself:
"(He was actually rather rude, like I was an idiot for not being able to recognize what was on my body, which every doctor in my GI clinic and every doctor working an ER were unable to diagnose as well...)"
I've been treated as an idiot more times than I can remember by idiots who said my daughter's symptoms were psychological, didn't know how to read lab test results, said it was OK for her to go off meds when she still had symptoms so she landed in ER, said no vitamins or supplements were necessary, refused to restore her Entocort though her flare was due to going off Entocort and instead gave her Cipro which caused 103.5F fever which caused her to be hospitalized due to fever which caused her to starve due to fever from Cipro and nausea from flare until...
Hmmmm...ranting does feel good.   
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. Used LDN to taper off Entocort. Was on Entocort since April 06. Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 500 mg calcium, 27 mg iron, monthly B12 shots, daily oral B12 1000. SCD diet modified to include potatoes and rice. 

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