Hair thinning and loss...

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FightingChance
Regular Member


Date Joined Sep 2008
Total Posts : 44
   Posted 2/14/2010 3:37 PM (GMT -7)   
Hi All,
 
Hope you guys are all having a wonderful Valentine's Day.  I am doing alright with mine. 
 
So, I have always had what others called pretty beautiful long hair, like the kind that goes mid-back... and since taking Entocort, my hair has started to thin out a little bit and it's very noticable but not so much to others from what I have noticed.  It looks more like I layered it...but the other day it bothered me that the guard in my condo (I live in a bigger city) had made mention to, oh your hair is still long.  I guess she had seen me and another tenant speaking and the girl had said you look good with long hair or something to that effect to me.  And, that made her think that maybe I had extensions.  But, then she said it was only because the other girl had made mention to it...but then she also said that the back looked a little shorter so that maybe they were just really good.  But, I have seen that style in layered hair...and when I asked her about it again, she assured me that it doesn't look like extensions but it just bothered me so badly because my hair is something that I really feel a lot of pride about.  I mean, women, you know what it's like.  And, even though, the thinning really isn't very bad, I feel like I just started getting comfortable with it and the one insecurity I have about it is the back, where I tease the crown and it looks a little shorter back there but completely blends and even the security guard had reiterated that it didn't look like extensions at all...it just really got to me.  It made me sad because I couldn't really let go of that thought...and I shouldn't care.  People used to always ask me if I had extensions back before my hair even slightly thinned even a little bit.  And, it really looks fine...actually has more body to it...and no one has really even noticed it much...not even my hair dresser. 
 
Do you guys see layered hair and think that oh, that girl has hair extensions?  I don't know why this bugs me so much...I know it might sound really silly.  But, part of why I care about it is because it's my normal self and I like to try to stay as normal as I can, you know. 
 
Any advice? 
 
 
27 year old female diagnosed with UC at age 22; Chrohns 5/09
Asacol 3x's daily.
Entocort (3 per day)


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 2/14/2010 4:51 PM (GMT -7)   
Happy V-day..i dont have much advice on details like that. I know that MSM was mentioned before for extra sulfur but you should get enough amino acids types from proteins, such as having eggs with some salt now and then. Probably more an issue of zinc. I have some brittleness and now in winter the static electricity is bad. The meds like prednisone might cause loss while metronidazole I think made hair grow. I use head and shoulders pretty much like soap for zinc. Sometimes I put olive oil in wet hand and massage it in after really light.

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 2/14/2010 10:02 PM (GMT -7)   
Yeah, I'm on prednisone and imuran and have lost ALOT of hair... mine was the longest it's been in awhile and I had to cut it short yesterday to make it look thicker. Not much you can do, take some supplements that help hair stay healthy and take good care. Omega-3s, folic acid, biotin, zinc etc...
Good luck
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 2/14/2010 11:22 PM (GMT -7)   
On pred and Imuran too! Needing to vent...
My hair has always been thinner with lots of body and wave. But,  lots of it! ...and now it's just witchy looking! I'm afraid to take a shower because it just comes out in small clumps. I used to yell at my kids thinking they used my brush and left all their long hair in it...haha..they've all moved out now and my brush is still full of hair! Funny me! My clothes are full of hair...my coat is full of hair...my bathroom floor is full of hair!! I actually started crying the other day when someone I barely knew started pulling it off my scarf, and coat. Kinda dumb ..just sensative about it right now:(  I know.. I shouldn't care so much..I'm here right? I
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/15/2010 5:46 AM (GMT -7)   
I don't have any advice really, but I understand how frustrating it is. I'm on pred and Imuran too and have been losing my hair for years. It's so thin now that I bought wigs. It's really disheartening and one of the more difficult side effects of this disease--your hair is so tied into your femininity and how you feel about yourself. I am sorry you have to deal with it too. :(
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 100mg Imuran, Psyllium Seed Powder, VSL #3 DS, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention). 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/15/2010 8:47 AM (GMT -7)   
Hair shedding is pretty common effect from some of our meds. Many have found some help with adding additional folic acid and if your stomach can handle it some Biotin. Give it a try. Hairloss is a common complaint here. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/15/2010 8:48 AM (GMT -7)   
Oh by the way, I have long layered hair and no one has ever said that I look like I have extensions. Just fyi!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 2/16/2010 9:23 AM (GMT -7)   
So, I added Biotin to my vitamins with Folic Acid and I've been experiencing some lip swelling. Nanners you mentioned "biotin if your stomach can handle it" just wondering what you ment.
Has anyone ever had a reaction to Biotin?I googled it and couldn't find anything. I've noticed this ever since I started taking it a little and then yesterday I had a full blown upper lip. Deffinatley a reaction to something..just trying to figure out what... Ya know, another needle in a haystack to try to figure out!
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/16/2010 10:11 AM (GMT -7)   
I have a extremely sensentive stomach, and the Biotin really upset my stomach. I had no other problems with it other than that. So probably the Biotin doesn't like you either:(
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 2/16/2010 12:12 PM (GMT -7)   
I have experience hair loss due to malnutrition and used this shampoo called "NIOXIN" and it helped me a LOT. I have been in the beauty industry for a little over a decade and this is the only product that not only helps the problem but also makes the hair appear thicker. Unlike other shampoos like Rogaine you do not have to use it every day for it to work. You can use it whenever you want. It has a menthol smell and I think its like vick vapo rub for the scalp - it tingles a little. It may not work for you but I have seen it work for many women and could only hope it will help you.
You can get many stylish cuts if the thinning becomes a bigger issue and help camouflage it. Wish you lived close by so I could help you out!!! And screw what other people think, you have to be happy with you and say f the world. If they think its extensions maybe it looks so good they dont think its natural.. Feel free to email me with any questions!!
28 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx. Steroid dependant and flaring out of control I started Remicade in Jan 2007 which lead me to remission... Until now :P Feb 2009 came with another flare.. Also suffering from PTSD, Anxiety and Depression.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Elavil, Invega, Nurotin, Iron, Lessina, Fish Oil, Folic Acid, Vit D3, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 2/16/2010 12:27 PM (GMT -7)   
Hey Theres hope, I've been using the Kerastase shampoo for thinning hair... would you say it might be as good as Nioxin? Or should I invest in that as well maybe and alternate? I just recently got my hair cut shorter, to my shoulders and it looks much thicker and feels healthier :)
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 2/16/2010 12:46 PM (GMT -7)   
kerastase is AWESOME shampoo, Nioxin just goes deeper and I would actually use both.. use the nioxin often when you start then integrate the kerastase and eventually use the nioxin 3 or 4 times a week and use the kerastase when you feel like it. Nioxin does also have supplements that I take, totally forgot to mention that. it is important to make sure you are getting the right vitamins and supplements as some will aid in your skin, hair and nails. but you need to check and make sure they are safe to take with your current meds, it takes a little research but hey at this point it is WORTH IT!!
Yeah happy you got a cute cut!!! Makes you feel better when your hair is looking good :)
28 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx. Steroid dependant and flaring out of control I started Remicade in Jan 2007 which lead me to remission... Until now :P Feb 2009 came with another flare.. Also suffering from PTSD, Anxiety and Depression.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Elavil, Invega, Nurotin, Iron, Lessina, Fish Oil, Folic Acid, Vit D3, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/16/2010 1:09 PM (GMT -7)   
I started a post a while back on the same topic.  My hair has stopped shedding but is half the thickness, maybe even less.  It also has turned grayer.  I just came back from a visit home and I rec'd several comments from family.  The texture is different too.  I was on prednisone for awhile and now on Colazal. My GI doctor seemed puzzled and said neither med could cause this and when I asked him to test me for deficiencies he said I was way too healthy for that.  I'm about 10 lbs overweight.  I'm thinking of going to a naturalist MD in congunction with my GI doc.  I do take supplements tho.  But I understand how you feel.  I used to have pretty hair, about the only thing I rec'd compliments on.  Now that is gone, and I feel old.  I had it highlighted and it looks worse.  And I too feel petty about worrying about my hair......But I will have to try those shampoos.  I don't mind the thinness b/c my hair was so thick, but I hate the texture and gray.  This all happened within about 4-5 months.  I'm old overnight! 
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 2/16/2010 1:48 PM (GMT -7)   
There's Hope?
Is it true once you start using "Nioxin" you have to keep using it to work? Don't want to start something expensive if I have to use it always... I heard that just wondered if you knew? Thankx
P.S. my daughters name is Hope. I really like the name...:)
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        

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