Food (weirdly as it sounds) doesn't really affect my Crohn's. I am lactose intolerant so I stay mindful of that. Otherwise, I have not found anything else that really affects me. If I do, I stay away from that item.
What leads me to think it is my Crohns is that after my first two infusions, I was feeling great...I was on top of the world. I went to the bathroom maybe 2-3 times a day and had tons of energy. Acne cleared up, no nausea or pains...just an overall felling of being well. A week before my third infusion I started feeling bad again. This happened the other times also but after the infusion I felt better again. This was not the case with the last infusion. I never felt better or got my energy back. My B12 levels are good. Potassium levels are fine. I take multivitamins and all the blood work is good. The only pain I do get is in my colon. I am pretty sure that everything is tied together and related to the CD. I have tried a number of Probiotics and nothing seemed to help. I honestly don't feel I can do the SCD diet and I will not try liquid suppliments.
I am just at the point where I don't know what to do anymore and I am starting to feel a little depressed.
My oveall tiredness is like fatigue. A lot of the times I just want to lie in bed and do nothing. When I started Remicade I had soooo much energy. Now I am back to doing nothing.
As far as pain, I do get joint pains but I have had them for years. I get some pain in my stomach area which I know is where my colon is and where the CD is. I don't get bruises anywhere or muscle pains.
I think Lupus could be a good guess but I have had so many test done that I don't think that is the case here. Also, if it was Lupus I think I would have more internal problems and nothing is coming up on any test. My only other problem is a Fatty Liver which I think was caused by one of the drugs I took...and my weight issues.
I might, if I don't get better, look into Lupus but for now I am not leaning towards it. Thanks for thinking of it though.
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On my last bloodwork, it did show there was inflammation going on...both the doc and I thought is was a sign that the CD was active. Now I am thinking it could be something else..but how am I to know?
Zanne...you can stay on your soapbox. It is ok :) Actualy, he says the meds are working and that I am healing. That is why I am upset. I am getting results but still don't feel better. The other problem is that there is no other meds for me to go on except Humira and Cimzia. I have been on just about every type of med out there with bad results on all of them. Also, overall, I have a mild case of CD. I am only on Remicade because nothing else works. My doc was hesitant on putting me on it..I had to push for it.
Overall..and I saw the pics from my scope..I know my Crohn's is active. It does look better than a year ago and I am happy for that. I am really happy that I have never had any major complications or needed surgery. I just hate that I keep getting the real annoying symptoms with no way to get rid of them. I hate having joint pains, oily skin on my face, etc etc. I know it comes with the territory but I just am tired of it.