Humira and Cancer..Im getting scanned to check my Lymphnodes in 2 weeks....

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Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/17/2010 7:31 PM (GMT -7)   
Had my check up today with GI after coming off of a major flare. I have felt consideribly better for the past 4 weeks and have been eating pretty well. My appetite is back Im eating healthy and back at school and just feeling over all GoOd! So at my low point in the flare I weighed 132lbs..(My normal is 148) Feeling confident that I am on the mend and have put weight back on, I get to the drs office, step on the scale and I only weigh a whopping 126lbs!!! WTH I flipped out like there must be something wrong with this digital scale?? My clothes fit better than a month ago, I feel more meat on my bones I look like there is more meat on my bones so what gives! Anyway it freaked my GI out and he didnt even get through the exam before he ordered a cat scan to check my lymphnodes because the weight loss is a symptom and the fact that my weight is so low is concern to him...I can not believe I might be one of the 4 in 10,000 LOL!!!

Suprisingly I am in a realitivly great mood considering. I just dont think I have Lymphoma and I do think it was the scale...so now Im gonna go weigh myself a few more times to make sure before I go get dye shot inside me and stuff...

Has anyone else been through this or have gotten Lymphoma from Using Humira?

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/17/2010 8:53 PM (GMT -7)   
Doc,
I just want to make sure that I am reading correctly. You have not been dxed with cancer yet correct? I believe there are a couple of us that regularly get scanned for cancer. Ct and biosies are not abnormal if you have questionable symptomology. There has been one gentleman on here with cancer that I can recall. Keep us updated.
Take it easy in the meantime (I know not easy!),
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 2/18/2010 3:23 AM (GMT -7)   
Given how you feel and look I'd be willing to bet that the doc's scale was severely "off", either during prior weight checks in his office or between the last weight check in his office and this one its gone bonkers.
 
I get a kick out of doctor's scales anyway. My family doctor and my gastro are just around the corner from each other in the same block. I can leave my family doctor's off at 121 lbs on his scale and walk around the corner to my gastro's office and gain 7 lbs just sitting in her office waiting for our visit.
 
When I was on TPN for weight gain and my gastro wanted my weight taken once a week I made it a point to go to my family doctor's office for the weekly weigh in as the staff would just let me walk back to the scale and weigh in, they'd write my weight down on my chart and off I'd go. But that gave us the consistency of the same scale used for each weigh in.
 
I dont know that doctors' scales are EVER checked for accuracy.
My computer says I need to upgrade my brain to be compatible with its new software.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/18/2010 7:33 AM (GMT -7)   
I agree with C2, my GI's office scale is pretty accurate, but when I go to my ortho docs office his scale says I weigh 7 lbs more.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 2/18/2010 9:50 AM (GMT -7)   
I just went through something similar i've been on Immuran for over a year and it isn't working and just started remicade well in getting my "routine" chest x-ray they found something and i had to have a CT.  they thought it was lung cancer and then after the CT thought it was lymphoma and had to have am MRI of my thoracic spine.  Turns out not to be lymphoma but i have 17 tumors in my nerves from T3-11 in my spine and now have to see a neurosurgeon.  Funny thing is i've been getting intermittent numbness and shocks etc and had been seeing a neurologist who found nothing and was doing nothing and my gastro found this lol.  So yeah more things wrong.  My point to you is though i lost sleep through this whole testing ordeal thinking the worst and i wouldn't the chances are not high and lots of things can cause weight loss don't worry till you have too stress is not good for crohn's lol

Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Immuran, Prednisone, plaquinil, fluinzarine, rel-pax, lantus, humalog, vit d, calcium, multivit, omega 3, Vit B


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 2/18/2010 10:00 AM (GMT -7)   
I know someone whose family member was recently diagnosed with lymphoma, which they believe was caused by Remicade.  He is getting treated, as they caught it early, but is also in a Crohn's flare at the same time.  It's hard enough to treat the Crohn's flares without having to add lymphoma into the mix!

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


xraygrrl
Regular Member


Date Joined Aug 2004
Total Posts : 102
   Posted 2/18/2010 12:12 PM (GMT -7)   
I developed a lump on my neck after about a year of Humira. I had an ultrasound & a CT scan, which both came back negative but I was taken off of Humira just to be safe.

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/18/2010 10:10 PM (GMT -7)   
Wow....I have to say that I am not terribly worried...C'est La Vie...what will be will be you know what Im sayin yall! LOL
I so appreciate all your feed back...Im just going to go with the flow and deal with things as they come...I dont think I am terribly sick but there may just be something amiss in my body...Man did I get jipped in with this body...wish there was a trade in policy! LOL

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 2/19/2010 7:54 AM (GMT -7)   
Doc...I just have to say bravo on a great attitude! I am using you as another reason to have a better attitude myself!

My friend and I were just laughing about the variation in scales. She doesn't have CD, but was recently treated for neck cancer and is trying desperately to gain weight despite no taste buds and no saliva. Me on the other hand am trying to lose weight. We both weigh ourselves at hoime before the doc. her scale always says she is gaining weight and mine always says I am losing. We get to our respective docs and she is actually losing and I have gained. Hmmmm they test truck scales regulary :-)

We do have a trade in policy....unfortunately that policy stinks I traded in 18" of intestines but got nothing in return. I want a stimulus package for my body hehehehehe
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/19/2010 10:13 PM (GMT -7)   
Thanks! I just cant be bitter or angry or sad or even mad, because hose are mments i will never get back... Ya know what Im sayin???!!!
Its all about attitude In my case I have to laugh because what is happening is unreal! Last year my besy friend was diagnosed with Lymphoma, then today another good friend was diagnoed with Lukemia! We are all great friends and hang out and talk daily... If i have lymphoma man are we gonna make the best Bucket List money can buy!!! ****!!! I mean that would just be insane!

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/28/2010 9:37 PM (GMT -7)   
Tomorrows the big day...was more scared of the iv than the results until i had a bad dream last night that the results were positive for lymphoma! Aaaaggghh and I do have a strong dream intuition which is making my nerves bad after last night...

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/28/2010 9:54 PM (GMT -7)   
You have to log on tomorrow and let us know how things go. Are you supposed to find something out tomorrow, or just having tests, then you have to wait for results?

I hope it goes well tomorrow, and they find a big, juicy vein that works well for the IV! Drink water as much as you can and it'll help with the IV.

Good luck and I'll send positive thoughts your way tomorrow!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/28/2010 10:06 PM (GMT -7)   
Thank You!!!!

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/1/2010 5:09 AM (GMT -7)   
Goood Luck!
I'm praying for you.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 3/1/2010 7:52 AM (GMT -7)   
Good luck to you! You are in my thoughts and prayers today!
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort, and Imuran trying to get the drainage to stop. 
 


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 3/1/2010 11:26 AM (GMT -7)   
Okay thats over! Really no big deal until the radioactive dye made me vomit!!! And i was in the donut up to my chest with no where to run! Lol the nurses scrambled and got me a bowl...they said people dont vomit often and its because they gave me the dye to fast...Ill find out results in a day or two. Alright im headed out to enjoy this gorgeous sunny day in San Diego! Remember pain is inevitable, however suffering is optional.

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 3/1/2010 5:18 PM (GMT -7)   
Test results came back and there are no signs of Lymphoma Yall!!! Lets have a Cosmo!!!

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/1/2010 8:12 PM (GMT -7)   
Great news!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 3/1/2010 9:22 PM (GMT -7)   
I'm so glad everything turned out alright! I must say your attitude is inspiring to me, I tend to be the opposite when faced with the waiting game. If only I could keep such a positive attitude!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

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