to much to ask?

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huntersmom
Regular Member


Date Joined May 2009
Total Posts : 50
   Posted 2/18/2010 10:59 AM (GMT -7)   
is it to much to ask Dr. to write me a note to be off work for a day or so and let me rest? I am on so many meds right now that I'm starting to feel like they are doing more harm then good.
MEDS-
6mp 100mg
pred 40mg
lialda 4.8gms
3 x flagly
2 x cipro
bentyl 20 mgs

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/18/2010 11:06 AM (GMT -7)   
You should talk to your doctor if you are feeling that bad. Yes we Crohnies do have to take alot of meds, but they help to keep us in better health most times. Gentle Hugs, hope you get feeling better soon. Hugs!!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 2/18/2010 12:15 PM (GMT -7)   

Sorry you feel so bad..I know how you feel.  What I am wondering though, looking at your drug list, should you really be on all of them.  You are on 2 types of antibiotics as well as a number of CD drugs.  Maybe you are litterly over medicated.  IMHO I don't think you should be on 6MP and Lialda.  I would think it should be one or the other. 

Feel better and get some rest whenever you can.


36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/18/2010 12:54 PM (GMT -7)   
I agree with Nanners. You have a lot on your plate and if you are feeling that poorly you might need a few days rest and you should speak to your doctor about what is working and what is not.

Jay - Many of us need to be on a combination of medications. 6MP and Lialda work differently. Flagyl and Cipro are commonly given to CD patients. None of these drugs are out of the norm for CD patients and are the usual course before the higher class of biologics are tried or if biologics are not tolerated.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 2/18/2010 1:16 PM (GMT -7)   
Zanne,
 
I do realize that some people need a combination of drugs and that all of the ones listed are CD drugs.  My point was..isn't Cyprol and Flagyl basically the same.  I know there is a slight difference but overall they should have the same result.  The same with the 6MP and Lialda.  I do understand that some combos are needed which is why I haven't mentioned the Pred.  Again, it was just my thought. 
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 2/18/2010 1:25 PM (GMT -7)   
I always thought Lialda was mild and 6mp was heavy duty.
So why did your doctor prescribe both???
I've been prescribed cipro and flagyl twice at the same time, but this last time, I was just given flagyl. Does that mean something to anyone?
As far as I'm concerned, it was to treat a recurring perianal abscess in the same spot.
Man, if I had to choose, I would take cipro over flagyl any day of the week! YUCK!
Does anybody know how many times docs can prescribe cipro and flagyl???
What ever happened to that old adage about developing an immunity to antibiotics if you take them too many times?
I for one think that, after 3 times, I have exhausted the benefits of cipro and flagyl.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/18/2010 1:37 PM (GMT -7)   
Java, no, Cipro and Flagyl are not basically the same. You need to take them together for Crohn's, because if you just take Cipro, you can get c-diff. If you're going on antibiotics long term for Crohn's (like I am right now), you need to be on both.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/18/2010 1:38 PM (GMT -7)   
Gypsy would you please make you own post, I don't want to hijack Huntersmoms post. Thank you for your understanding.

Javajay, it is not unusual for folks to take 6mp and Lialda together. Lialda is one of the 5 ASA meds and as mentioned its not uncommon for folks to take the two antibiotics together. It sounds as if her doc is trying everything to get her feeling better.

Huntersmom, I sure hope your doc gets back with you and gives you some time off. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 2/18/2010 1:42 PM (GMT -7)   
ok..point taken. Just learned something new about CD today.

36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/18/2010 4:57 PM (GMT -7)   
I think it is very reasonable to take some time off to find your feet.
I also agree that there are several reasons to take cipro and flagyl together are you takeing them because of c-diff or for bacterical overgrowth? etc.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 2/18/2010 5:01:27 PM (GMT-7)


huntersmom
Regular Member


Date Joined May 2009
Total Posts : 50
   Posted 2/18/2010 6:28 PM (GMT -7)   
Thanks for the replies everyone! I am taking both antibiotics because I have a severe UTI apparently that I was showing no symptoms of. I think they are hoping it will help my crohn's as well. I just think that my body is so beat down from all these meds that I'm having a hard time functioning. The weird part is that before all these meds when I was in a bad flare with a scope that showed severe disease in my colon, I felt better then I do now. I just want my life back with my kids....they are only 7 and 9 and trying to explain things to them is difficult since I am a single mom. I really appreciate all the feedback, cause I feel like sometimes people think I'm crazy when I tell them how tired I am and that I need a day off and anyone who is a single parent knows that time off only comes when the kids are in school...LOL

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/19/2010 7:02 AM (GMT -7)   
I worked part-time when my kids were your kids age. I would get up, dressed, do my hair and makeup (really crowded bus stop and I'm a vain woman ;) ), put the kids on the bus, do what ever ABSOLUTELY had to be done that day, go home and take a nap. I'd pick the kids up from the bus stop, and while they were changing out of their school clothes, I was putting on my jammies. 3:30 in the afternoon and I was done for the day. I couldn't wait for my husband to get home so that I could rest again.

You are not alone, and you are not the only one this has happened to. If you feel you need a few days to just recover, then you need to ask for it and not feel guilty about it. If you don't take care of you, you can't take care of anyone else.

Please try to have a restful day. (((HUGS)))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/19/2010 9:12 AM (GMT -7)   
ABSOLUTELY ask your doctor for as many days as you need. I know my dr would do that if I asked. You know your body. Whether it's too many meds or just a flare or you're just exhausted, do what you need. This is your health.
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 125mg Imuran, Psyllium Seed Powder, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Vesicare (for urinary retention). 


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 2/19/2010 9:17 AM (GMT -7)   

80sChick,

I noticed on your med list you have prenatal vitamins.  Is there somthing to prenatal vitamins helping Crohn's or are you just expecting? 


36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 2/19/2010 10:05 AM (GMT -7)   
Yes Have the Doctor give you a note for a couple of days off.
 

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