A theory about crohn's colitis and colonoscopies

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jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 2/18/2010 5:22 PM (GMT -7)   
I am one of those people who was diagnosed as UC initially by colonoscopy and then was changed to Crohn's colitis by appearance of skip lesions and granuloma on pathology. I have read in Jini Patel Thompson's book Listening to Your Gut (not the most evidence based text) that the sterilization techniques used on scope equipment may be inadequate, especially with microbes that form biofilms (ie mycobacterium avium paratuberculosis, staph, etc). I am wondering if some people who are initially diagnosed with UC acquire Crohn's from contaminated colonoscopy equipment that was probably used on countless other Crohn's patients. I don't think this was the case for me because I have shown my first set of path slides to a world expert pathologist and he said the first read was wrong and I had Crohn's from the beginning.

Anyway, I am very reluctant to get another colonoscopy in the future, not really because of this theory, but I tend to believe the prep worsens my GI functioning and may induce a flare. I know this is probably a bad idea with regard to colon cancer screenings and other merits of the tests, but whatever. I'll take my chances with that.
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade since 6/09
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil
Remission


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/18/2010 5:45 PM (GMT -7)   
I would think that it was no way that you could get some bad stuff from the scope equipment.

But a fun theory :)

I got my first scope in march 2007 in august 2007 I started having tummy troubles and loosing weight humm...
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Humira, Asacol, Cipralex and Cerazette.
Past medication Remicade, Imuran
My wonderful dogs :) ~ www.poodle.is ~


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/18/2010 7:17 PM (GMT -7)   
One of the VA hospitals improperly sanitized their scope equipment a few years ago and put many people at risk for HIV and hepatitis and other diseases.

You never know.

Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 2/18/2010 9:38 PM (GMT -7)   
thanks for the thought i have had countless scopes lol
Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Immuran, Prednisone, plaquinil, fluinzarine, rel-pax, lantus, humalog, vit d, calcium, multivit, omega 3, Vit B


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2010 10:50 PM (GMT -7)   
No, you can't end up with CD due to infected/dirty scope...it's not a contageous disease.

:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 2/18/2010 11:25 PM (GMT -7)   
Personally, I've never had a prep or scope worsen my condition. Actually, the prep/scope has gone over better each time. My last prep(miralax) and scope was a breeze.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/19/2010 12:08 AM (GMT -7)   
Scopes can bring on flares to those in remission and it can even make an exsisting flare worse, doesn't always, and not necessarily does it happen to all either.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 2/19/2010 4:24 AM (GMT -7)   
Most hospital sanitizing processes such as autoclaving have to be able to kill all microbes, including TB. I am not sure about the procedure they use to clean the scopes. but they are cleaned, sanitized, checked and recorded by the staff. Otherwise, people would come down with hepatitis, etc..... like they did at that VA hospital. How that slipped through the cracks, I'll never know. I wonder if VA hospitals are inspected as often as civilian hospitals by JCAHO and such. Anyway, I guess it's something we just have to trust for the most part. It's like trusting that dental instruments and other medical equipment is sterilized properly. It can be disturbing to read and hear some things on the news though. Lucky for us the incidents are few and far between. Perhaps you should ask your GI about their sterilization procedures and perhaps this will put your mind at ease. Tell him/her the theory and see what they say and keep us posted.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, advair, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
zoloft, rolaids, pepsid (as needed)

ALLERGIC TO SULFA, AND ANTIBIOTICS GIVE ME DIARRHEA!
Blood test positive for Crohn's via prometheus ibd serology panel


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 2/19/2010 5:20 AM (GMT -7)   

I have never really thought or worried about it before...now I will..thanks!! tongue

The only time I worried was when I had a endoscopy and a colonoscopy at the same time.  I just worried that they wouldn't use the same scope...and do the colonoscopy first devil .


36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/19/2010 6:57 AM (GMT -7)   
I have actually seen the special equipment used for sterilizing scopes. The entire length of the scope lies in a machine that seals and autoclaves it for some time at temperatures and with chemicals that will kill anything. As long as those proper procedures are followed, there should be no risk of acquring an infection from a scope. The VA hospital issues involved improper, sloppy procedures. This worry is groundless at any responsibly run medical facility.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/19/2010 7:01 AM (GMT -7)   
I agree with Mike. I think the worry does not have merit either. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/19/2010 7:54 AM (GMT -7)   
There have been some interesting studies that show a genetic component to crohns. 
That does not mean there cannot be an additional pathogen or toxin (etc.) that can be a contributing component to crohns.
I believe the etiology of crohns is still under debate.

Did I mention I go to the VA to do scopes?...Yikes!


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 2/19/2010 8:13:25 AM (GMT-7)


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/19/2010 9:09 AM (GMT -7)   
I was also originally diagnosed with UC and then had the diagnosis change to Crohn's Colitis a few years later (though it wasn't after a scope...unsure exactly of how my dr decided that. I was young and didn't ask questions. Now I am with a different GI and think I'll ask). I don't know exactly what the difference is but I guess I just tend not to respond as well to the drugs used more often with UC? I do have psoriasis as well--that seems more related to Crohn's...I don't know.

As for the scopes, I can't imagine that would have anything to do with you ACQUIRING Crohn's, but I think it's possible that the prep could create a flare, just becuase of the trauma of it to your colon.
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 125mg Imuran, Psyllium Seed Powder, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Vesicare (for urinary retention). 

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