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dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/18/2010 6:27 PM (GMT -7)   
This may be strange, and maybe I wish it because I don't know any better.....but do any of you ever wish your Crohn's was located in a different area?  Mine is the worst in the rectal area.  Right now I am experiencing the beginnings of a flare.....and put it this way, my butt really hurts....And I worry about the future of Crohn's in this area.  Doesn't sound real pleasant with all the possibilities.  It is in other areas, but it is worse there.  So I ask...have any of you ever wished to be affected in a different area?  Besides the obvious of not having it at all...............
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/19/2010 7:19 AM (GMT -7)   
I can't say that I have had that wish, but I sure do understand why you do. I have always had a milder case of Crohns and for that I am thankful. Big hugs to you!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/19/2010 9:33 AM (GMT -7)   
Thanks Nanners! I'm having a "yucky" week! So nice to get a hug!!!!
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 2/19/2010 6:05 PM (GMT -7)   
I can understand that, but then I remember that the grass is NEVER greener on the other side! I hope that you start to feel better soon!
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/19/2010 9:41 PM (GMT -7)   
Yes, I've wished that! Mine is in my colon so my main symptom is diarrhea...I've often wished my colon was less affected because I could deal with pain in public places, or even vomitting in public places, better than the anxiety the diarrhea gives me...I'm sure it's pretty awful no matter where it's located though... :P
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 125mg Imuran, Psyllium Seed Powder, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Vesicare (for urinary retention). 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/19/2010 10:02 PM (GMT -7)   
Hmmmmm, be carefull what you wish for, having crohns in the mouth and throat ain't fun either but I guess I cant say its as much of a pain in the butt.. Sending a big hug for you,, having such a bad time (((((dinkydee))))). Hope things get better soon....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/19/2010 11:02 PM (GMT -7)   
wow, the mouth and throat? that would be bad! My heated rice bag wouldn't help that at all!! Thanks for the hugs and well wishes...Just don't want to have to go on that darn Prednisone again! I'll give it a few more days and see how it goes before I call the doc.
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 2/20/2010 3:34 AM (GMT -7)   
I think that when you are suffering it is really easy to be envious of people that you perceive to be in a better situation than you. What you don't realize at the time is that that same person is thinking the same thing about you. When I am personally flaring I get a little depressed and find myself wishing that my disease is a terminal disease so atleast I would have some idea of what is going to happen to me and have an end in sight. Then I talk to someone that is actually experiencing a terminal illness and realize that they wish that they had a disease like ours that lets them live a long life even though they are sick. I truly believe that we are not given any trials that we can not overcome. The problem is that we lack the faith and belief in ourselves to recognize the strengths and abilities that we all possess. It is when we are suffering the most that our confidences seems to wane the most causing us to focus on the pain and what we can't do. When we begin to believe in ourselves and start seeing the inner strengths that we have to share, that is when we start to progress.

Post Edited (tsitodawg) : 2/20/2010 3:43:01 AM (GMT-7)


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/20/2010 12:05 PM (GMT -7)   
I know you're right tsitodawg....sometimes it just feels good to whine on here because then I don't feel like I'm a complainer to the people in my life! Honestly, I just have anxiety about if the disease is in my rectum and if I end up with surgery, prob will not be good and the fistualas into the female area, just wouldn't be too cool. So I am very thankful because so many others have it sooo much worse than me! ugh.....I don't lack faith and I believe God will get me through this or will use it in my life, and I know I shouldn't be anxious....just REALLY wish, oh never mind....there I go again...sorry
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 2/20/2010 4:58 PM (GMT -7)   
dinkydee, there is nothing wrong at all with venting on here. Venting is not whining but a release of the emotions that you are bottling up. This is a online support group and I can't think of a better place to let it out. No one here will judge you and they can all understand where you are coming from to a point. The faith that I am speaking of is not the faith in God(although to me that is even more important)it is the believe in one's self and ability to overcome anything put in their life's path. When we get knocked down by this disease it is really easy to have our confidence knocked down too. We have a choice whether to rebuild that confidence or keep falling. Rebuilding is not a day project and will take a while but it will happen.

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/20/2010 6:08 PM (GMT -7)   
You are so right, I know attitude is so important! I think my attitude is doing pretty good, but honestly, I have just not had it as bad as I fear it will get someday.....That is what I fear, how will I handle it then? But you're right it is a choice and I want to believe I will be strong!
Thanks!
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 2/20/2010 6:26 PM (GMT -7)   
Venting here is good because the people on here can actually understand where you are coming from. My husband is very supportive but the rest of my family is not. They tell me the only reason I call is when I'm sick. But HELLO! I just happen to be sick all the time! But I just thank god I have someone who understands. I try not to complain too much though because then he won't want to hear it. So here I can get advice, guidance, and support. Its great! I also used to wish I had to throw up instead of D. Bc I thought it wouldn't be as humiliating in public. But now I think I can handle D but not vomiting.
Current meds:  Remicade and Imuran 50mgs
Tried:  Prednisone, sulfasalzine, lialda, antibiotics
28 yr old female w/ crohn's colitis
NOLA, GO SAINTS!
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/20/2010 10:41 PM (GMT -7)   
Hey,,,a little ,,,wine,,,,is a good thing..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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