anybody on state disability due to cd?

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artist guy
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Date Joined Jan 2010
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   Posted 2/18/2010 10:38 PM (GMT -7)   
I just went to my dr. today, she immediatly said I should go on SDI, does anybody know how they rate cd for pain and suffering, I can not function at my job or a job workplace due to my cd. and I know there is ratings for diseae's when you have to go beyond SDI, there is SSDI, then they rate you, is it an indiviual thing or standard pain and suffering payment? currently on imuran and pred.                                               

4 surgeries, 2 resection's, cd has mouthed up throat mouth and tongue


artist guy

Post Edited (artist guy) : 2/18/2010 11:30:44 PM (GMT-7)


artist guy
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Date Joined Jan 2010
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   Posted 2/19/2010 12:38 AM (GMT -7)   
good info, Im headed for ssdi after 52 weeks of sdi, sdi pays 55% of last years pay, and they don't take taxes, this is in the state of calif. my employer is out of the picture, so I will have to find lawyer who is specifically for ssdi, I would think. do you if ssdi pay is the same as sdi?

artist guy


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 2/19/2010 7:09 AM (GMT -7)   
hey got a ? for you. I just went on to the ssdi wesite, and they had a list of 25 things you need to have, those being both dr's on the same page and everything documented, med's, surgeries, aches pains, new and old. so my question for you is this did you have all of the above, so to speak, ducks in a row. they said if you have all of this it takes 1-6 months, should I start on this now? my sdi is just starting and i'm 59, i will not be going back to work for anybody again. what would you suggest? also it said that you get better medical benny's on ssdi, for spouse as well. but the $ is the same as sdi, in calif. they have abuy out plan as well. but i read that you have to be careful because once you recieve it they're done. have you heard of that?

*I moved your post here because it was the same subject*


artist guy
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   Posted 2/19/2010 10:43 PM (GMT -7)   
thanks for allof that, it had to quit my job and found my insurance coverage ends feb 28th. so no job no insurance mortgage, sick. serious stuff, wife is self employed, relyed on my ins. and our daughter in college same thing, very depressing, i went ss office and started filling out those green papers, talked to lawyer today he said same as you get the process going asap, my first appt. with ss is mar. 3rd. sdi starts this tuesday sending forms, pay starts in 2 weeks, like you i was very active, loved to mountain bike,can't do that,I dehydrate so bad it is dangerous, i suffer heat exaustion so bad, due to so many surgeries and 9ft of small intestine removed, they call it dumping syndrome. my only problem my surgeries started in 1970, my dr's are dead, my last surgery was in canada 1989, but thing started getting bad in 2005 so 3 colonosc, 3 endo's lot's of charting from 2005 until current, I'm on imuran and pred, vicodin when needed, side effects are terrible for me almost just as disabling as the cd, not quite but still i can't frieking work, i can go on short hikes 1/2 hr or 3/4 of hr then i feel dehydrated and fluids don't really help, also my kidneys hurt from med's. I have had to right 4 extra page on that form i got i hope it's not to much but there is alot to say

artist guy


artist guy
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   Posted 2/20/2010 12:16 AM (GMT -7)   
i do have a question, how did you get your lawyer? I found one thru, lawyer for disability act, they called me this morning and then sent me some literature, basically telling mewhat you are, one problem i have is my first dr's are dead, the hospital that did 3 of my surgeries is a different hosp. and then i had a surgery in canada, but i have really good doc's from 05 to current, do you think that will hinder me the old stuff that is?

artist guy


artist guy
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   Posted 2/20/2010 3:29 PM (GMT -7)   
well lucky i have a pack rat for a wife she found all of my record that went back to 1970-71 very graffic and really kind of sad to read, one of the reports said that when they removed most of my illeium and that they had left other parts that still had disease and more than likely it will reoccur later in his life. so that is a good report. the hopital in canada has been leveled due to asbestos but I called another hosp. thatI had jaw surgery. and they said SS can get them quite easily or my dr. could, i don't think my dr. would but lawyer's might, but they said dr can get them within days where if I tried would take months, We have a friend who is on ssdi and she is going to help me fill out forms, so thats a positive help, and then this tuesday aI'm goingto pick all my 05-2010 colonsc. records so I will have a huge file of stuff to come in with, I'll let you know how it goes, take care of yourself. we love utah we would drive thru there twice a year going to alberta, great place to live, the high country is beautiful

artist guy


artist guy
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   Posted 2/21/2010 1:18 PM (GMT -7)   
I have another question, should I make copies of all my surgeries from 1970 and give ea. dr copies and SS copies as well or give SS original and make copies for myself?

artist guy


prof
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Date Joined Feb 2003
Total Posts : 1195
   Posted 2/21/2010 1:40 PM (GMT -7)   
Hi:  I have been on disablity for a few years.  The process  can vary from state to state.  Here are some of the recommendations I have. The process can take up to a year or so.  Expect to be denied the first time.  I  got a lawyer who specialized in disablity to help me on my appeal.  Anyway...
1. Answer all questions as if you are having your WORST day.
2. Try to show how the CD effects everything. such as.. yes I can go to the supermarket BUT... need to know where the Br is...may not make it thru..   have alot of fatigue..impaxts on my life and hwo much I can do.. ec.
3. ALL doctors need to be on board. VERY important. Also, any letter they may write needs to say.. CAN"T WORK!
 
I was denied twice... then had a hearing with a judge, My lawyer prepped me well.
Good  luck..  if you have questions.. give a shout out!
Prof


artist guy
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Date Joined Jan 2010
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   Posted 2/21/2010 7:23 PM (GMT -7)   
hey dawg, can I ask you what med's are on,and what were you on when you filed?

artist guy


artist guy
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Date Joined Jan 2010
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   Posted 2/25/2010 9:00 AM (GMT -7)   
hey tistodawg, my internal dr filled out form that law firm sent and she said I can't work due to my acute to moderate flares from my throat and canker sores in my mouth. I picked up forms from my gi report of colonoscopy and endoscopy from 06 and he put me on pentasa at that time, my current dr's i did not get my records for i feel ssa cna get those since they are local. have you had and surgeries? and what med's were you on when you went in for your first interview. right now I'm on imuran and pred. with vicodin for pain. I'm a little nervous. but how long did youwait before you got medicare ins.? once your were approved

artist guy


jeanneac
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Date Joined Feb 2009
Total Posts : 1812
   Posted 2/27/2010 7:14 AM (GMT -7)   
Just wanted to say good luck artist guy. I think there should be people with various diseases like IBD, MS, etc.... on the board of SSI because we are the ones who know how much a person suffers with this crap. Also, we know how a person has to be at the end of their rope to ask for it. Unfortunately, there are too many deadbeats who try to get something for nothing. IBD should be at the top of the list for disability if you ask me. How they expect people to work when they are so sick is totally beyond me. If I didn't have a job with extremely flexible hours, I would have probably been in deep trouble with my employer last year. Again, god bless and good luck. Keep us posted on how it is going for you.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, advair, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
zoloft, rolaids, pepsid (as needed)

ALLERGIC TO SULFA, AND ANTIBIOTICS GIVE ME DIARRHEA!
Blood test positive for Crohn's via prometheus ibd serology panel


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 2/27/2010 1:45 PM (GMT -7)   
thanks for all these good questions and input! i've thought about applying for sdi but didnt know how to go through the process. do you have to be currently working to apply? im working pt in the evenings, which unfortunately is my worst time but i cant work during the day because i have a daughter to look after. my job hasnt been very willing to work with me through sick times and im afraid i could lose my job because of it.

dawg, do you have hiputah insurance? i dont really qualify for medicaid, least from what ive been told, ive applied for hiputah but havent heard anything yet.
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008

Medication: Pentasa 6x daily, Imuran 37.5 mg, multivitamin. Probiotics through yogurt.


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 2/27/2010 10:47 PM (GMT -7)   
thanks! I was full time until my daughter was born 4 months ago. I know I made enough hours the past 2 years for short term disability (maternity leave) but haven't really checked into long term disability. HIPUtah is the health insurance pool of utah, it's for all those who can't get insurance because of chronic conditions, state funded but ran through IHC. When I was FT at work I had a regular health plan, but when I moved to pt they only offer a $20,000 max plan, and only a certain amount of that can be used for drs appts etc, it's not enough to cover me. i've tried 4 other companies but all won't because of my colitis and now crohns. If my husbands work offered health insurance i'd be on their plan, but they are a small company, under 50 employees. Anyways, sorry I got off topic. I'll have to look into that, thanks again!
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008

Medication: Pentasa 6x daily, Imuran 37.5 mg, multivitamin. Probiotics through yogurt.


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/28/2010 8:43 AM (GMT -7)   
yea not being able to work due to illness has ben a nightmare for me and my wife, sure I get 55% of last year pay which is only going to be $2,200 a monthbecause I didn't pay diec with my home based business, so i don't 55z5 of my true gross, and this only for 52 weeks with no ins. so I have to pay cobra over $300 a month, now we are going thru loan modification with the bank, obamas plan to make our mortgage affordable in order to keep our home, that alone is nightmare we have to send a least 10 faxes from hardship letter to bank statements last 3 months of our business, which this time of year is slow, I'm opening new gallery mid march so it is weird to try to convince bank to take a chance on us for future income, plus they want total expense account of your entire month, what it cost you to live, how much money you spend, then they see if you qualify to get you a 2% loan for 90 days test  then it can go for 5 years or 35years, we just want to keep our home, we've never been late on any payment of any kind so that helps,but ssdi is ok but you don't get medical for 2 years, that is a joke. my wife is self employed got her healthins from my former job, I feel like other people just falling thru the cracks of no ins. I have to have cobra witha all the blood work I have to get from my imuran, all of this stress is making me sicker

artist guy


artist guy
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Date Joined Jan 2010
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   Posted 2/28/2010 4:06 PM (GMT -7)   
oh so I don't have to wait the two years when ssdi say that Iam in fact disabled, the time starts when I apply? or accepted, I'm hoping when I apply, I know ssa certainly sent me my letter about don't miss my appt. evan if I don't have all the forms filled, and those forms are abit of ajoke, my paper work is 25 page thesis, how do you explain about your health issues from cd on 2 lines, or doctors visits or hospital stays, or med's and result of side effects, that took me 2 days to properly write down, just the emotional struggle with this disease took me 5 written pages, same with the side effect on my drugs, took me 6 pages of written stuff. or the medical tests, I've had so many, on the form they don't evan list colonoscopies, I think they do that puposely, so you won't answer. that way you are not disabled, I was told by a friend of mine who you to work for medicaid she said be super thouro, don't skip anything. so now I'm going to type it out and put in a clip type folder, and NO. evey page

artist guy


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/28/2010 8:13 PM (GMT -7)   
so you think it would be easier to win by long pages. I talked to a lawyer and she told me to call when and if they turn me down, but she said file and call her in 3 months, but i will follow your advice on shorting up my report, i scewed up the first one so I have to go back and get another one before i go in on wednesday.

artist guy


Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 2/28/2010 11:22 PM (GMT -7)   
Artist Guy I have to admit I didn't read all these posts but make sure if you have depression or are being treated for it that it's included in your application. It can tip the scale in your favour.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 3/3/2010 8:27 PM (GMT -7)   
thanks man, Iam reopening a new gallery, with help from my wife and our newly talented neighbor, I can supervise, some hands on for me but still don't feel good. i went for my interview this morning and i didf keep my papers some what short I gave one report that said in 1971 the  amount os small bowel that was removed, they could not get all the disease and that later in my life I will be affected with cd. so I felt that was very relevent to my case. but you were right they're are basically concdrned what my dr's say know, and can I continue to work. so we will see I'll know in 90 days, should anyway. getting out of the casino has helped alot that anger and negativity was killing me i took everything right in my gut. doing my artwork is certainly mentially benefiting in so many ways so i sure hope our new gallery is profitable, it used to be, so I'm opening in my old place that we had for 10 years, so i think the response will be good. Its in the mountains of san diego but it's on a corner of 2 highways that is traveled alot. i always think that things were ment to be, and i always look for silver linings, today we just found out that we're covered by cobra at reduced rate, my wife and i $250 a month, but only 18 months, but it gives us chance to get our business established, i sure like the part time thing ssdi offers I hope it works, the lady was really nice in interview.

thanks so much for your help, it was very appreciated, and i used your advice I felt wisely

artist guy


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 3/4/2010 5:26 PM (GMT -7)   
I saw my gi today, and i told him what was up with myself and ssdi, I made copies of the green form and my remarks on question 2 about why I thought I shouldn't be able to work, and question 2E why does your medical issue prevent you from working, so I answered that on the remark pages and made copies, gave those to my dr. and he felt the same as i did about trying to work in a situation where it was so difficult,i.e. bathroom and being in the public. So i told him I didn't want him surprised wiht the forms he's is going to get, and he was very much appreciated that I made copies of what i said, so we are both on the same page, bad news he wants me to start remicade, so not to thrilled about that. hope i only get past 1 denial.

artist guy


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 3/4/2010 7:44 PM (GMT -7)   
you my friend are my angel, you have given me so much help, i can't thank you enough.
artist guy

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