I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
Post Edited (MMMNAVY) : 2/22/2010 8:01:40 AM (GMT-7)
I totally know where you are coming from, we could almost be talking about the same boys (even down to the height 5'5 )
You should of seen the smile on my son's face when the consultant told him minimal fruit/veg! My son was weighing under 98lb when diagnosed. He was put on an elemental diet for about 7 weeks (no weight gain) and has now been back on solid food for about 16 days.
There seems to be so much conflicting advice on foods but we were told by dietician that fatty foods were ok because he needed to gain the weight and the consultant said no brown/wholemeal foods-white all the way! Typically high sugar/low fibre cereals are good too-it feels really weird food shopping as I now tend to go for the typically 'unhealthy'(for most of us anyway) foods.Since the elemental diet his taste buds have almost done a 360 turnaround and things that he wouldn't have eaten before he now wants several times a week(fish/eggs are an example) there are a few old favourites lurking like burgers, spaghetti and pizza though. In addition to his normal food he is also on a liquid energy drink and a high calorie shake (mixed with full fat milk)every day to give him even more calories. One of the shakes comes in a neutral flavour which is handy because mixed with milk it can be added to anything that needs milk as an ingredient.During these past 16 days he has put on 14lb!! He is also on entecort at the moment so that may also be a contributing factor to his increasing appetite/and or weight gain.
If your son likes milk shakes I would highly recommend the calorie shakes(we have chocolate, strawberry, banana, vanilla and neutral flavours) They certainly taste good You could also add ice cream to it to boost the calorie content even more(if you/son ok with taking milk)
I would let him eat what he feels like-I am sure that him (and my son) not eating much fruit and veg isn't simply a "don't like it" thing-they(or their bodies) just somehow know that it isn't right for them
He will get there!
You must have a big freezer! What we have(as in the calories shakes) comes in a sachet and we just add it to the milk each day-never got through so much milk in my life. The calshakes taste far better than the energy drinks (which to me smell like SMA baby milk!)
He had Crohns undiagnosed for a good two years plus and he was going into his GCSE exams(here in UK they are the exams at the end of 'compulsory' schooling') doubled up in pain, but despite this got good grades. he has now gone on to do his A levels(another two years schooling) at a different school, within 6 weeks of starting there he had lost loads of days due to appointments, tests, illness etc and his grades have nose dived(seriously nose dived!)
These last couple of weeks though he is looking so much better and obviously feeling so much better and his grades are begining to come up again. I am sure that once your son starts getting some nutrients into his system and the pain dies down he will begin to focus again.
I think the problem with most unaffected people(including teachers) is that they do not understand this disease and how it can affect the body(malnourished, anaemic, easily tired, pain. toilet issues etc) they just don't get it!! I went onto the NACC web site(National Crohns and Colitis Association) and printed off a information sheet(lol or should I say about 10) that is produced specifically for schools detailing the condition, it's affects and what the school can do to help from allowing use of a fridge for keeping energy drinks cold, allowing the pupil not to have to request going to the toilet when they need to go-they just go!, special provison for exams, home schooling and the effects that prescriptive drugs can have on a person and issues they may face such as bullying and self esteem issues.
It may be worth giving the school a copy so that they can be educated
Things will turn around, hang in there
Post Edited (vixen) : 2/23/2010 2:24:39 AM (GMT-7)