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Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/23/2010 4:09 PM (GMT -7)   
I saw in a response to another post that you were wondering about your son's Azithropine(sp) dose and that it seems that others have had side effects from it. I just wanted to let you know that not everyone has side effects. Lots of CD patients have good results from it, or it wouldn't still be in use. I have had good results from 6MP, same drug just metabolized differently. I have been on it for over 12 years. I have never had any of the side effects that you hear about, nausea, tiredness, hair loss.... You do need to make sure that you keep up with bloodwork to make sure that your liver functions are good. And you should have your doctor send some bloodwork to Prometheus occasionally to make sure that the dosage is correct. I have been on 125 mg and I am a 5' woman, through testing, we found it to be too high a dose and I am back down to 50mg. But through out the 12+ years I have been on various doses depending on how my disease was and how the lab results were. Unfortunately, like most of our medications, sometimes they stop being effective or start to cause problems. My lab tests are starting to show some high liver levels and I may have to lower my dose or go onto another medication. BUT, it gave me over 12 years for science to come up with the NEXT medication, and I'll take that.

Hopefully it will work for your son, it can be a good medication. Just stay on top of the blood work.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/23/2010 11:04 PM (GMT -7)   

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 2/24/2010 1:38 AM (GMT -7)   
Thank you for the reassurance Zanne. I guess that when I think of drugs and dosages I think of (what is in my mind) larger doses=larger people/more severe a condition. I'll get there. I have already got him booked in for his blood test next Tueday, he is having a test each week for 2 weeks then going up to 100mg, then another 2 weeks of testing, then going to fortnightly testing for a month and then every 3 months. I don't know what prometheus is(yet) willl have to go and look that one up.
I think that I am having a brain overload at the moment regarding what he is suposed to be taking/doing and when!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/24/2010 11:22 AM (GMT -7)   
Prometheus is a lab that is the only place that does specific testing. They can test your son's blood to see if he is at a therapeutic level with his azithropine without being at a toxic level. It is really the only way to tell if you have reach that delicate balance of helping without harming. But like a lot of things, insurance doesn't always like to pay, so you have to get prior approval sometimes and can only have it done so often. That was how we found out that my dose was too high and I was not at the right level. They also are the lab that does the test for IBD markers. When you read more posts you will hear about Prometheus more.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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