Well, my son is in the hospital!

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Potsie
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Date Joined Oct 2009
Total Posts : 291
   Posted 2/23/2010 5:32 PM (GMT -7)   
He had an appt today with his gastro doctor, and the doctor said he needed to be admitted. He's lost 12 pounds in 2 weeks and his heart rate was 140. Could use some prayers.

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 2/23/2010 5:35 PM (GMT -7)   
How old is your son? Said a prayer right now, hope he gets better quickly!
Diagnosed with CD 2006.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


Ashworthml
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Date Joined Jan 2010
Total Posts : 222
   Posted 2/23/2010 5:36 PM (GMT -7)   
sorry to hear that :( your in my prayers and hope all goes well and he gets better soon. x
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/23/2010 5:46 PM (GMT -7)   
Dinky, he's 23. I really appreciate the prayers. You too Ash!

springthyme
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Date Joined Jan 2010
Total Posts : 21
   Posted 2/23/2010 5:52 PM (GMT -7)   
Will say a prayer!

Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/23/2010 5:53 PM (GMT -7)   
Thanks spring!

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 2/23/2010 6:58 PM (GMT -7)   
My thoughts are with you and your son. I hope he starts to get better soon!
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/23/2010 7:48 PM (GMT -7)   
My prayers are with you.

When I was pregnant and very sick with obstructions, I called a few prayer lines of various organizations. I even called some local churches and had them put me on their prayer list. I was facing surgery while pregnant! The obstructions stopped, Thank God. Prayer works.

Hope your son is better soon.

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 2/23/2010 8:07 PM (GMT -7)   
Hey. I'm so sorry your son is doing so poorly. It sounds like he's pretty dehydrated. I know when my hubby was really sick and got dehydrated, he too developed tachycardia (fast heart rate), even when laying down. A couple of bags of saline later, his heart rate came down.

I know that when my husband was very ill, it was a relief for me to have him in the hospital in some ways. At least there, I knew he was getting the care he needed, whereas I constantly worried at home about what was the right thing to do - do I give him gatorade, even though it has so much sugar, do I give him pedialyte instead, what do I feed him, did he take all his meds . . .

The hospital is where he needs to be to get better. Hopefully that'll be soon. I know that he's on remicade, but I don't know what other drugs he's on. They'll probably rehydrate him, and start him on high dose steroids to get this flare under control. They may also put him on enteral nutrition, perhaps with a feeding tube - this should help him keep his nutritional status up, and maybe put on some of the lost weight. They may also get a colonoscopy and other tests to see how bad the inflammation is, to see if he needs a surgeon following his case - don't let this alarm you, the surgeon is just around in case these medical options don't put your son on the road to recovery. I am not sure if your son has been hospitalized before, so I know this could all be new and very scary, so I hope this gives you an idea of the things they'll probably do at the hospital.

Sending positive thoughts your way. Hopefully it'll be a short hospital stay with your son firmly on the road to recovery soon.

Hugs,
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Stomach Flu Feb 2010
Canasa (1gm), Lialda (4.8 gms), Remicade (6 weeks), Pred (5mg every other day)
Hoping to stop pred, and move remi back to every 8 weeks soon
Currently In Remission


MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 2/23/2010 8:18 PM (GMT -7)   
Sorry to hear...sending healing thoughts your way!
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
2nd opinion March 2009 - diagnosis UC and not Crohn's
 
Currently on 20 mg Prednisone & flaring :( 
Previously on 2 Lialda and Rowasa enema...developed pancreatitis


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/23/2010 8:22 PM (GMT -7)   
PV, he was in the hospital for a month last year. He went through hell, but he was a lot better when he came home. They're going to do a colonoscopy, and a cat scan. I don't know what else. He takes other meds, but I can't ever remember the main one. It starts with an M. He also takes vitamins. Thanks for all your prayers and information.

Roni, yes, prayers do work.

Jessie's_girl, thanks to you too.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/23/2010 8:26 PM (GMT -7)   
Hope he gets better real soon! Perhaps he needs a transfusion?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/23/2010 10:16 PM (GMT -7)   
You mean blood? Not unless he's losing blood somewhere.

Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/23/2010 10:18 PM (GMT -7)   
Thanks MustLoveDogs!

vixen
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Date Joined Jan 2010
Total Posts : 794
   Posted 2/24/2010 1:46 AM (GMT -7)   
Thoughts and prayers are with you all. No doubt you are going to be worrying yourself senseless and going back and forth to the hospital
but try and give yourself a bit of time too (not easy I know) but even just 1/2 hour doing absolutely nothing will give you time to recharge your batteries. By looking after yourself you will be in a much better place to look after your son when he gets home.

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 2/24/2010 5:02 AM (GMT -7)   
Sending prayers your way. I hope they can come up with a successful treatment plan.
Sincerely,
Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 2/24/2010 5:20 AM (GMT -7)   
hi, Postie sorry to hear this, your son is in the best place right now hopefully after the tests they will be able to get him sorted out poor lad. I had a similar experience last year and as PV states he could be quite dehydrated will keep you all in my thoughts. Please keep us informed and let your son know we are all rooting for him to get well real soon. Bev x
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)


" I may not be there yet, but I'm closer than I was yesterday."


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/24/2010 5:26 AM (GMT -7)   
Thanks vixon, Irishmom, crohnielass!! I love this place! I'll be at the hospital all day with him.

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 2/24/2010 8:30 AM (GMT -7)   
With all the compassion on what you and your son are going thru, and certainly my prayers are with you and yours.
Have you ask him if he wants you to stay with him at the hospital?  Because it is delicate balence with being there.  Is difficult to have someone there when you need to control your pain. 
Plus, I am torn between you needing to be there to advocate and care for him or him needing to find a way to do this on his own.
I know he is really sick, and it is a judgement call on what area is best for him and you. 
 
I am glad he has you to back him up.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 2/24/2010 6:05:58 PM (GMT-7)


Squattie
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Date Joined Jul 2005
Total Posts : 669
   Posted 2/24/2010 1:29 PM (GMT -7)   
I'm with MMNavy in asking if he would like to have you there all day. I know when I was in hospital and terribly sick I didn't want anyone around me. I just wanted to rest and sleep if I could. It's hard enough to get rest with all the nurse and bathroom activity, etc. I always felt like I had to stay awake and entertain anyone who came to be with me.

I really appreciate that people care for me. But if I'm sick enough to be in the hospital, then I'm really sick and don't want to visit. I usually tell my mother to let everyone know that I don't want any visitors until I'm feeling better.

Also, I have an understanding with my mother that if I'm in the hospital, she's to do what she needs to do to have "down time" for herself. Because she is usually the one doing all the care for me prior to being admitted...and after I get home. She need the rest when she can get it as well.

It's never a question of caring enough. My mom would have been there 24/7 if I asked. She was never more than a phone call away. I would call when I felt up to it. And she could relax knowing that I was being well taken care of.
.....Squattie


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 2/24/2010 4:31 PM (GMT -7)   
Prayers and thoughts for your son.  It might make him feel better if he has his own pillow, it always makes me feel better.  How many times has he been in the hospital? The first couple times I was in my mother stayed with me 24/7, now I feel comfortable being alone and I prefer it, she just stops down to see me everyday after work for a few hours and watched TV with me. 

Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/24/2010 5:50 PM (GMT -7)   
Prayers to you and your son. Keep us posted please!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 2/24/2010 6:00 PM (GMT -7)   
The first couple of times that I was hospitalized I really wanted to have someone with me because I was scared (didn't want to admit it cause I am a young man) and bored. Then when I was hospitalized for nearly a month I could see the toll after a few days that my wife was having spending her nights at the hospital and days at work. There was no reason that she had to try and sleep on a hospital pullout bed every night when all I was doing was sleeping or watching television. On the other hand, it was really nice to have her up there in the evenings to talk to and bring stuff from home for me to do. My parents also felt like they had to be there all the time but now they usually just stop in for a couple hours every day when I am there and help give my wife a break.
Don't get me wrong, I loved having visitors. It is just really hard to concentrate on conversations sometimes when you are in pain or really sick. It is also a little embarassing to hear some of the morphine conversations that I have with friends and family members. The best thing that you could possibly do is visit him every day ( sometimes a couple times a day in morning and evenings) and bring him a laptop up there. Most hospitals provide wireless access and it would give him something to do to break up the long hours spent doing nothing. It also helps him have something to do to get his mind off of the pain. Another good thing if you have one or can borrow one is to bring an ipod up so that he can listen to music, pod casts, or audio books on tape. My wife also brought me up my own pillow and a blanket from home to help make me more comfortable.(She is awesome)

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 2/24/2010 6:13 PM (GMT -7)   
You and your son are in my prayers.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 2/24/2010 7:50 PM (GMT -7)   
Sending prayers your way. Hang in there during this tough time, Mom. Sometimes I think it's harder to be the loved one waiting than the one in the hospital, and I've been in both positions. Make sure you are taking care of yourself so you can be there for him when he needs you.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet, prednisone, cipro, flagyl

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