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Regular Member

Date Joined Feb 2010
Total Posts : 40
   Posted 2/24/2010 5:17 PM (GMT -6)   
Hi, I am new to the forum.  57 year old female diagnosed w/ fistulizing Crohn's after 2 years problems w/ bleeding, mouth sores, stomach problems.  Initially they thought it was ulcerative colitis, and was prescribed cortisone and mesalamine enemas for 9 months.  Tried oral mesalamine, also Lialda, which made it worse.  After a couple trips to hospital w/WBC of 20,000 they ended up keeping me for a week in April on IVs w/no food or drink by mouth.  Also developed iritis 3 weeks before last hospital stay, and have continuing problems with dry eyes and vision.  Also joint pain, dry mouth.  Tried 6Mp and Imuran, but liver couldn't take it, and am now on Remicade since August, which seems to be the first thing that is helping.  Keeping my fingers crossed!  I don't think I will ever feel the way I used to, but as long as I can stay active and out of the hospital, I can't ask for more!

Regular Member

Date Joined Jul 2008
Total Posts : 383
   Posted 2/24/2010 5:57 PM (GMT -6)   
Hi! Welcome! I haven't been posting long, but have been reading forever. Everyone here is so knowledgeable and supportive and have really helped me alot by answering questions and just knowing that you're not alone with this. Good luck!

Dx'd w/ Crohn's in 1979 at age 14, have had minor flares throughout the years, but mostly kept in remission. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. Was on Pred. Dr. wants to try Humira...
Currently just take a multivitamin, calcium, magnesium, and fish oil.

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 2/24/2010 6:13 PM (GMT -6)   
Many here have done great on Remicade for years! Hope you continue to do well.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

Regular Member

Date Joined Feb 2010
Total Posts : 40
   Posted 2/24/2010 9:11 PM (GMT -6)   
Thanks! I was wondering how long you can stay on Remi...!

Regular Member

Date Joined Oct 2009
Total Posts : 57
   Posted 2/24/2010 10:57 PM (GMT -6)   
I'm not sure i know your body can build antibodies to it not sure if there is a time limit to it i just started remicade 2 weeks ago go for my 2nd infusion tomorrow. Welcome, Im newer here, i was on here before and then we moved and ive been quite ill so i haven't been on the computer much but been on again recently. Im determined to get my life back im very sick of being sick and no one understands what i am going through. Here people "get it" i read peoples words and i wanna say hey those are my thoughts its weird lol. but anyway welcome i hope the remi works for you, im praying it works for me nothing else seems to
Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Remicade Feb 2010, Immuran, rel-pax, Topomax, Corticosteriod Suppositories, lantus, humalog, 2000u vit d, calcium, multivit, omega 3, Vit B

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 2/24/2010 11:21 PM (GMT -6)   
Ive been on remicade for just under 3 years, so far so good.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 2/25/2010 12:22 AM (GMT -6)   
Welcome to HW! Glad the remicade has kicked in and started helping!

I was on remicade for about 2 years, and only switched to humira because my GI is a while away and she thought it would be less stressful for me to do my own injections instead of coming to her office for infusions. (I live in Atlanta, GA and sometimes the hour drive turned into 3 hours coming home because of traffic!)

Hope things continue well with you on remicade!

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin

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