cracked corners of mouth from malabsorption

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vls
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Date Joined May 2005
Total Posts : 166
   Posted 2/25/2010 4:35 AM (GMT -7)   
Anyone have an answer to this.  Scar tissue thruout small intestines and colon has inhibited the absorption of vitamins, (I'm taking multi-vitamin plus a folic acid w/DHA and B12 and chromium, I can't get rid of this cracked/peeling skin at the corners of my mouth.  I'm also taking apple cidar vinegar to neutralize acid in case that's contributing, but it just won't go away.  Any ideas?
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


Ashworthml
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Date Joined Jan 2010
Total Posts : 222
   Posted 2/25/2010 5:05 AM (GMT -7)   
I also have the same problem as you but I also now have mouth ulcers which I have had form in the past week or so. I am also taking multivitamins as well as omega 3,iron,vit D,calcium and B12.Along with the pentasa and at the moment prednisone.
I'm just so fed up of everything happening and dont know what to do about it either.But I'm going to the doctors tommorrow so will hopefully get some answers!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


aronk
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Date Joined Jun 2006
Total Posts : 229
   Posted 2/25/2010 8:11 AM (GMT -7)   
Sounds like it could be thrush. I get cracked sores in my mouth from being on antibiotics, particularly flagyl. Once dose of Diflucan clears it for me.
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort, and Imuran trying to get the drainage to stop. 
 


medchrt1
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Date Joined Sep 2005
Total Posts : 517
   Posted 2/25/2010 8:17 AM (GMT -7)   
vinegar is acidic, and acidic foods will not neutralize what you say is an acid condition so not sure of your reasoning there. (base neutralizes acid).
Anyways, I would say take a supplement of B vitamins specifically B2, and check your electrolytes such as potassium from a blood test with a doctor as potassium is difficult to control and should not do that on your own until the blood test shows if you are low or high.

vls
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Date Joined May 2005
Total Posts : 166
   Posted 2/25/2010 12:44 PM (GMT -7)   
OMG, you're right medchrt1, apple cider vinegar is acidic. What was I thinking??? Since it was recommended for acid reflux, I assumed it neutralized the acid. All the other benefits associated with it tho, I think I will continue taking it. My GI saw my mouth and said "vitamin deficiency" but nothing else. Recent blood work showed B12 normal, Potassium, normal, everything looked good. You think I should see my GP or a dermatologist, or both?
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


medchrt1
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Date Joined Sep 2005
Total Posts : 517
   Posted 2/25/2010 4:26 PM (GMT -7)   
you can check with either doctor to see if the cheilitis is candida, i.e. Candidiasis. (check the advice on tackling that). You already that the antibiotics have wiped out your natural flora as been said, so probiotics, a specific carb diet without refined sugar for a while, a celiac (gluten fee, yeast free) diet can all help now. having a bit of lemon juice (which is acidic) in tea is ok, if the idea is that it would be replacing a refined sugar or soft drink consistent with what a SCD diet is doing. I really dont know if this is crohns mimicing candida aggravated by antibiotics, if its the fact you have been on antibiotics long time, or if its actually candida, but I still say you should be increasing your B vitamins. I would ask your doctor if they could be sure its not candida and only then can you increase your sugars which ultimately might help,, but this is your call as you dont want to "feed the yeast infection" with sugars so check with doc first.

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 2/25/2010 4:57 PM (GMT -7)   
Thanks so much for the advice. It might be candida since I was on xiflanan a couple of months ago. I have an appt in the morning with GP. Thank you
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


randynoguts
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Date Joined Jan 2003
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   Posted 2/26/2010 3:33 AM (GMT -7)   
yep, yeasties, OR drooling at night will cause it too but if you dont drool for a couple nights it heals right up, so if ongoing dr. randy says yeast of some type.
randynoguts 



     http://www.geocities.com/randynogutsweb/


vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 2/26/2010 3:51 AM (GMT -7)   
this makes sense.  Thinking back, I had key lime pie...the next day the corners of my mouth were cracked, peeling and bleeding.  Put vasaline on it and no desert the following day and today it looks so much better.  I wonder how they check for candida?  My appt is at 9am, but of course, now it looks so much better than it did yesterday when I made the appt I hope I don't come across as a hypocondriac.  It's still a little red but not cracked and peeling. 
 
thanks everyone for all your input.
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 2/26/2010 8:01 AM (GMT -7)   
Ive never been checked for candida or thrush, but just by looking they can usually tell. The doctors just take my word for it now if I'm on a antibiotic. They prescribe one diflucan like I mentioned earlier and that usually does the trick.
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort, and Imuran trying to get the drainage to stop. 
 


bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 2/26/2010 10:09 PM (GMT -7)   
Hi.  It's really interesting that i came across your post.  i too have cracked the corner of my mouth.  I literally woke up one morning, yawned, and the corner of my mouth split open.  i thought it was because i had chapped lips but they weren' that chapped.  so anyway it has been about 2.5 weeks since it split and it doesn't hurt but it's annoyin because everytime i open my mouth to yawn or eat it reopens.  It scabbs up and then reopens.  I brought it up to my doc on thursday and he says sometimes that happens when you are anemic.  i have iron deficiency anemia which i will be goin on venofer iron infusions in three weeks.  it looks gross and it looks like ihave a sore on the side of my mouth but it isin't.  there is no sore there what so ever.  thank you for posting this comment.

artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 2/26/2010 10:58 PM (GMT -7)   
i have crohns flare in my throat, it starts with canker sores in mouth that is really painful then it goes to my throat and then it travels back to my tongue with taste buds completly inflamed, I can hardly swallow without pain and I've had food stuck in my throat to many times to count, the only thing that helped was imuran and pred. currently on these med's then i have cd where i've had 2 resections, so it is like battleing teo cd areas, small bowel and throat, mouth, it is so bad I'm currently on state disability and appling for ssdi, I'm 59 and have battled this since 1970, looseing the battle, but I also bet cracks on the corners of my mouth when I'm in flare


forgot to mention my absorbtion rate is poor at best 9ft of small bowel removed, so I have what is called dumping syndrome, with severe hypoglycemia, lack of food absobtion
artist guy


vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 2/27/2010 7:20 AM (GMT -7)   
Saw my GP yesterday and she took one look at the corners of my mouth and my tongue and said it's deffinitely B12 deficiency. I said blood work a month ago showed B12 in normal range. She wanted to do more blood again for folic acid and B12, and again, in normal range. When she called to tell me she still insisted it was B12 deficiency, which made no sense to me but she said to put zinc oxide on it. Reluctedly I went out and bought some thinking she must be nuts, but it worked!!! This morning you can hardly see it. I questioned her about candida and she was insisting that it was B12 due to "ridges" on my tongue. I'm just thankful it's sooo much better even tho I can't understand the blood work being normal.
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 2/27/2010 7:24 AM (GMT -7)   
Bella3250...the iron deficiency is something we never addressed.  My hemoglogin was 9.7, which GP said was fine, but I thought it should be more in the 12-15 range.  I wonder if that has anything to do with it?
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 2/27/2010 7:47 AM (GMT -7)   
I'm glad to hear you have some relief!!!

Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort, and Imuran trying to get the drainage to stop. 
 


dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 2/27/2010 11:56 AM (GMT -7)   
I have this issue my Dr's for a while told me to break oopen a vit E capsule and put that on it..however that did not help me. then I had another dr tell me to take zinc pills. This did in fact help my problem/ I also use lots of medicated chap stick to help keep the areas moist etc
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


jsk218
Regular Member


Date Joined Jan 2009
Total Posts : 29
   Posted 3/1/2010 12:04 PM (GMT -7)   
As a short-term solution, you might try rubbing A&D Ointment on the corners of your mouth - I know it helps a lot for me! Some folks think of this exclusively as "diaper rash" treatment, but it's good all over for your skin. (And for you squeamish moms out there - just get a special "dedicated" tube and keep it away from the changing table!)

Feel better!
Diagnosed with Crohn’s Disease in Jan 2007, though sick since mid 90’s. Currently on Humira and Protonix. Have had success with Entocort and Cipro; negative experience with Methotrexate.


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 3/1/2010 12:51 PM (GMT -7)   
I would also say it is really easy to contaminate a lip gloss container so replace them often.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 3/1/2010 1:37 PM (GMT -7)   
My brother gets this from drooling at night. His doctor gave him an anti-fungal cream to use when he gets it. Clears it right up.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 3/1/2010 2:45 PM (GMT -7)   
The zinc oxide, which is diaper rash medicine, is helping, but it just won't completely go away. I can't understand the B12 deficiency theory from by GP when bloodwork shows it to be normal
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


snohare
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Date Joined Oct 2004
Total Posts : 2088
   Posted 3/1/2010 4:04 PM (GMT -7)   
Riboflavin (B2) deficiency is commonly associated with cracked lips, B12 deficiency is not so much. However sores at the edges of the lips may be a sign of borderline B12 deficiency, together with other symptoms too numerous to list here - mainly neurological, but including fatigue and migraine. A smooth tongue (sometimes with plaques called oral lichen planus) and ridged nails can also be signs.
vls, I think I can tell you why she thinks that B12 can be the culprit even though the blood work came back okay. That is because (unusually for a doctor) she obviously knows of research which was done by the Mayo Clinic several years ago, to test the accuracy of the blood test used to check for B12 deficiency.
They looked for clinical symptoms of B12 deficiency independently of the blood test in a sample of patients; treated them over a period of time while taking repeated blood tests, and looked to see how the clinical symptoms of B12 deficiency compared to the blood test. What they found was the blood test said that there was no deficiency even when there were numerous symptoms of deficiency. Not all the symptoms, necessarily, but certainly sub-clinical deficiency at least. So when the blood test said "within normal range" or "low end of normal", a patient was likely to have symptoms of deficiency. The reason apparently is that the blood test was a rough and ready way of obtaining results with a low level of reliability back when tests typically were of low sensitivity; as the ability to test with greater accuracy improved, the diagnostic scale was assumed to have also increased in accuracy, but did not.
Sadly, doctors who know of this research are as rare as hens teeth - obviously the research paper was not often cited, and died a death - and so the blood test is usually treated as accurate to this day. eyes Us Crohnies know better... it is a perennial problem for patients on these pages to have the symptoms, but the blood work says they are okay.
Zinc deficiency, like anaemia, is also something that comes up as a common cause of cracked edges of the mouth, and again is associated with chronic malabsorption same as B1, B2, B12 et al. Generally, if you are lacking in one, you will be lacking with some if not all of them, some if not all of the time. There is a complex interaction between all B complex vitamins, whereby under some circumstances some will improve the efficiency of other B vitamins, yet under different conditions (eg with carbohydrates) will decrease the effect. (The technical term for this is "antagonists" and "protagonists".) This is why taking a B Complex supplement may do no good whatsoever for ameliorating a B vitamin deficiency; the situation is so complex it is likely to be pot luck.
And just to confuse matters further, all are used by yeast, and are likely to be associated with yeast infection ! (And a diet high in refined carbohydrates/sugary foods. To digest these burns up a lot of these nutrients, and is a large part of the common Western dietary nutritional dysfunction profile.)
idea I do believe that is pretty much all that I know about this subject ! yeah smilewinkgrin

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 3/2/2010 2:01 AM (GMT -7)   
Well, I'm impressed with your knowledge. Thank you for taking the time to educate me.
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009


*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 3/2/2010 6:36 PM (GMT -7)   

Wow this is all really interesting, I used to get this a lot before I was on remicade, and I’d always thought it was just ‘winter’ - even though it doesn’t get very cold in sunny Queensland!! Very very interesting.


joy47
Regular Member


Date Joined Feb 2010
Total Posts : 75
   Posted 3/2/2010 9:10 PM (GMT -7)   
Hey this is joy47, talking about cracks in your mouth. Im always dealing with it especially when Im on antiobiotics or crohns is actived. I have the doctor order a small dose of the liquid medicine the name eludes me at the moment, for thrush. I use a q-tip on the corners for about a week at least 3 or more times a day. And it goes away everytime! well hope it helps. good luck to you.

joy47
Regular Member


Date Joined Feb 2010
Total Posts : 75
   Posted 3/2/2010 9:48 PM (GMT -7)   
hey its joy47 again. It bothered me i couldnt remember the name of the medicine for thrush in the corners of my mouth. Well it finally came to me its nystation. Give it a try its cheap and if its a yeast problem it will work. :-)
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