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1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 2/25/2010 7:01 AM (GMT -7)   
Has anyone experience eye problems with CD?  I was diagnosed with iritis a few weeks before I had to be hospitalized w/CD, and although the iritis cleared up with steroid drops (and prednisone for 3 months), I experienced dull eye pain for months after that, also severe dry eyes.  For the first couple of months I was unable to read more than a paragraph (I used to read several books a week).  Also TV and computer bothered it.  That aspect of it has improved, although the more I use my eyes, the more tired and dry they get.   I have had punctal plugs put in, and have been on Restasis since end of December.  I also am on Remicade.  Right eye had been slightly crossing for last couple of years; had difficulty looking to the right.  Was referred to neuro eye doctor; at first he thought it was myasthenia gravis, as one of the 4 blood tests came back positive (smooth muscle antibodies), also 2 positive sleep tests.  But then the last sleep test was negative, and he doesn't believe it is myasthenia anymore.  Other docs have mentioned Sjogren's.  My GI doc does say that autoimmune diseases tend to come in bunches..confused .  I have always had terrible vision, but being unable to wear contacts anymore makes it 10 times worse, as the glasses are so thick  that my vision is really distorted.
It just seems really too much for coincidence that all these eye problems started right before a major flare..., and I know that iritis is associated with CD..
 

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/25/2010 7:13 AM (GMT -7)   
Ive been told my optic nerve is crossed with my rectal nerve giving me a crappy outlook on life at times. Just kidding , I have been dx with glaucoma in one eye but the doc says there is nothing that points to my meds. It has responded well to med eye drops too . Hope you do better soon...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 2/25/2010 9:25 AM (GMT -7)   
I used to work in a casino until 2/18/10 for 5 years. I got pink eye 6 times. crohns you are suseptical to pink eye more than normal people, my eye's are easily irritated, which with crohns we are.

artist guy


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 2/25/2010 2:06 PM (GMT -7)   
Good joke, Sniper!!

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/25/2010 2:33 PM (GMT -7)   
Have they tested you for Sjorgren's? That would be a logical step. Also, how are your eye pressures? When I was having lots of flare issues, my eye pressures would get really high. When they got my inflammation under control, my eye pressures came down. I always had increased vision issues when my pressures were high.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 2/27/2010 8:06 AM (GMT -7)   
I was tested for Sjogren's by an endocrinologist 2 years ago, when I was having terrible problems with dry mouth and thirst. (This was a year before the dry eyes started). He said the blood test was negative, but that didn't mean I didn't have it.. but he said just to suck on lemon drops and use the dry mouth products; that that's what he would tell me to do if the test was positive, anyway. Eye pressures now are about 18; they did go up to 30 when I was on high doses of prednisone and had used steroid drops for the iritis/uveitis. They had given me Timolol drops for the glaucoma, but those caused SEVERE pain in the eye that had had the iritis, so I had to discontinue. By that point I was coming off the steroids, so the pressure came back down. They also had me on Imuran, which was supposed to prevent the iritis from recurring, but my liver functions tests got elevated, so had to take me off. Now I am just on the Remicade.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/28/2010 3:04 PM (GMT -7)   
I've had iritis twice in my life a couple years ago, and don't wish it on anyone. It happened first in one eye, then a month later in the other. Strangely I wasn't having all that many symptoms CD wise...and it hasn't happened again.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/28/2010 3:09 PM (GMT -7)   
Oh, and sniper, I think I may have the same problem as you...LOL!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 2/28/2010 4:37 PM (GMT -7)   
Becky, how long did it take your eyes to go back to normal after the iritis? It took a few months for the photosensitivity to go away completely, but it just seems like they have not been right ever since.. They have been checked with the slit lamp several times, and no cells anymore, so I know the iritis is gone..
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