Humira anniversary tomorrow

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Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 2/25/2010 8:38 AM (GMT -7)   
Tomorrow it will be one year since I started Humira (well, 52 weeks anyway).  When I started it I was getting almost monthly blood transfusions from bleeding (my hemoglobin kept dropping to 8), lots of bloating and gas and I was about 129/130 lbs. 
 
Today my HGB is 14, I've felt great for the past 8 months and I've even gained 10 pounds (though I'd like to gain much more).  I'm working 40-50 hours a week as an accontant, caring for a wonderful 8 month old daughter and even getting some exercise in.  Last year I couldn't even curl I was so exhausted and this year I haven't missed a game.
 
This was my last option before surgery, so I'm glad it worked, although I know I could need surgery at any time - especially since these TNF's have the propensity to just quit working.
 
Thanks to everyone here who helped me with the decision; and for the support over the past 2 years or so.
 
Thought maybe this post would be helpful since people always seem to post with questions about outcomes with TNF's.
 
Mike


33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 2/25/2010 8:59 AM (GMT -7)   
 
That's great!
 
It's freshening to read this news. Good luck!
 
I just completed an year of remi, but although it worked a bit, it only produced a remission with imuran along. But it is a "aceptable" one! My doc talked about stopping remi, and I was unsure...
 
What an irony! First I was afraid of TNF drugs, now I'm afraid of not having them.  smhair
 
-------------------------------------------
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 mg Imuran + Iron (sort of remission, not sure at all)
 


Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 2/25/2010 9:05 AM (GMT -7)   
"First I was afraid of TNF drugs, now I'm afraid of not having them."

Me too!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 2/25/2010 2:57 PM (GMT -7)   
Rider,

It is so good to hear that you are feeling so much better and have your quality of life back. Live it to the fullest, you deserve it. I am doing better with the Humira also. It will be 2 years for me in May.

Julia

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 2/25/2010 6:01 PM (GMT -7)   
It's so nice to hear good things on this board!! I'm so glad you're feeling better. That's awesome that people will have something positive come up when they're wondering about humira.
Congrats!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/25/2010 6:19 PM (GMT -7)   
Thanks Julia. I glad you're still doing ok, I've been wondering how you were. Thanks for the support you've provided.

Thanks S&L. We don't get enough good news posted here sometimes!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/25/2010 11:17 PM (GMT -7)   
Wow Rider, your HGB is great now! Are you still taking Proferrin? I can't find it anywhere here anymore, they told me that it's backordered everywhere, lol. Glad to hear that you're doing well!

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/26/2010 1:45 AM (GMT -7)   
Hi I am glad the Humira is working great for you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Carol
Regular Member


Date Joined Mar 2003
Total Posts : 21
   Posted 2/26/2010 7:34 AM (GMT -7)   
Glad you're still feeling better after one year on Humira.  I also feel better and have been on Humira for two years.  I'm 72 years old and previously had 3 surgeries for strictures and inflammation.  My doctor doesn't want me to have more surgery, so after my last flare he suggested taking Humira.  Since then, I've been able to eat more fruits and vegetables than I had in years and have more energy.  So knock on wood, I'll keep taking those twice a month injections.
yeah dx with Crohn's in 1990 - 3 surgeries.  Taking Omega 3, vit b-12 injections monthly, plus multivitamins.  Also on Pentasa (8 per day), and 50 mg of Imuran
 

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/26/2010 8:31 AM (GMT -7)   
Thanks everyone!

Yes, Valerie I'm still taking the Proferrin that you pointed me to. I take 2 a day. I had trouble getting them late last year as they were backordered, but in early January the orders came in. It had to do with Canadian drug labelling laws, and the US manufacturer had to make up a new batch specifically for import to Canada. So, you might want to try again, or just call the company directly and inquire.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 2/26/2010 9:06 AM (GMT -7)   
Love a positive story! For now I'm doing well on my methotrexate and occasional infliximab but humira will be whats next if and when my current combination stops working so its comforting to hear good stories!
 
 


Crohnie4Life
Regular Member


Date Joined Jan 2010
Total Posts : 69
   Posted 2/26/2010 3:32 PM (GMT -7)   
Happy Humira Anniversary!

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/27/2010 6:26 AM (GMT -7)   
Congrats! Glad Humira is working for you. I have just completed month #2 and I'm doing okay!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/27/2010 10:05 AM (GMT -7)   
Thanks guys. Keep it up Wolfie!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 2/27/2010 12:02 PM (GMT -7)   
Hi Rider Fan!

Geez, I can't believe it's been one year already!! Seems like just yesterday that you posted about starting up on Humira. I'm so glad to hear that you're doing so much better!! Like you, I was quite afraid of first going on Humira, and now afraid of NOT having it! I've been on Humira for 14 months now and doing well.

Take care---
Cheryl
54 year old female;
 
Have had Crohn's of terminal ileum for 10 years.   Small bowel resection (my first) on 7-30-09.  Monthly B12 shots.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/27/2010 6:57 PM (GMT -7)   
Thanks Cheryl. I know, I can't believe it's been a year!

How is the post-surgery healing going? I hope you're back to 'normal'?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 2/28/2010 8:16 PM (GMT -7)   
Hi Rider Fan,

Post surgery healing is going well. I'm even able to eat things like popcorn now!! Things high in fat bother me, though. But can't complain! Will see my GI doc in mid-March. Am curious to know why I'm slightly anemic again.

Well, back to watching the Olympics.

Take care---
Cheryl
54 year old female;
 
Have had Crohn's of terminal ileum for 10 years.   Small bowel resection (my first) on 7-30-09.  Monthly B12 shots.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/28/2010 9:27 PM (GMT -7)   
Popcorn...wow that's a great sign! I'm glad you're enjoying it! Let me know what the GI says. Hope you continue to feel well.

What are we going to do without the Olympics!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 2/28/2010 11:04 PM (GMT -7)   
Congrats Rider Fan!!! My next infusion of remicade in 6 weeks will be 3 years, so I'm a fan of tnf's as well! Welcome Carol to healing well!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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