june, i waited years for a diagnosis, i was wrongly diagnosed for years and then i got really bad 2 1/2 years ago (how long i've been off work) and just got a formal diagnosis. I have more than just crohn's going on so dr's like to blame it on other things. I have alot of the same symtoms as you, pentasa, asacol, questrine, immuran all didn't work on me (however i am still on immuran) i have just started remicade. I understand fully your frustration i have and still am there. i am in canada so although we have health care paid for we also have huge wait lists for everything. Right now i need to get into a surgeon according to my dr on an "urgent" basis. He tells me i'll have to suffer with the pain for a couple weeks and guess when my appt is MAY 10th. I have a recatal prolapse now because i've been going so much for so long and it comes out every time i go and let me tell you hurts like h e double hockey sticks (speaking of hockey sticks WTG CANADA GOLD!!!!! sorry lol) i don't know if i can make it that long luckily i see my GI on monday!
anyway enough of my venting just wanted you to know that you are not alone and ive been there and hopefully one of the drugs will work for you and you'll get relief soon!!!
PS you may want to try glucerna its for diabetics so it doesn't have sugar in it like ensure and its easier on the tummy. I can tolerate them and i can't drink anythink like that usually!
Post Edited (Roni) : 2/26/2010 9:48:15 AM (GMT-7)