Started Humira.......Feel worse

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justagirl31
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 2/25/2010 5:51 PM (GMT -6)   
I have been on Humira for 2 months now and all Ive been is sick. My body hurts all over, I get night sweats, chills, the joint pain is unbearble. What is going on? I called my doctor and he hasnt gotten back to me yet. How can a medicine that is used to stop joint pain make mine hurt? I am so tired, and frustrated of being sick. I hope to have a normal life someday without pain.shakehead

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/25/2010 6:55 PM (GMT -6)   
I am totally there with you.

Have been on Humira now for two months also and I am getting worse.
I am not blaming it on Humira though, I just think that Humira has not kicked in yet.
I have joint pain, stomach cramps, lots of D and bad colon cramps.
And so much pain.

I am meeting my GI for a short scope next week and we will see where it goes from there.
Sometimes it takes 6 months for Humira to work.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Humira, Asacol, Cipralex and Cerazette.
Past medication Remicade, Imuran
My wonderful dogs :) ~ www.poodle.is ~


justagirl31
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 2/25/2010 7:04 PM (GMT -6)   
Thank you ISER for your comment. That is why I love this forum, so much support and knowing others are going through the same thing makes me feel less alone. I hope your pain goes away soon!

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/26/2010 9:13 AM (GMT -6)   
We just have to give it more time ;)
I know we will get better soon.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Humira, Asacol, Cipralex and Cerazette.
Past medication Remicade, Imuran
My wonderful dogs :) ~ www.poodle.is ~


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 2/27/2010 1:40 PM (GMT -6)   
I've been on Humira now for 14 months. For the first couple months or so after starting Humira, I had various symptoms---overall body aches, joint pain, fatigue, night sweats etc. Over time, however, the symptoms subsided. Currently, I have no bad side effects from the Humira, except for the first few days after the injection ~ fatigued, overall body aches, joint aches. But after a few days, this all goes away.

Of course everyone is different! Sometimes it's difficult to know whether it's just your body getting used to the medication, OR if you're having a hypersensitivity/allergic reaction. Always best to check with your doctor.

Good luck!
54 year old female;
 
Have had Crohn's of terminal ileum for 10 years.   Small bowel resection (my first) on 7-30-09.  Monthly B12 shots.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/27/2010 3:11 PM (GMT -6)   
There can be the lupus like reaction with the A-TNF's.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


tamsprote96
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 2/28/2010 8:39 AM (GMT -6)   
I found that Tylenol Arthritis helped with the joint pain.  I was on Humira 6 months and found no relief.  Being the impatient person I am, I went back to the dr and asked to try something different.  He put me on the Remicade and I felt relief after the first IV.  My bm's went from approx 10 per day to 1-2 per day.  I've just had IV #4 and still only go once or twice a day.  My energy is back and I can eat anything I want without fear.  If this isn't remission, then I don't know what is...  Just my 2 cents.
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