Question about symptoms?

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Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/27/2010 3:21 AM (GMT -7)   
Hi everyone :)

I was diagnosed with Ulcerative Colitis 5 years ago.. since then, I have been on lots of different meds, (listed in my sig) and now they are suspecting Crohn's since after coming off Steroids I've had constant right sided pain for about 2 months now) and a feeling of fullness on the right side. I was wondering if anyone here with Crohn's ever felt the feeling of fullness in the right side? My pain is right about where my belly button is, but lower slightly to the right. The fullness I feel is more like in my colon, the ascending part and maybe slightly into the transverse part. It doesn't hurt there, just feels like something is in there sometimes, maybe when poo is passing through, but I can feel like pressure or something.

Other than that, I'm doing ok for the most part. I'm on Pentasa now and not sure if it's even helping, was thinking of asking my GI for Entocort or something like that to maybe kick this thing into remission... I was scheduled for a colonoscopy next week, but received a call today saying I had to pay the deductable up front and I can't afford that right now so I have put it off for a month to give me a chance to save up. Instead, he's probably going to do the pill cam since I won't have a huge deductable for that test then do the colonoscopy when I save up the money..

I was just curious about if any of you have felt that way on the right side? It's not excruciating pain, but bad enough where I can't jog or ride my horse.. UGH... and the fullness or pressure is only sometimes, not constant... so weird.....

Oh, I did have a Small bowel follow through about 5 weeks ago and no sign of blockages, also a CT scan with contrast so no appendix issues... hmmmph...
 Diagnosed with Ulcerative Colitis January 31st, 2005
 
Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 
Current Meds:
Pentasa 2000mg 2x a day, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
       http://www.myspace.com/77016897  


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 2/27/2010 4:47 PM (GMT -7)   
Hello,
My son had it on the right side too right underneath where his appendix sat ( they were removed April last year-histology confirmed appendicitis and peritonitis). His consultant could feel the inflammation through his appendix scar tissue(colonoscopy confirmed diagnosis). He mostly felt the pain when he was eating but not exclusively then. He had 7 weeks on enteral feeding, 2 x anti biotics, pentasa, entecort (now tapering off) and azathioprine just started. The good news is that the pain has gone and he is finally putting on some weight.
Hope you get some answers and appropriate treatment soon.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/27/2010 4:48 PM (GMT -7)   
about 35% of people with Crohn's have it in the terminal ileum of the small bowel. That's the end part. The TI lies in the right side of the abdomen so people with CD in the TI often have right sided pain. I get pain there 1-2 hours after eating roughage. Lettuce leaves me with pain there for a day or two.

Usually in a colonoscopy, the GI can get to the TI and see what's going on there. The capsule endoscopy should be able to vizualize the area also. Crohn's was found in my TI during a colonoscopy. A CT and SBFT within ten days of my scope were "Normal."
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/28/2010 12:10 AM (GMT -7)   
Wow... thanks guys... I appreciate your responses.. I've been so worried, I haven't been feeling HORRID, just put off from this pain and it's keeping me from doing the things I really love, like ride my horse. (too bouncy right now).. The evening I had my SBFT, about 5 or 6 hours later, the pain got REAALLLLLY Bad and I'm suspecting it was because the wonderful barium I had to drink was passing through the Terminal ileum... Food is definately a trigger for the pain, if I don't eat much I hardly feel it, but if I eat the wrong things, (which I'm still trying to figure out) the pain is very noticeable.

What would you suggest are the safest foods in this case? I know everyone is different, but if I can get some basics, maybe it will help me get rid of the pain.. or at least make it where I don't have it quite as often.. I'm pretty much noticing it every day... and my attitude has been getting kind of depressed... Feeling pain every day really sucks and all this darn rain doesn't help! lol...

I feel so badly about putting off my Colonoscopy, but I just don't have the money for the co-pay right now.. but I'm pretty sure I can have it next month.. What's one more month when I've been doing "ok" for the last 2 months..

Thanks again :)
 Diagnosed with Ulcerative Colitis January 31st, 2005
 
Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 
Current Meds:
Pentasa 2000mg 2x a day, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
       http://www.myspace.com/77016897  


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 2/28/2010 1:49 AM (GMT -7)   
The ideal method would be to go on a liquid diet to give your bowels a rest and then add foods one at a time to see how you react. I get the same kind of pain you do and it really helps me to go liquid for a few days. Raw veggies are almost always out of the question. I personally react to beef and pork so my proteins are fish and fowl. Chicken seems to be almost universally safe for some reason so chicken broth might be a good thing at first. Soft foods like pasta and potatoes are usually safe for most ppl. Chillies are usually a problem, I even avoid pepper.

I know how you feel re the pain, I've been in bad pain (not Crohn's related) since 1986 and it definitely causes depression. I hope you can get it under control real soon.
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 2/28/2010 4:58 AM (GMT -7)   
I am rapidly learning that everyone has a different tolerance to different foods and what is good for one may not be so good for another. We were told next to no fruit and veg and no wholegrain (this was prior to going onto enteral feeding) although others here have not been told this. Really you need the drugs to settle things down and then 'play' with foods to see what is good for you but as that is not happening at this moment I would go with what has already been suggested, chicken, fish, well cooked white rice, soup with no bits, jelly (sorry if you in USA I think our jelly is your jello(?) and our jam is your jelly lol)mashed potato -these are certainly the foods that are first introduced after enteral feeding-quite bland but more easily digestible.

Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/28/2010 9:26 AM (GMT -7)   
THanks everyone :)

I have found that Chicken and Eggs seem to be very safe for me to eat, along with mashed potatoes as long as I don't eat the peels of the potato. Oh, and Canned Green Beans are pretty safe for me... I tried eating canned spinach, but I think it has given me problems so I need to try that again once I get this pain under control and see what happens as I LOVE Spinach with a little butter.. yummmmm....

I also picked up some baby food yesterday, some veggies and fruit flavors. I'm going to eat those instead of my traditional veggies and fruit and see what happens. It sure tastes bland when you eat it out of the jar, but I just add a tiny bit of salt and butter to the veggie ones and it's really pretty good. Seems to go through with no problems at all and I'm getting the fruit and veggie benefits.. (at least I hope so...lol)

Well, eventually I'll get everything figured out, it's been a real tough last year... including my almost 8 months on presnisone and all the lovely efffects of that drug,.. lol.. I never thought my face could get so fat! OH and the hunchback! OH GOSH.. talk about buffalo hump... WOW... At least my body is almost back to normal, No more moonface or hump, just 20 more of the 30 pounds I gained to lose and I'll be feeling better emotionally... lol..

Thanks for the advice everyone... looks like I'll probably be moving over to this board, my GI's pretty sure it's Crohn's after all, just need to do the pill cam and colonoscopy to confirm it... UGH... lol..
 Diagnosed with Ulcerative Colitis January 31st, 2005
 
Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 
Current Meds:
Pentasa 2000mg 2x a day, Nexium 40mg once a day, Wellbutrin 150mg once a day. Culturelle 2x a day, Xanax as needed and Ambien at night for sleep..  
       http://www.myspace.com/77016897  

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