So, I've been feeling really good for the last week and a half. I started the SCD, and I really felt like it was working...
Well, I just started seeing a new doctor at the Cleveland Clinic yesterday (he seems very good), and he's not convinced that I have Crohn's disease...my track record is, well, weird. He wants to do another colonoscopy, but he wants me to be off my meds when he does it. He has it scheduled for the first week of April and I stopped taking my pentasa and started to taper my entocort last night. (sorry my signature is wrong, I had a bad reaction to humira...and imuran...)
Now, I feel horrible. I've been on the toilet all day with waves of nearly unbearable pain. I thought about going to the ER, but it seems to be finally settling down a little bit. Maybe it's stress? I really don't want to be feeling like this until April...not to mention I'm going on vacation with my family to Florida the 2nd week of March (tickets already bought)...I feel like crying. I'm so tired of this disease screwing with my life and my plans...if it even IS crohn's!
I just needed to vent. Thanks.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Pentasa 1 gm/4x daily; Humira injections; Entocort 9mg