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Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/28/2010 1:42 PM (GMT -7)   
They're not releasing my son today because they want to do a bone scan. Do Crohns patients have a problem with their bones?

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 2/28/2010 1:47 PM (GMT -7)   
Usually when we have bone trouble it's due to extended steroid use which weakens bones... as far as I know anyway. I hope it goes okay!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/28/2010 1:51 PM (GMT -7)   
If he's been on steroids a lot, it can cause osteoporosis eventually, so it's a good idea that they monitor him and have him take calcium and vitamin D if needed to prevent bone density loss.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/28/2010 1:55 PM (GMT -7)   
He only took them for a very short time last year. Does Remicade affect the bones?

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 2/28/2010 2:11 PM (GMT -7)   
My old GI said he feels like there is a connection between Crohn's and low bone density "before the patient even smells a steroid." I guess he felt it was due to malabsorption. I never had a bone scan done before years of steroids, so I don't know what my baseline was. It's great that your doctor is proactive on this. Early scans will detect a baseline density so that they can keep watch. Personally I think I have osteoporosis because I'm steroid dependent... and have been for years. Right now I'm not on oral steroids, but...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 2/28/2010 2:43 PM (GMT -7)   
I just had a baseline done. mine was low. We CD pts need to have this done due to absorbtion issues (i think). We normally do not get the right amount of vitamins. We need to have more Vit D, and calcium, our bones suffer when our bodies don't get the right amount of these. And this is before you add in the steroid use.
hope this helps
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/28/2010 3:14 PM (GMT -7)   
I had one done a few months ago due to my steroid use. I have osteopenia, which is in between being ok and having osteoperosis...I'd better start slamming that vitamin d and calcium!!
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas, VSL #3 DS.
 
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 125mg Imuran, Psyllium Seed Powder, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Align Probiotic, Vesicare (for urinary retention). 


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 2/28/2010 3:48 PM (GMT -7)   
Thanks for all your replies! I finally found out from him why they're doing it. They're wanting to make sure the steriods and Remicade haven't effected his bones. They're also going to give him iron through an IV. I'm glad of that.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/28/2010 9:29 PM (GMT -7)   
Potsie,
You might want to think about getting one done as well. Sometimes it is also a good idea to get a baseline done, so you can see if your lossing any bone mass.
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 2/28/2010 11:00 PM (GMT -7)   
My GI also told me I lost bone due to crohn's before steroids. I've had a baseline done before starting steroids and get one every 2 years.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


DarrylP
Regular Member


Date Joined May 2006
Total Posts : 214
   Posted 3/3/2010 5:41 AM (GMT -7)   
I just got my first DEXA done yesterday....my old GI never got one done in the 4 years i have been diagnosed, the first thing my new GI asked when he got my files from the other GI is "Where is your Bone Mineral Densitys scans?" of course my reply was i never got one done. Anyways, since i was in highschool, around 17, i started doing power lifting and strength training as part of my training for the wrestling team i was on. I have been heavy in the gym ever since minus flare periods (am now 25) and was diagnosed when i was 21.

I have only been on Prednisone once at a full dose, yet am still close to the border line between normal and osteopenia. Strength Training/Power Lifting is supposed to be one of the best ways to gain bone density and i am a HUGE milk drinker, so i get more then enough calcium (if i was a normal healthy person without crohns), that gives you an idea how much damage crohns can do to ones body, even without a lot of steroid use.


 

Post Edited (DarrylP) : 3/3/2010 8:00:14 AM (GMT-7)


Potsie
Regular Member


Date Joined Oct 2009
Total Posts : 291
   Posted 3/3/2010 7:20 AM (GMT -7)   
Thanks for all the input! They released him before doing the scan. It has to be done as an outpatient.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/3/2010 8:59 AM (GMT -7)   
Postie,
I was quite serious unless you had your son extremely young it might be a good idea to do one yourself.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/3/2010 9:07 AM (GMT -7)   
I agree Navy! It's a good idea for anyone, especially one with family history of osteoporosis to have one done. My mom has had them done to ensure that she doesn't develop osteoporosis. I keep telling my sister to have one as well. (can't convince my dad though...he's 58 and has yet to have a colonoscopy either---BAD DAD!)

Darryl-I had crohn's for about 7 years before switching to a good GI. That was one of the first things she asked as well...."why haven't you had a bone scan yet?" (I also had never had an upper endoscopy done and had been on PPI's for 7 years...my old GI was not thorough)
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin

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