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CROHNSPT1993
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 2/28/2010 11:28 PM (GMT -7)   
I get massive swelling all the way down my right leg. All my problems with my CD are on the rt side of the abdomen. Does anyone else experience this? I mean my rt leg is 3X the size of my left and there is slight edema. I have had ultrasound after ultrasound. The Doctors cannot seem to figure out what's wrong. It's frustrating because I don't fit my clothes the same way and I constantly have to elevate my leg and wear compression socks. Any idea what this swelling could be steming from? Leave your opinions or any info you think might help me solve this mystery.
 
Thanks guys.shocked
Diagnosed with Crohn's Disease at 18, currently 33.
I have ileitis Crohn's Disease. 
I have had multiple CT guided abscess drains, surgical debridement for abscesses, reaccuring psoas abscesses and fistulas.
I have an enterocutaneous fistula and I'm currently waiting to have my second surgery (ileocecectomy)
I've had multiple blood transfusions and picc line antibiotics.
Meds: Imuran, zofran, ertapenem, zoloft.
 


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 3/1/2010 5:47 AM (GMT -7)   

It could be something as simple as Crohn's Arthritis.  When I'm flaring, my ankles swell to the point I can't walk or drive for 2 weeks.  My right ankle is usually the worst. 

I know there have been others on here whose knees swell all the way down to their ankles.  Others have had their fingers swell.

I'm sure yours could be a NUMBER of different things but I (finally) know mine is simply Crohn's Arthritis (inflammation caused by Crohn's) and nothing more. 

It's very annoying and I feel your pain.


Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
38/F/SC
Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills; Slow Fe (PRN) 
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 3/1/2010 6:17 AM (GMT -7)   
Hi there it does sound like it could be arthritis to me too as I also suffer with RA along with crohns/colitis, and iritis. As for your pain on the right side that also is often the case for a lot of us crohnies, I know for me my pain was often right sided. But now I have an ileostomy and don't have that pain anymore. I would suggest you go to your doc and get a referral to see a rheumatologist my joints are always sore and swollen. I hope you get some answers soon. Let us know how you go, take care

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/1/2010 6:48 AM (GMT -7)   
Before my diagnosis my left ankle swelled to the point that I couldn't walk for a week... when I went on steroids it went away. I haven't been diagnosed with arthritis or anything and it hasn't happened again since the first time (then again I am on steroids right now). Hope yours gets better soon!!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 3/1/2010 7:15 AM (GMT -7)   
My rt upper thigh gets stiff, sore and double sz when my symptoms are worse. I broke down and bought a cane to help when this happens. I have three sz pants that help with the situation. Have you tried using heat? That helps me some with seld massage. Take care

37/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2007

Diagnosed with Generalized Anxiety Disorder 2008

 

Starting on REMICADE probably within the next mo.

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 3X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), .05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/1/2010 8:29 AM (GMT -7)   
While I agree with the above, I wonder about your heart? Granted it is just one side, but my injury side actually swells less the my non surgerical side. I have swelling do to both arth and some minor heart issues caused from severe disease.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


CROHNSPT1993
Regular Member


Date Joined Feb 2010
Total Posts : 42
   Posted 3/3/2010 9:19 AM (GMT -7)   
HM,
The heating pad helps you? That is something I should try. Oddly when I shower the hot water makes my leg swell more but I think it's because I'm standing for a long period of time. Does this ever happen to you?

MMMNAVY,
I never thought to check my heart that is a good recommendation. I do have heart flutters and palpitations every so often and my nurse said my lungs sound tight when I take deep breaths. She was very concerned. I was told long ago by my Doctor from 04 that I have COPD. But I don't smoke. He wasn't sure if it was asthma or what. My Doctor today said he thinks my lymph nodes may have been severed during one of my CT guided abscess drain procedures. My swelling walks hand in hand with exacerbations of my CD. I don't know!? It's all a mystery.

KittiKat,
I often wondered if that's what it could be. (Crohn's arthritis) Knowing I am not the only one makes me feel better because I can talk to all of you and you understand what I am talking about and you don't judge me or think I am exaggerating. It's nice to relate once in a while. Thanks for your help.

Andorable,
I am going to take your advice along with KittiKats and make an appointment with a rheumatologist.

Sickandlucky,
Steroids are terrible! I got moonface when I was on those darn things. YUCK!!! Hang in there!
Diagnosed with Crohn's Disease at 18, currently 33.
I have ileitis Crohn's Disease. 
I have had multiple CT guided abscess drains, surgical debridement for abscesses, reaccuring psoas abscesses and fistulas.
I have an enterocutaneous fistula and I'm currently waiting to have my second surgery (ileocecectomy)
I've had multiple blood transfusions and picc line antibiotics.
Meds: Imuran, zofran, ertapenem, zoloft.
 

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