Confused about fiber

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Regular Member

Date Joined Sep 2009
Total Posts : 212
   Posted 3/1/2010 10:53 AM (GMT -6)   
So is fiber a good thing for one with Crohn's...or a major no-no?  My daughter is sticking pretty closely to a low fiber/low res diet.  She does better on it than not or so it seems. But then I keep reading about how important fiber is to your overall health, and a close friend of mine with pretty severe colitis is now in remission since she started taking Benefiber. So then I think..okay, I'll add Benefiber to my child's diet. And THEN, I see a morning program where a woman is promoting fiber (even saying its good to prevent flares of diverticulitus...and IBD!) but in the next breath she's saying it promotes weight loss which is the LAST thing I want since my daughter is rail thin at this point and can't seem to gain an ounce (let alone maintain her weight.) So...what to do. Fiber good, or Fiber evil?  Anyone care to weigh in here? (no pun intended of course.)

  • Nanners
    Elite Member

    Date Joined Apr 2005
    Total Posts : 14995
       Posted 3/1/2010 10:58 AM (GMT -6)   
    I have the stricturing/scarring type of Crohns so I follow a low residue diet all the time. Fiber is helpful, but if you choose to add to her diet, do it SLOWLY. It may produce more gas at first until your body adjusts. My GI has instructed me to start at a dose much lower than the starting dose and slowly work my way up. I chose not to add it at this time, as I don't do as well with added fiber because of the type of Crohns I have. Good luck!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    Veteran Member

    Date Joined Apr 2005
    Total Posts : 3763
       Posted 3/1/2010 10:59 AM (GMT -6)   
    Its very individual. For anyone who has any type of narrowing fiber can cause pain or a blockage. But for some people fiber is necessary. Personally I follow a low residue diet at all times and that works for me. If I cheat and eat something with fiber, I pay. Something with a lot of fiber and I could be at the hospital.

    So if it is working for your daughter, then don't mess with it at this point. When and if she gets to the point that she is feeling great and wants to experiment a bit, go very slowly and see how she does. She may be able to tolerate some fiber, but you want to make sure she is stable first.

    CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
    Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

    Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

    Regular Member

    Date Joined Oct 2009
    Total Posts : 57
       Posted 3/1/2010 1:40 PM (GMT -6)   
    fiber does not do well for me either, when i was younger the doctors told me to take fiber supplements to increase the amt i intake and it make me 100 times worse. over the years i just watched what i ate myself and learned what i could and could not tolerate. As well if your daughter is trying to put weight on high fibre will fill you up and make you feel full longer and therefor she will start to eat less and less often which im sure is not what you want either.

    I would agree with everyone else if a low residue diet is working for her i wouldn't mess with it.
    Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
    Current meds: Remicade Feb 2010, Immuran, rel-pax, Topomax, Corticosteriod Suppositories, lantus, humalog, 2000u vit d, calcium, multivit, omega 3, Vit B

    Veteran Member

    Date Joined Jan 2010
    Total Posts : 8424
       Posted 3/1/2010 3:27 PM (GMT -6)   
    As long as your child isn't constipated, I wouldn't worry about a lack of fibre. Calories sound like the most important thing to concentrate upon right now, and fibre has zero calories. It also has zero nutrients. Depending on the type of fibre (insoluble or soluble), it serves to either bulk up your stools and make them easier to pass or to regulate blood sugar levels and lower your cholesterol. I doubt any of that would be critically important to your child, unless she got constipated as a result of a low-fibre diet.

    For me personally, I do quite well on fibre. I eat it because I have the tendency these days to get constipated at the drop of a pin if I don't. It almost makes me miss the days of chronic diarrhoea...
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