Different Treatment Approaches

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airikah
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/2/2010 3:04 PM (GMT -7)   
It has been suggested to me that holistic type therapies may be useful in managing my symptoms? Any thoughts...
Have Had Crohn's: 4 years
Currently On: Imuran and Pantaloc and about to start Remicade
Tried: Prednisone, Nexium

Age: 23 Female- Ontario, Canada


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 3/2/2010 3:49 PM (GMT -7)   
I am 100% on board with holistic healing.  I have gotten to the point where I look at my body and the issues I have with Crohn's as something that needs to be addressed as the whole package.  In addition to the random prescriptions my drs give me, I have also been on 6mp (and it stopped working), Remicaide (and it stopped working) am starting Humira this week (dr says he doesn't know if it is going to work), am currently taking Prednisone in pill form but have been in the hospital on IV steroids.  That is a lot of hard core medicine, all with side effects and a lot with the potential to cause cancer, or mutations in the body.  That being said, I am living for today and taking these drugs means that I am not laying in a hospital bed on medical leave from work for 3 months while my body is wracked with pain and I can barely function on a basic level.  I think most people here can relate to that feeling.
 
So in ADDITION to the hard core drugs, I also take a holistic approach.  This is what I do (disclaimer - this is what I CHOOSE TO DO FOR MYSELF and I know it's not for everyone, but everyone deals with their disease in a different way :)
 
I follow a mainly plant-based, dairy-free Macrobiotic diet.  I tried being Vegan but Macrobiotics works much better for me since I can eat fish.  Macrobiotics is more of a philosophy rather than a strict diet but a VERY basic premise is that your diet is centered around whole grains and veggies and (this is big) you chew your food very well.  Everyone says that, no one does it, but in macrobiotics it is a focus.  Then there are other things, like being consciously aware of what you are putting in your body, appreciating what you eat (I always say a little prayer before I eat), eating organic, not eating 3 hours before bedtime and not eating and drinking at the same time (giving at least 30 min between eating and drinking).  There is a focus on the Alkaline/Acid ph balance in your body (which you can test) and you want to keep the proper balance.  All this is easier than it sounds.
 
I am still learning about it but this is what I am doing so far with my diet.
 
Aside from that, I run and do yoga - I pray and try to meditate - I am trying to deal with my stress as best I can but at this point am looking to make some big changes in my job and maybe even where I live.  I tend to get sick in the cold months and am very healthy during the warm months.  There are so many links to Vitamin D and sunshine and inflammation in the body - maybe I need to move someplace warm?  I take several supplements and drink Chinese teas.  I am currently trying to eliminate nightshade vegetables from my diet to see if that helps, they cause inflammation in some people.
 
I have tried accupuncture but it was too expensive for me so I didn't do it enough to see results specifically from that.
 
I think that a holistic approach can be used in conjunction with modern medicine - there is no cure for Crohn's or colitis and no one here has been suddenly cured, so why not look into it and try it?  It can ONLY HELP YOU.  If it doesn't work out you can go back to your dr's orders to eat white rice and Wonder bread and drink Ensure.  The bottom line is that everyone's body is different and we all have a responsibility to ourselves to live the best lives that we can, disease or not.  So we need to figure out and learn about our bodies on a very personal level.  Our drs give us the same medicines and hope for the best.  They also don't care so much about the side effects, a GI dr's #1 concern is getting the inflammation down at any cost.  If a person ends up with cancer in 10 years....................they go to a different doctor who treats that.  Holistic healing is about connecting everything in your body and yourself as a person.  You will learn a lot about yourself in the process too when you are more in touch with figuring out how what you do affects who you are.  I am finding myself happier since I have made this a part of my life.  And I have been sick, so I am sick and happy. :)
 
If anyone wants suggested reading, Alicia Silverstone's new book The Kind Diet is AWESOME and she really makes it simple. 
 
Good luck!  Let me know if you have any questions, i would love to help!! :) 
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, starting Humira, 55 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


airikah
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/2/2010 4:16 PM (GMT -7)   
That was extremely helpful, definitely something I am whiling to try as I am sick of the sole reliance on western medicine, I feel it's destroying my body and not helping it. My only concern is how do you know what holistic doctor to choose, I mean so many of them out there are just a cash grab, any suggestions???

PS: Does your no meat diet include chicken? Or are you strictly eating only fish.
Have Had Crohn's: 4 years
Currently On: Imuran and Pantaloc and about to start Remicade
Tried: Prednisone, Nexium

Age: 23 Female- Ontario, Canada


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 3/2/2010 7:43 PM (GMT -7)   
I think an integrative approach is very important :) I've seen a naturopath in addition to my regular GI (I'm in ON too). Some things are very important to treat with western medicine (such as severe flares etc; they DO warrant using prednisone sometimes), but I believe there are a lot of natural ways we can boost healing as well. Is there someone around you trust who can recommend a good naturopath to you?

Wednesday have you read Controlling Crohn's Disease the Natural Way by Virginia Harper? It has alot of good info on macrobiotics...
I also have another book called Prescription for Nutritional Healing that lists helpful supplements to be taking for lots of different problems, it's a very interesting read!
Good luck!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone(tapering) & 100 mg imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin


Samik83
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/8/2010 6:52 AM (GMT -7)   
I am new to this site, but desperate. I'm ready to try holistic approaches. I already tried diet change and since I have a stricture, I think a low fiber diet didn't work. Anyone know other approaches/remedies? Here is my situation:

I thought Entocort was going to be the cure-all. My Crohn's is left-sided and it didn't work for me. Tapering off, and I think I'm experiencing headaches from it. I also used Humira and it stopped working in August, and was in remission for 10 years until then. I'm on azothaprine, asacol 3 pills 3 times a day and sulfasalizine. Nothing is working. I used to take Remicade and I only took it because I had a fistula but no active disease and it didn't close the fistula--I had rectal flap advancement which was a miricale. So I don't know if the Remicade will work. Anyone have similar experience/advice? I refuse to take prednisone because of all the side effects even though it was the only drug that seamed to work. I have a 4 cm stricture on the left side. Sometimes I'm constipated, sometimes, diarreah and a lot of gas.
___________________________________________
33-year-old female diagnosed when I was 19. Had a recto-anal fistual and rectal flap advancement surgery to correct in. In remission for 10 years until August 2009.
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